We’re proud to share ASH RC’s first-ever Community Voices Shaping Sickle Cell Disease Research report, created with the community and for the community. Read the report: ow.ly/Sky950ZSOXv #SickleCell

The 2026 Data Hub Living with Sickle Cell Disease Report is here! Drawing on 2025 data from 12,164 individuals living with SCD at 20 hospitals across 12 states, the report explores SCD complications, preventive care, hospital use, mental health, and more. ow.ly/YvJz50ZO1US

Officer updates from ASH RC: Dr. Schiller serves as Chair; Dr. Silverstein as Secretary-Treasurer; Dr. Evens continues as Vice Chair. Dr. Crowther transitions from Chair to Director, continuing to support ASH RC’s mission. ow.ly/u9w350YQMMP #Hematology

New in Blood Advances: the ASH Research Collaborative SCD Research Network is accelerating sickle cell disease research through real-world data and community partnerships. Read now: ow.ly/4b1Q50YJ2Py #SCD #Research @Bloodjournal

Exciting leadership update from the ASH Research Collaborative (ASH RC)! The ASH RC Board of Directors welcomes three new directors: Margaret Anderson, MA; Adama Ibrahim, EMBA; and DB Kartik, MBA, CFA. Learn more: ow.ly/pZRf50YCV9J

From idea to results: what exactly happens during a clinical study? Our new ASH RC video, shaped by NCAB member input, describes each stage of the clinical trial lifecycle in clear, accessible language. ow.ly/1ZHf50XwT1O #SickleCell #ClinicalResearch #ConquerSCD

Every clinical trial has rigorous checks and balances to keep participants safe, but what does that look like? Learn safeguards and processes that protect individuals throughout SCD research: ow.ly/kNSE50XwRZC #SickleCell #ClinicalTrials #ResearchSafety #ConquerSCD

From EHR-based #SickleCell phenotyping to real world voxelotor outcomes, today’s #ASH25 abstracts from the ASH Research Collaborative offer fresh insights into improving care of patients. Explore the studies: ow.ly/w8SH50XBVIn #Hematology

This evening at #ASH25, the ASH Research Collaborative highlights tech driven research and community engagement, from AI kidney disease prediction to clinical trial literacy. Check them out from 6 PM to 8 PM! ow.ly/KAJb50XBToH #AI #Hematology #MMsm #ClinicalTrials

Don’t miss the ASH Research Collaborative’s special interest session at #ASH25, spotlighting how real-world data is being applied in multiple myeloma to support regulatory work. ow.ly/5M7M50XBVpn #MMsm #Hematology