The TSC Alliance is a source of hope and support for people with tuberous sclerosis complex so they can live their fullest lives. #HopeNoMatterHowComplex
United States
Joined August 2008
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More amazing coverage of the film The Last Sunrise and how Anna Todd is using her story and experience to raise awareness of TSC!
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TSC Alliance retweeted
Join PAME on September 17th for an important webinar discussion on #Seizure Clusters: Definitions, Consequences, Interventions. Find more info and register here: us02web.zoom.us/webinar/regi… #SUDEPAwareness
TSC Alliance retweeted
It was great to see our rare disease friends at the TSC World Conference in Aurora, CO earlier this month. Thank you for allowing us to advance research on behalf of our communities.
@tscalliance
TSC Alliance retweeted
We’re proud to sponsor the @tscalliance 2026 TSC World Conference and are grateful to stand with the global #TSC community. #TSCWC26
We have a special World Conference welcome message for you from actor and epilepsy advocate Greg Grunberg!—watch now!
#tscwc26
The application for the Al Marshall “Commitment to the Future” Fellows Scholarship is now open!
Learn more about scholarship eligibility and how to apply here: hubs.li/Q04pmG9N0
The scholarship application closes on August 24, 2026 at 11:59 pm ET.
TSC Alliance retweeted
The RDCTN team & our partners at Rare Disease Research Catalyst Consortium (RDCat), are proud to join #TSCGlobalVirtualRelay for Tuberous Sclerosis Complex (TSC) awareness! Follow the digital baton across all 7 continents! #TSCGlobalDay #ConnectingTheWorld4TSC #LighttheWay
ALT A team of people facing the camera in front of a poster, three of them are holding posters to support the TSC initiative
#wearblue for #TSCGlobalAwarenessDay! Together, we unite for everyone impacted by tuberous sclerosis complex (TSC). Learn more and get involved: hubs.li/Q04gNKdk0
#TSCAlliance #RareDisease
TSC RESEARCH IN THE NEWS!
Apertura Gene Therapy and the TSC Alliance Announce Collaboration to Advance Gene Therapy Programs Designed to Treat Tuberous Sclerosis Complex (TSC)
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TSC Alliance retweeted
Join Session 1: Introduction to TSC
🔎Review the clinical diagnostic criteria for Tuberous Sclerosis Complex, including key dermatological findings.
🧬Explore the genetic basis of TSC and implications for care.
📅 Apr 29 | 12–1 PM
🔗 Register: oen.echoontario.ca/qs-tubero…
New to a TSC diagnosis? You are not alone. Join us tonight at 8 pm ET for TSC 101 for newly diagnosed individuals or families, to gain a clear understanding of TSC and learn how to build a coordinated network of care for your journey.
Register: hubs.li/Q04dTrWV0
2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs!
LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral.
Access the program description, information on how to submit an LOI, and more: hubs.li/Q047w-tw0
TSC Alliance retweeted
Jerry, sorry no. Terry, no wait, that’s not right... Jim! Jim O’Heir and the @tscalliance stopped by the office to talk about tuberous sclerosis complex and the fight to improve care and research for families living with it.
We’ve got to keep supporting the medical research that helps turn breakthroughs into real treatments.
2026 TSC Alliance Research Grant and Postdoctoral Fellowship program is now accepting LOIs!
LOIs must be submitted by Monday, May 18, 2026, on ProposalCentral.
Access the program description, information on how to submit an LOI, and more: hubs.li/Q046X2Qc0
Join us for the 2026 TSC World Conference, from July 30-August 1 at the Gaylord Rockies in Aurora, CO! 🏔️
Register and learn more at hubs.li/Q046RcQc0.
Join us at AES 2025!
The TSC Alliance is excited to attend AES 2025 in Atlanta, GA this year. Come find us at our booth (#639) at the Georgia World Congress Center from December 5-9.
**Not sponsored or endorsed by AES.