A voice for rare disease, working towards a cure for Wolfram syndrome and developing novel therapies for diabetes, vision loss, hearing loss neurodegeneration.

St. Louis, Missouri
Joined February 2013
Want to listen to the presentation by Dr. Giulio Frontino and Dr. Maurizio Delvecchio of IRCCS San Raffaele Hospital, Milan, Italy? They are speaking on Unified Care for Diverse Challenges: Crafting National Guidelines for WS from Diagnosis to Care youtu.be/PssLjWZgsFE
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Join us for a fun golfing event while supporting The Snow Foundation, a chance to play in a $100,000 Shootout. Sign up Today Bogey Hills Country September 9th, 2024 Sponsorships/Tickets Available: buytickets.at/thesnowfoundat…
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Are you interested in staying updated on the latest advancements in the TREATWolfram trial? Then, you should take advantage of Dr. Timothy Barrett's insightful update! Head to the link to listen to it now and stay ahead of the curve. youtu.be/zQ-WrsgEi3o
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Join us for a fun golfing event while supporting The Snow Foundation. Your participation will help us fund our research commitments for 2024. The event will offer food, refreshing drinks, & the chance participate in the thrilling $100,000 Shootout. ow.ly/ZH7650Roqjl
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Stay updated w/ the latest insights, discoveries, & breakthroughs related to Wolfram Syndrome, then you don't want to miss out on the opportunity to listen to Dr. Urano's research updates along w/ Amylyx Pharmaceuticals' ongoing clinical trial, AMX0035. youtu.be/WCUNVi90EGo
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Have you signed up for our Annual Golf Tournament, At Bogey Hills Country - September 9th, 2024 Sponsorships/Tickets Available: buytickets.at/thesnowfoundat…
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Research by Mario Plaas at the University of Tartu in Estonia shows that a treatment using the dual-incretin agonist DA-CH5 exhibits a potent therapeutic effect in a rat model of Wolfram Syndrome. ow.ly/4wNS50R5fEl
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Want to listen to the presentation by Dr. Giulio Frontino & Dr. Maurizio Delvecchio of IRCCS San Raffaele Hospital, Milan, Italy? They are speaking on Unified Care for Diverse Challenges: Crafting National Guidelines for WS from Diagnosis to Care youtu.be/PssLjWZgsFE
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West Side Automation, Inc. Presents the 4th Annual Car Show 
To Benefit The Snow Foundation 
September 28, 2024 | 1:00 pm - 3:00 pm
 McCarthy Building Companies, Inc. 
12851 Manchester Road, 
Des Peres, 63131 

Sponsorships/Registration Available buytickets.at/thesnowfoundat…
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The Snow Foundation is supporting research on gene and pharmacological therapies with Dr. Benjamin Delprat at the University of Montpellier in France to treat Wolfram Syndrome. Read about his research update here: ow.ly/j2eE50R5fke
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Don’t forget to join us tomorrow for an exciting event - The Snow Foundation and Wolfram Syndrome UK are hosting the WS virtual conference starting at 2:00 pm (BST). This is an incredible opportunity to learn and connect with others in our WS community: wolframsyndrome.co.uk/wp-con…
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Join us tomorrow for an exciting event - The Snow Foundation and Wolfram Syndrome UK are hosting the WS virtual conference starting at 2:00 pm (BST). You don't want to miss out on the latest insights, discoveries, and breakthroughs related to Wolfram Syndrome.
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Don't miss out on the opportunity to hear from Wolfram syndrome experts on April 13th. Sign up today, check the presentation schedule, and get ready for an informative session. ow.ly/855r50R5fno
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