Our team aims to help improve healthcare for people with a learning disability and/or autism. We're from KCL and share work with researchers from UCLan + KU.
IoPPN King's
Joined January 2022
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Learning from Lives and Deaths - LeDeR researchers retweeted
People with severe intellectual disabilities live 24 years less on average - The Guardian apple.news/ARyK7-AxrRze2wRtB…
Learning from Lives and Deaths - LeDeR researchers retweeted
The 2024 LeDeR (@AliveLeder) report is published today. It reviews the deaths of people with a learning disability and autistic people between 2021 and 2024, and sets out the changes needed to reduce preventable deaths and improve care.
Read more: kcl.ac.uk/news/fewer-people-…
Learning from Lives and Deaths - LeDeR researchers retweeted
Percentage of “avoidable deaths” of people with learning disabilities has fallen from 46% in 2021 to 39% in 2023, according to the newly released #LeDeR (@AliveLeder, @drandrestrydom, @dr_rorysheehan) report for 2023. #LearningDisabilities #HealthEquity
kcl.ac.uk/news/2023-leder-re…
Learning from Lives and Deaths - LeDeR researchers retweeted
About #LeDeR report for 2023: NHSE reportedly said “we are committed to publishing this report soon after Parliament returns”. This means September at its earliest @AliveLeder
itv.com/news/2025-07-16/gove…
Learning from Lives and Deaths - LeDeR researchers retweeted
Remember to submit abstracts to Seattle Club conference - deadline this Friday 20th Sept! See link in tweet below. You must be named on an abstract to attend - especially good for PhD students and ECRs!
We’re hosting the 21st Seattle Club Conference for Research in Intellectual & Developmental Disabilities @KingsCollegeLon on 12-13 December. Great opportunity to share your work & meet other researchers - submit abstracts by 20 Sept, bookings open Oct 📝🎟️ estore.kcl.ac.uk/conferences…
Learning from Lives and Deaths - LeDeR researchers retweeted
After 2 year of hard work, we said goodbye and thank you to Leon today. Here are his amazing reflections
youtu.be/8P-6Z6rRlm8?si=9N_8…
Leon, you’ve been wonderful!!!
Learning from Lives and Deaths - LeDeR researchers retweeted
Endings are hard. So pleased Leon will be part of the Advisory Board of our next study. Thank you to a fabulous colleague!
After 2 year of hard work, we said goodbye and thank you to Leon today. Here are his amazing reflections
youtu.be/8P-6Z6rRlm8?si=9N_8…
Leon, you’ve been wonderful!!!
Learning from Lives and Deaths - LeDeR researchers retweeted
Excited to be facilitating this workshop about our toolkit tomorrow!
Look what just came in the post? Our Let's Talk About Funerals @uk_beyondwords resource, beautifully printed by @weareimpress, all ready for a workshop with @MarieCurieEOLC tomorrow. We are excited to share our toolkit with and learn from Marie Curie staff!
Learning from Lives and Deaths - LeDeR researchers retweeted
Fascinating and important paper. How “not doing” more medical interventions is part of “doing” in end of life care - and how palliative care staff intervene for the patient’s benefit, different from conventional medical interventionism @drkathrynmannix
*New article out* Not intervening as a form of care: Negotiating medical practices at the end-of-life. From the @formsofcare with @SimonCohn & @Annelie3ssen in Medical Anthropology Quarterly. Open Access! anthrosource.onlinelibrary.w…
Learning from Lives and Deaths - LeDeR researchers retweeted
Call for proposals for the UK 2024 Seattle Club Conference for intellectual and developmental disability research is now open! Go to tinyurl.com/326wkv6m to submit a proposal. Two themes this year - health inequalities and inclusive research.
Learning from Lives and Deaths - LeDeR researchers retweeted
Keynotes by @drandrestrydom and @WalmsleyJan - not to be missed! Please share details with students and research teams - everyone welcome. Contact us for more details: @deborah_chinn @AndreaBruun @dr_rorysheehan
Learning from Lives and Deaths - LeDeR researchers retweeted
We’re hosting the 21st Seattle Club Conference for Research in Intellectual & Developmental Disabilities @KingsCollegeLon on 12-13 December. Great opportunity to share your work & meet other researchers - submit abstracts by 20 Sept, bookings open Oct 📝🎟️ estore.kcl.ac.uk/conferences…
Learning from Lives and Deaths - LeDeR researchers retweeted
Today’s podcast! @yonalunsky has a Cuppa Tea With Richard @RKeaganBull at @IASSIDD #iassidd2024, after they presented a symposium together about avoidable deaths @AliveLeder. Fascinating Canadian perspective on the Mortality Review Programme in England
soundcloud.com/cuppa-tea-wit…
Learning from Lives and Deaths - LeDeR researchers retweeted
Loved my Cuppa Tea conversation with @RKeaganBull talking about ppl dying too soon and what we can do about it @IASSIDD @AliveLeder @HCARDD
Today’s podcast! @yonalunsky has a Cuppa Tea With Richard @RKeaganBull at @IASSIDD #iassidd2024, after they presented a symposium together about avoidable deaths @AliveLeder. Fascinating Canadian perspective on the Mortality Review Programme in England
soundcloud.com/cuppa-tea-wit…
Learning from Lives and Deaths - LeDeR researchers retweeted
Moved to tears today @IASSIDD #iassidd2024. Leon’s profoundly moving presentation. Richard’s incredible podcasting and presenting. All my hard working colleagues. The sheer delight of being part of this joyful team, doing difficult research on dying, death & learning disability
Learning from Lives and Deaths - LeDeR researchers retweeted
Our latest paper 📑 @BMJ_Open supports the acute hospital learning disability #liaison nurse role in improving care, though they appear to see only a minority of people who are admitted. With: @drandrestrydom @chauhan_nhs @AliveLeder @KMT_RNLD @ding_jonny bmjopen.bmj.com/content/14/8…
Learning from Lives and Deaths - LeDeR researchers retweeted
Out of office ✅ and packing for @IASSIDD Chicago ✈️ Looking forward to the conference and meeting colleagues from across the 🌎 Join our symposia if you can 1) #ADHD in intellectual disability 2) reducing avoidable mortality with the @AliveLeder team (both Monday pm).
Learning from Lives and Deaths - LeDeR researchers retweeted
About to start (Missouri level 2) - talking about premature deaths in people with intellectual disability and how we reduce avoidable deaths with @AliveLeder @TuffreyWijne @ding_jonny @yonalunsky #IASSIDD2024
Learning from Lives and Deaths - LeDeR researchers retweeted
We gave 4 talks, sat on a panel discussion, recorded 2 podcasts (& edited one), made this video… and were thrilled to meet loads of old and new friends from the international intellectual disability research family @IASSIDD #iassidd2024 @yonalunsky @AliveLeder @VictStuProject