LEMS Aware provides patients and caregivers with the tools, information, and community support needed to navigate Lambert-Eaton myasthenic syndrome (LEMS).

Joined June 2020
Whether you're looking for tips on talking with your doctor or making travel plans with confidence, our Lambert-Eaton myasthenic syndrome (LEMS) ambassadors share real-life insights and experiences in our #LEMSAware blogs. Read more: brnw.ch/21x6xO2 #LEMS #blog
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LEMS and MG may share similar symptoms, but they're caused by different antibodies. A simple blood test can help healthcare providers tell them apart. If you think your symptoms could be related to LEMS, talk with your healthcare provider: brnw.ch/21x6sSG. #LEMS #MG
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When it comes to Lambert-Eaton myasthenic syndrome (LEMS), timely diagnosis matters. If you think your symptoms may point to LEMS, don’t wait to reach out to your healthcare provider: brnw.ch/21x6hYw #LEMS #diagnosis
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Are you experiencing signs of Lambert-Eaton myasthenic syndrome (LEMS)? Learn what to look for and when to reach out to your healthcare provider for any concerns: brnw.ch/21x6cFH #LEMS #LEMSaware
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If you're interested in learning more about LEMS, hear from those who know it best. Our patient stories highlight real experiences from individuals living with the disease, providing a glimpse into their daily lives. Watch their stories: brnw.ch/21x67Ez #LEMS #patient
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His first question after finding out his diagnosis of Lambert-Eaton myasthenic syndrome (LEMS) was "Okay, and that means?" Listen to Patrick's episode on the #LEMSaware podcast as he discusses how he navigated working and living with LEMS: brnw.ch/21x5SKd.
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For people living with Cancer-Associated Lambert-Eaton myasthenic syndrome (#LEMS), care often involves a team approach. Oncologists & neurologists may collaborate to ensure your treatment plan reflects your unique needs and health goals. Learn more: brnw.ch/21x5MYh
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Curious about the differences between Lambert-Eaton myasthenic syndrome (LEMS) & myasthenia gravis (MG)? Learn more about caring for someone with LEMS & discover how it differs from MG, a condition it’s often confused with. Gain insights: brnw.ch/21x5FTq. #LEMS #MG
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For up to 60% of people living with LEMS, there may be an association with an underlying cancer—most commonly small cell lung cancer (SCLC). It’s important to talk with your doctor about how they screen for cancer in people with LEMS: brnw.ch/21x5C5V. #LEMS #sclc #cancer
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Phyllis, a caregiver for her husband who was diagnosed with Lambert-Eaton myasthenic syndrome (LEMS), tells her story. Watch more on her journey: brnw.ch/21x5wZS. #LEMS #caregiver #raredisease
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Life doesn’t pause—so getting the right diagnosis as early as possible matters. Make sure you have the information and support you need, and connect with a healthcare provider who understands what to look for when it comes to #LEMS symptoms: brnw.ch/21x5rIA. #raredisease
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LEMSaware was created to deliver relevant information, resources, and connections to patients and caregivers who may be living with or affected by Lambert-Eaton myasthenic syndrome (LEMS): brnw.ch/21x5k2R. #LEMS #raredisease
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Your activity may have slowed down with Lambert-Eaton myasthenic syndrome (LEMS), but it doesn't have to completely stop. Tescha, a LEMS Patient Ambassador, is not only choosing to keep going but is also getting creative: brnw.ch/21x5hqU. #LEMS #blog
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If you believe you might have Lambert-Eaton myasthenic syndrome (LEMS) and haven’t received a diagnosis yet, it’s important to be aware of the possible risks of waiting. Learn how the condition may change over time: brnw.ch/21x5agb. #LEMS #treatment
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Living with Lambert-Eaton myasthenic syndrome (LEMS) can mean that no two days feel the same. With proper management, your loved one may be able to stay active & maintain independence. Here are ways to help manage symptoms: brnw.ch/21x56LG #LEMS #symptoms
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This episode of our #LEMSaware podcast features Maria, who recounts her months-long search for answers that ultimately led to a diagnosis of Lambert-Eaton myasthenic syndrome (LEMS). Listen now: brnw.ch/21x4Zu2 #LEMS #podcast
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Jamie, who lives with #LEMS, shares how she regained a sense of independence after her diagnosis by learning how to navigate daily life with the condition. Simple activities like writing have become more manageable, highlighting her progress. Learn more: brnw.ch/21x4VDl
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A Cancer-Associated LEMS diagnosis can often mean your care team includes both an oncologist & a neurologist working together. This coordinated approach is designed to support you and your treatment while making sure every part of your care is addressed: brnw.ch/21x4Owt.
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Mark gives tips on how to prioritize your health as well as your patient's to ensure that both of you are properly cared for. Ranging from taking mini-vacations to releasing frustrations, it's solid advice when being a caregiver. Take a look: brnw.ch/21x4L2F
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Are you caring for someone living with Lambert-Eaton myasthenic syndrome (LEMS)? We know it can feel overwhelming at times, and you don’t have to navigate it alone. Learn more: brnw.ch/21x4DFE #LEMS #caregiver
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