Amour means ‘Resilient’ in Armenian and ‘Love’ in French. Our goal is to find a cure for Congenital Disorders of Glycosylation (#PMM2CDG), #CureCDG #RareDisease
USA
Joined March 2016
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Amour Fund retweeted
It is an act of #vandalism to target religious and cultural values. But it is normal for Azerbaijani side. #Azerbaijan deliberately shelled the Holy Savior Cathedral (Ghazanchetsots) in Shoushi.
#StopAzerbaijaniAggression #KarabakhNow
Amour Fund retweeted
#BREAKING!
The #Artsakh/#Karabakh #HumanRights #Ombudsman @Artak_Beglaryan delivered a call upon intl community on #Azerbaijan #WarCrimes with cruel proofs.
Being blind himself as a result of Az landmine explosion, he calls:
Stop Talking! Start Acting! #DontBeBlind!!!
Amour Fund retweeted
My call upon the intl community on the #Azerbaijan war crimes against #Artsakh/#Karabakh civilian population with clear proofs.
#DontBeBlind!!! #HumanRights
#BREAKING!
The #Artsakh/#Karabakh #HumanRights #Ombudsman @Artak_Beglaryan delivered a call upon intl community on #Azerbaijan #WarCrimes with cruel proofs.
Being blind himself as a result of Az landmine explosion, he calls:
Stop Talking! Start Acting! #DontBeBlind!!!
Amour Fund retweeted
Human Rights Defender @Artak_Beglaryan published the first-phase results of the fact-finding mission that includes a thorough research of the assaults of #Azerbaijan\i armed forces towards the peaceful population of #Artsakh on September 27-30, 2020.
Amour Fund retweeted
Artsakh Ombudsman @Artak_Beglaryan calls on the international community to assess the actions of Azerbaijan, especially in the context of the COVID-19 epidemic, to take measures to neutralize threats to the life and safety of thousands of people of the Republic of Artsakh.
Hello, just a friendly reminder to join us for the next PMM2-CDG Collaboration Meeting Tomorrow on August 18, 2020 at 8 AM (PST). Special Topic: COVID19 and CDG by Andrew C. Edmondson, MD, PhD
Event: facebook.com/events/31843230…
AmourFund has started the a campaign to create a CDG Children's Book.
GoFundMe Campaign Link: charity.gofundme.com/o/en/ca…
Amour Fund is raising money for the CDG Children's Book on @GoFundMeCharity: charity.gofundme.com/o/en/ca…
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PMM2 - CDG Collaboration Meeting on 8/15/19 @ 8AM (PST)
Mouse Model for PMM2-CDG by Dr. Andrew Edmondson, MD, PhD
Collaboration with researchers, advocates, and scientists who are advancing progress towards a cure for PMM2-CDG. #CureCDG
Join Online: zoom.us/j/596665813
This #rarediseaseday, help us achieve our dream of Developing a viable vouse model for PMM2-CDG by raising funds & awareness through the 2018 #CureCDG Contribute: ow.ly/B7OH30ipuOz
Amour Fund is now registered with GuideStar with a Gold Seal of Transparency. guidestar.org/profile/36-461…
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Today is Giving Tuesday and for TODAY ONLY if you give to Amour Fund on our Facebook page, Facebook will MATCH your donation. give today and double your gift to #cureCDG. with the Facebook Giving Tuesday Match program.
facebook.com/donate/14842396…
Thank you for your generosity!
Join us on Feb 23-25, 2018, Rare Disease Day Symposium & CDG Family Conference w/ @NGLY1org @SBPdiscovery @CDGCare! eventbrite.com/e/2018-sbp-ra… – at Los Angeles, CA
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PMM2-CDG Collaboration Meetings w/ researchers, patient advocates, & scientists. #CureCDG
Third Thur. of every month at 8AM PST
PUBLISHED: Clinical, laboratory & molecular findings & long-term follow-up data in 96 French patients with PMM2-CDG
ncbi.nlm.nih.gov/pubmed/2895…
2017 NOLA CDG Parent, Patient and Physician Meeting Program. (Updated). Go to AmourFund.org for… instagram.com/p/BS4lOkUB0Vo/