As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog

California
Joined February 2020
No one person or organization speaks for the whole #epilepsy community. Your story matters, as it might help others. Thank you for being here, supporting us, and sharing who you are. #EpilepsyAwareness
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Some people with #epilepsy can drive, but doctors describe that those currently experiencing seizures should not. -- What advice would you give to a person who is trying to convince their family/friend to cease driving? #EpilepsyAwareness
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Weathermen might not always get the forecast right, but they can at least spot a storm coming on radar. Seizures don't care about your schedules, plans, or safety. #EpilepsyAwareness
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It's almost go time for #NationalEpilepsyAwarenessMonth (or #NEAM). We have a week to go before we kick our #EpilepsyAwareness advocacy in high gear. -- Are you ready?
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Many people with #epilepsy know the #spoonie metaphor is real: some days you wake up with a full drawer, and other days you're trying to survive on a single plastic spork. -- What would you do if you suddenly found a stash of more spoons? #EpilepsyAwareness
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If you agree that living with #epilepsy often feels like navigating a minefield, you are not alone. -- What mistakes have you made while trying to manage your seizures? #EpilepsyAwareness
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Rather than following the adage "be the bigger person", we suggest finding the smallest person (the one that everyone overlooks) and helping them to be a bigger person. #EpilepsyAwareness
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Brain Ablaze retweeted
USA - UK TALK ABOUT IT! youtu.be/mOmKHkWsd4w
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October is #HealthLiteracyMonth! One of our goals is to provide clear and understandable info about #epilepsy all year long. #EpilepsyAwareness
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A "functional neurologist" might sound credible, but it's a fancy word for a chiropractor who cannot provide medical care for people with #epilepsy. -- Don't be fooled by marketing terms, and always verify your providers' medical credentials! #EpilepsyAwareness
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Pivoting away from a medical treatment that is clearly not managing one's seizures isn't "wasting time". It's advocating for a better quality of life. -- Have you ever had to modify your treatment because it just wasn't working. #EpilepsyAwareness
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When living with #epilepsy, it can sometimes feel like there’s no hope in sight. Sticking with your treatment plan is investing in your future self. #EpilepsyAwareness
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The best #epilepsy advocates are not the critics but the doers. -- Do you find that people are more eager to point out problems, than they are at finding solutions? #EpilepsyAwareness
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Recognizing an aura as a medical event helps us offer better support and immediate safety. Saying that, do you find the experience can be terrifying? #EpilepsyAwareness
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One doesn't need a personal connection to a disabled person to care about #DisabilityRights. Supporting accessibility and accommodations is not an act of charity, but the acknowledgement of the minimum basic civil rights everyone deserves. #EpilepsyAwareness
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Cold/flu season can complicate a life with #epilepsy. Common OTC decongestants like pseudoephedrine or phenylephrine can lower seizure thresholds or interact with anti-seizure medications. -- Do you have more seizures during this season? #EpilepsyAwareness
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Do you try to stay away from alcohol? #BackToTheFutureDay #BTTFDay #BackToTheFuture #EpilepsyAwareness
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