@kyleabryant and @seanbaumstark have a rare disease. This podcast is all about cultivating the courage to live beyond any circumstance and laugh along the way.
The Web
Joined February 2017
- Tweets362
- Following432
- Followers762
- Likes468
Let’s gooooo! @EveryCure is quite literally changing the world!
We are incredibly honored to receive this transformative funding from @ARPA_H
This funding comes at a pivotal time, allowing us to scale our approach across diseases to pioneer new treatments for millions of people around the world without options.
Here’s to chasing cures at scale!
everycure.org/every-cure-to-…
See Prescribing Info: bit.ly/SKYCLARYS-PI. Watch for Important Safety Info.
Sponsored by @biogen. This Rare Disease Day we recognize the 1 year anniversary of the FDA approval of SKYCLARYS. Learn more here: bit.ly/3Uf6L3T.
Two Disabled Dudes retweeted
Sponsored by @ReataPharma. Watch for Important Safety Info & see Prescribing Info: bit.ly/SKYCLARYS-PI.
5/20 is #FA Awareness Day, & there’s finally a treatment option for FA–SKYCLARYS. Learn more at bit.ly/3KnYtQy, & talk to your doctor to see if it’s right for you.
Sponsored by @ReataPharma. Watch for Important Safety Info & see Prescribing Info: bit.ly/SKYCLARYS-PI.
We’re excited SKYCLARYS is now approved for Friedreich ataxia patients 16 years & older. Learn more at bit.ly/3ZLiaHS, & talk to your doctor about SKYCLARYS.
Sponsored by @ReataPharma. Watch for Important Safety Info & see Prescribing Info: bit.ly/SKYCLARYS-PI.
5/20 is #FA Awareness Day, & there’s finally a treatment option for FA–SKYCLARYS. Learn more at bit.ly/3KnYtQy, & talk to your doctor to see if it’s right for you.
Looking for a delicious #keto bar? We’ve got a brand you must try! Meet the founder of @ketokrisp and hear his #CanDo story in ep198
twodisableddudes.com/198-wha…
An insightful interview with exciting things on the horizon for rare disease #research
Ep195
#RareDisease patients are not only powerful but should also be empowered to pursue a cure. We sit down with Kyle and Sean to share how Vibe is placing patients back at the heart of drug development and the decision making process. 🧬 @2DDPodcast
In 2017, @HorizonNews invited 2DD to do a LIVE show at their Chicago office. This was our first recording in front of a live audience! Horizon took a chance on 2 rookies to talk about Rare Diseases. Listen to that episode & count @KyleABryant’s “um’s” twodisableddudes.com/020-liv…
Two Disabled Dudes retweeted
.@HorizonNews created a program for people living with rare diseases to connect & share their stories! Our
@KyleABryant of @2DDPodcast visited #HorizonTherapeutics to share what #RAREis means to him.
Share your own #RAREis story by visiting rareiscommunity.com
This is rewarding to see!
My chair is loaded up. I wish everyone cared for my chair the way the ground staff do in @OMAairport @SouthwestAir pleaseeeee take care of my legs until I arrive in San Diego.
This is everything 💯
Earlier this year Ford had two words: Mama & Dada.
This is 5 months after increasing the dose on his #trihexyphenadyl
The words just keep on coming!
#CTNNB1
We had a meaningful conversation with leaders @cziscience which you can hear in ep189 - a phenomenal few days with leaders in #RareDisease
Two Disabled Dudes retweeted
You can hear more about this from #thedudes at @2DDPodcast in ep185! We’re excited to follow our friends at Google in their mission to improve life through their tech…
Are you an English-speaking Android user with a speech impairment? We invite you to provide feedback on Project Relate, a beta app that improves speech recognition technology for people with speech impairments→ g.co/ProjectRelate #a11y #accessibility youtu.be/e6z5rEgoqnI
Two Disabled Dudes retweeted
It's raining
So time to listen to @2DDPodcast podcast while in the #TeamAtaxia training studio (garage) on #Tricycle for @SuperheroTri
Event
#Disability #RareDisease #Ataxia
Looking forward to this one!
🚨NEW PODCAST ALERT!!🚨
.
Introducing: THE FINAL SUMMIT w/ Chris Bombardier
.
Listen to the teaser and join Chris (@AdventureHemo) on 5/22 for EP1 of his latest adventure!
.
Subscribe to The Final Summit:
apple.co/3MPvcOs
.
Website: bloodstreammedia.com/the-fin…
.
#hemophilia
Two Disabled Dudes retweeted
A 7 year old @KIF1A kiddo just stole my @2DDPodcast hat! I guess I’ll have to get another one. You can get your own hat here: twodisableddudes.com/shop/
Joe Sooch points out that we only have one life to live so we better make the most of it. He has a rare disease called #Fibrodysplasiaossificansprogressiva #FOP – a #geneticdisorder that causes soft tissues to transform permanently into bone.
twodisableddudes.com/178-man…
Two Disabled Dudes retweeted
Reata Pharmaceuticals Completes Rolling Submission of New Drug Application for Omaveloxolone for the Treatment of Patients with Friedreich’s Ataxia
Click here to read the full press release: buff.ly/3Lx0UPA
