CEO, Health Research Charities Ireland - @HRCIreland (views own). PhD in genetics. Ambitious for a better world through collaboration & inclusion. She/Her
Dublin, Ireland
Joined November 2010
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I'm relocating my social media home. Come find me...
Bluesky: avrilkennan.bsky.social
LinkedIn: linkedin.com/in/avrilkennan/
If you are thinking of making the jump to Bluesky (very like this place but better), here's a link to a starter pack of people with an interest in health & social care research in Ireland to get you going.
go.bsky.app/MdNAY9L
Proud to launch the report from the 10th anniversary event of the Irish Health Research Forum. I will let this consensus statement from the Forum Steering Group speak for itself.
Full report here: hrci.ie/empower-innovate-traโฆ
A fantastic launch event for the #NationalPPIFestival2024 in @UCC this morning. Well done on your great organising skills
@PPI_Ignite_UCC!
Pictured: Niamh from @RCSI_PPI_Ignite & Joanne from @CarersIreland talking about a new PPI module for postgrads.
Avril Kennan ๐ retweeted
What better way to launch the #NationalPPIFestival2024 to 'connect, collaborate, celebrate'?
A huge thanks to @PPI_Ignite_UCC for a warm welcome and great discussion
Looking forward to the events taking place in the month ahead!
Check out our calendar! tinyurl.com/3ktzckpj
Avril Kennan ๐ retweeted
We're excited to share the RIVA project report, which explores decision-making & the patient voice in the HRCI-HRB Joint Funding Scheme. Led by Dr Nicola Mountford & Emily Merrick @MaynoothUni, it highlights the importance of patient involvement. hrci.ie/joint-funding-schemeโฆ
Yes, I know annual reports rarely make it to the top of the list but even a quick glance at this will give you a sense of our work & the many wonderful partners who support it. A great piece from @ResearchSjog & you will see many familiar faces from the health research space.
HRCI is delighted to present our Annual Report 2023. It was a year filled with highlights as we continued our efforts to advance health research in Ireland. ๐
๐ข๐ง๐ ๐ญ๐ก๐ ๐๐ฎ๐ฅ๐ฅ ๐ซ๐๐ฉ๐จ๐ซ๐ญ ๐ก๐๐ซ๐ hrci.ie/annual-report-2023/?โฆ
RT's appreciated!
#HealthResearchMatters
Looking forward to seeing everyone!
#HealthResearchMatters
Weโre looking forward to welcoming a full house to the 10th anniversary of the Irish Health Research Forum tomorrow in the Ashling hotel. If you missed out on a place this time, make sure you sign up to the mailing list to receive future invites & reports bit.ly/HRCIsignUp
Avril Kennan ๐ retweeted
Exciting news! We've just launched the Report & Recommendations from the Nov 2023 Irish Health Research Forum, delving into the future of biobanking in Ireland. Find the report and one page snapshot here hrci.ie/biobanking-in-irelanโฆ #HealthResearchMatters
Avril Kennan ๐ retweeted
Today we acknowledge the incredible women driving impactful change in health, medical, and social care research! From researchers to PPI Representatives and staff in our research-focused member charities, your contributions are invaluable. Thank you! #HealthResearchMatters ๐๐ผ
Delighted to be hosting a @HRCIreland facilitation skills workshop for 20 of our members, in partnership with @TCD_Volunteer. No-one will forget all the wonderful advice from @Michael_TCAID.
At the launch of the new @IrishCancerReg strategy, @DonnellyStephen talks about the value of registry data to improve services and how the cancer registry shines internationally.
#HealthResearchMatters
Avril Kennan ๐ retweeted
SNOW IN DUBLIN IN MARCH! Rare event for a rare trial event #RareTrials24 Day 2. @HRCIreland @UCDMedicine @svuh @RAiNAllIreland @RareDiseasesIE #RareDiseaseDay
Congrats to the @hrbireland for their very significant support of #RareDisease. Many of those supported are gathering today at the @rare_trial, #RareDisease2024 event to discuss how to address the unmet needs of patients & families, through research & collaboration.
@HRCIreland
Itโs International #RareDiseaseDay 2024. The HRB has a comprehensive strategy to support Rare Disease Research in Ireland.
Read about our recent investments and activities aimed to deliver better quality care and treatment for people with rare diseases at: bit.ly/3UWVDZA
Debra Regier, @ChildrensNatl talks about the heart & soul at the centre of rare disease research, as well as the importance of communities of practice. At the @rare_trial conf.
Note the tiny zebra she brought with her. ๐ฆ
#ShowYourStripes
#RareTrial24
#RareDiseaseDay2024
Avril Kennan ๐ retweeted
Today, on the eve of #RareDiseaseDay2024, Debraโs Head of Advocacy, Research and Policy @SSineadHickey along with Deirdre Callis, Head of Family Support Services, and Dr Rosemarie Watson, Debra Board member and former Director of EB Services in Ireland, presented the need for access to health services for people impacted by EB to the Oireachtas Committee on Health. We were also joined by Casey Connors (who lives with EB) and her mum Rachel.
Our thanks to @PaulineTullyTD, @ColmBurkeTD, @conwayforclare, @CathalCroweTD, @SeanCroweTD, @davidcullinane, @BernardDurkanTD, @neasa_neasa, @hoeyannie, @cllr_ginokenny, @JohnLahart and @RoisinShortall for their support up to and during the committee meeting.
Avril Kennan ๐ retweeted
What is #PPI? What does it involve? Learn this and more during a Meet & Greet chat at the Rare Disease Clinical Trials Conference! Join @cassandradinius of @rare_trial Dylan Keegan of @UCDClinRes and Ger Halpin of @PPI_Ignite_Net #RareDiseaseDay
REGISTER: forms.gle/sozhmyvjQowL8Njn9
ALT A light blue image with partner logos and the title of the talk, alongside conference details like the date (29 Feb - 1 Mar) and location (The Grand Hotel, Malahide)
Avril Kennan ๐ retweeted
Thank you @PatientView for highlighting the importance of patient-focused groups like us and our member organisation, @cf_ireland, in health research. There is so much wisdom in our community.
#HealthResearchMatters
Read our latest blog about the growing role of patient groups in healthcare research with a focus on three groups @HRCIreland, @MichaelJFoxOrg and A Twist of Fate-ATS patient-view.com/.../the-groโฆ
Such a stunning video telling the story of @fight_blindness. A story close to my heart as my career started in a Fighting Blindness-supported lab.
Creator: @laurakfinnegan
#HealthResearchMatters
youtube.com/watch?v=f1Emn8nBโฆ
Sad to read about the passing of John Ryan.
"Tributes paid to Irish health official โcentralโ to EU Covid-19 response." irishtimes.com/health/2024/0โฆ