Patients first & foremost: the only UK patient led, patient managed kidney cancer charity; supporting patients, carers and their families since 2006

England Wales Scotland N.I.
Joined July 2015
Action Kidney Cancer retweeted
📢 What should Europe do to tackle the burden of kidney cancer? Experts at the European Parliament have highlighted key priorities for kidney cancer policy across Europe: • Invest in research to address areas where patients’ needs may not align with commercial interests.
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💡 NKCA Clinical Fellow Dr. Raghav Varma will present hot off the press findings from the recent State of the Nation Report at the British Uro-oncology Group @BUG_UK25 Annual Meeting. 🗓️ Sept 13 @ 09.15 🔗 buff.ly/indAGME @HQIP @NATCAN_news @kidneycanceruk @ACTION4KC
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Action Kidney Cancer retweeted
Terrific Talk by Laurence Albiges (@AlbigesL) on Biomarkers in Kidney Cancer at IUCS25 - Sumanta K. Pal (@montypal) oncodaily.com/voices/laurenc… #OncoDaily #Oncology #Cancer #Health #Medicine #MedTwitter #MedEd #MedOnc #MedNews #IUCS25 #KidneyCancer @CancerWorldmag
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This afternoon at the #BigCancer52Conversation we’re hearing incredible stories of patients' experiences of rare & less common cancers Thank you @AstraZeneca UK @TNLComFund @Level39CW for making today possible
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It’s #WorldKidneyCancerDay. To learn how #kidneycancer patients can show their kidneys some love. actionkidneycancer.org/get-i… #WKCD2025 @IKCCorg @ACTION4KC
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Action Kidney Cancer retweeted
Chances are, you already know the importance of keeping your kidneys healthy; not just for your physical and mental health but because poor kidney function affects quality of life and can exclude you from some treatments and clinical trials. #worldkidneycancerday @IKCCorg
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Action Kidney Cancer retweeted
Today is #KidneyCancerAwarenessDay! Do you know the facts about kidney cancer? Watch our short animated videos to learn more. bit.ly/3j1YGgr
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It’s #WorldKidneyCancerDay. To learn how #kidneycancer patients can Show their kidneys some love’ Please follow the link below:  actionkidneycancer.org/get-i… #WKCD2025 @IKCCorg @ACTION4KC
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Action Kidney Cancer retweeted
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Action Kidney Cancer retweeted
Announcement: Dr Eric Jonasch (US) will be Chair of IKCC’s Board of Directors, Claudia Ungarelli (IT) will be Vice-Chair and Prof. Stênio de Cássio Zequi (BR) will be Chair of the Medical Advisory Board, effective 1 November 2025. Full details here: ikcc.org/executive-leadershi…
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Action Kidney Cancer retweeted
Here are part of the awesome clinical nurse specialists @enherts with our fabulous leader @alimully #oncology #Nurses @ENHHCharity @EOE_cancer on #NationalCNSDay @G_Stephens80 @researchPhil
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Action Kidney Cancer retweeted
⚡️ Efficacy and safety of nivolumab plus ipilimumab in patients with metastatic variant histology (non-clear cell) renal cell carcinoma #KidneyCancer @mjmoussa_ @OAlhalabiMD @MDAndersonNews bit.ly/3EKjC8A
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Action Kidney Cancer retweeted
Very heartfelt presentation Prince thank you for sharing your personal experience & setting up of your charity to support others young people through a cancer diagnosis & treatment pathway. As a specialist nurse this is the most valuable part of my job @LGCW2024 #GPON2024 #TYA
Replying to @GPONursing
Prince reports the power of peer support for both people affected by cancer (in this case the other children) & their parents. Seeing Prince as a survivor who has completed his education has been of great comfort & support. The need to influence governments is paramount #GPON2024
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Around 15,700. That’s how many cases of cancer have been caused by smoking in the 100 days since the King’s Speech. With every day that goes by, that number continues to rise. @WesStreeting the UK Govt has committed to introduce legislation to raise the age of sale of tobacco, to help prevent future generations from taking up smoking. We urge you to bring this legislation to Parliament, and together let’s help end cancers caused by smoking.
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Action Kidney Cancer retweeted
It’s nearly the end of #Stoptober but that doesn’t mean your journey ends here. You’re more likely to stop for good if you get support from your local stop smoking services. They’re free to use and offer a range of advice and help. Swipe to find out how they can support you 👇

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Action Kidney Cancer retweeted
Please encourage your patients with kidney cancer, and their relatives, to complete the IKCC Global Patient Survey bit.ly/ikcc2024GPS
Replying to @IKCCorg
@IKCCorg Global Patient survey is 'Really quick to complete and easy to understand. I’m glad I took the 15 mins to do, it is so important to share our experiences with decision makers.' 2024 IKCC Global Patient Survey - Action Kidney Cancer
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Action Kidney Cancer retweeted
🌍 Exciting news! We’ve just enrolled our *first international patient* in Czech Republic (@fnolomouc) for CARE1! A big step forward as we expand our research beyond France. Grateful to our amazing teams and partners for making this happen! 🙌 #CARE1Project #kidneycancer
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