Representing palliative care social workers and the patients and families with whom they work.

Joined August 2012
We're pleased to share that this #HospiceCareWeek we will be focusing on workforce, under the theme ‘We are hospice care.' 💛 From 9–15 Oct, we're celebrating the incredible people that make up hospice care. Discover more about how you can get involved: rb.gy/ndtcn
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Children’s palliative and end of life care is a specialist area which most of us instinctively shy away from. This #childrenshospiceweek we wanted to explain what children’s palliative care means and what children’s hospices do togetherforshortlives.org.uk… #BestInterests
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Father's Day can be tough for those who have lost their dad or a child, or they're caring for them. We’re here to help anyone affected by terminal illness. Call or refer to the Support Line for free on 0800 090 2309. 11am-5pm Sat and 10am-4pm #FathersDay, Sunday 18 June 2023
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Ambition 6: I live in a community where everybody recognises that we all have a role to play in supporting each other in times of crisis and loss. Available on the @NHS_HealthEdEng Hub bit.ly/3uOVfwm #EoLC #Ambitions2 1/2
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Ambition 1 'I, & people important to me, have opportunities to have honest, informed & timely conversations & to know that I might die soon. I am asked what matters most to me. Those who care for me know that & work with me to do what’s possible.' #Ambitions21 | #EOLC
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Ambition 3 - ‘My care is regularly reviewed & every effort is made for me to have the support, care & treatment that might be needed to help me to be as comfortable & as free from distress as possible.’ #Ambitions21 ow.ly/5cyl50EQbtc
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'I get the right help at the right time from the right ppl. I have a team around me who know my needs & my plans & work together to help me achieve them. I can always reach someone who will listen & respond at any time of the day or night.’ #Ambitions21 bit.ly/3huUF35
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“The reality for many of the deaths which have occurred in homes in the past year has been bleak. We know that people have been dying without access to pain relief or the urgent care they needed, and carers have been left unsupported." - @RuthDrisc bit.ly/2PYurut
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First speaker at next weeks #MCResearch2020 @hollowaystevo, Pall Care Social Worker and researcher at @KingsCollegeLon presents his work exploring needs of children and young people whose parents have a life limiting illness. Register in pinned tweet and share your thoughts!
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New @VictoriaLIVE story is an issue I have been following for 3 years - how the govt treats bereaved families. Pressure is mounting for unmarried parents to receive a benefit meant for bereaved children. Currently you have to be married/civil partnership.
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Exclusive: Unmarried partners still missing bereavement payments - ⁦@AnnaCollinson⁩ for #VictoriaLIVE bbc.co.uk/news/uk-51676780
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Seen as @GaryScribbler talked about finding words where there are none here goes: in 11 years of being qualified I’ve never seen a more eloquent and powerful presentation that moved me so professionally and personally. Thank you. #apcsw19 @APCSW1
On my way up to London to give a talk at the @APCSW1 conference about child bereavement. Such an honour to be asked. I’ll try not to send you all to sleep! #apcsw1 #widowerlife
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Research is priority for palliative care social work @APCSW1 @ladylovestorun @hollowaystevo @seanog1957 @EAPCvzw
Really helpful piece - especially for those of us working to improve the #socialwork research capacity in our own universities. It’s a real struggle, and we need more initiatives like this. @MorrissLisa
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Thank you to @KirkwoodHospice for hosting and Prof Luke Clements for facilitating a fantastic study day on Continuing Healthcare. Lively and interesting discussion, a great day @APCSW1 @wendsashton67 #palliativecaresocialwork
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Replying to @mndassoc
@mndassoc @MarieCurieEOLC @JeremyVineOn5 honoured to be asked to attend the All Party Parliamentary Group at Parliament today on behalf of @APCSW1. Hearing from Chair that the 6 month rule is not fit for purpose.
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Replying to @drewhendrygfg
@drewhendrySNP @APCSW1 giving an impassioned speech about the need to scrap the 6 month rule, and emphasising the pressures for those who live for longer than this arbitrary length of time.
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Having a day out of the office that sings to my soul. Looking at how we can improve and progress our service for patients with Dementia and their families @annawolkowski @Sluke_13 @lin64 @SueF65 @DianeDinning4 @KerryAtkin4 @lin64 @EWolverson @KarindaJones @flowerbabe
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After talking with current and former carers, we've set out our aspirations for #CareAfterCaring in a new report for with @HospiceUK. 12 case studies share how they are supporting carers facing bereavement @carersweek #NHSThinkCarer nationalbereavementalliance.… Our 6 aspirations👇
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Are you a parent living with cancer or another life-limiting illness? Would you be willing for your child to talk about their experience? Then @SCYP_Kings would love to hear from you!