@CENAProject

CENA is a PCORI funded project led by Genetic Alliance working with 10 orgs to expand a health data network. #RareDisease #ChronicIllness #Genetic #Research

facebook.com/CENAProject
Joined March 2014
  • Tweets2.7K
  • Following1.5K
  • Followers1.4K
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CENA Project retweeted
MagTheRag@magtherag17 Aug 2014
Like @NGF_Gaucher on Facebook at facebook.com/pages/National-… for more information about #gaucherdisease. #RareDisease
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#Telomere Length Maintenance, Shortening, Lengthening 2014 Journal of Cellular Physiology Wiley Online Library onlinelibrary.wiley.com/doi/…
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CENA Project retweeted
MLD Foundation@MLDfoundation6 Aug 2014
Just finished great #RareDisease meetings with Senator @RonWyden and @SenJeffMerkley . Thanks @rareadvocates for setting these up. #MLD
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CENA Project retweeted
MagTheRag@magtherag16 Aug 2014
Educate others about #GaucherDisease through video. You could win $500 in @NGF_Gaucher Video contest! Enter today! gaucherdisease.org/ngf-video…
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@HFIConnect HEV found among patients with severe acute liver injury - goo.gl/alerts/VjBm
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Learn more about us! Hashtags associated w/ #DyskeratosisCongenita @DCOutreachInc #GeneticDisorder #RareDisease #Telemore biology disorder
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How To Fight #RareDisease blog.assaydepot.com/2013/03/… via @assaydepot
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Learning about the role Telomeres play in aging from @RachelNanon. #RealScienceWithRachel en.m.wikipedia.org/wiki/Telo… – at Beavercreek, OH
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Barbershop owner helping researcher test an app designed to help patients weigh their treatment options. bit.ly/1h9VGUO #cancer
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CENA Project retweeted
Station X@StationXInc4 Aug 2014
Genotype-Tissue Expression project expands functional studies of #genomic variation ow.ly/3nUMOf #GTEx
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Gene Signature May Predict Response to Tamoxifen #precisionmedicine medscape.com/viewarticle/828…
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CENA Project retweeted
Gholson Lyon@GholsonLyon4 Aug 2014
Phen-Gen: combining phenotype and genotype to analyze rare disorders go.nature.com/BAK7SZ
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CENA Project retweeted
MLD Foundation@MLDfoundation12 Jul 2013
Gene therapy success for #MLD ... "completely prevented the onset or the progression of the disease" #raredisease mldfoundation.org/research-S…
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CENA Project retweeted
keith grimaldi@eurogene4 Aug 2014
Stephen Roth reviews exercise on telomere length: Do telomeres adapt to physiological stress? #OA 1.usa.gov/1o6nKRm
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Genoa #Pharma gets #OrphanDrug Designation for Idiopathic Pulmonary Fibrosis IPF #Treatment #RareDisease ow.ly/zXFwI
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Idiopathic Pulmonary Fibrosis: Evolving Concepts mayoclinicproceedings.org/ar…
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Learn about #BoneMarrow Diseases: MedlinePlus nlm.nih.gov/medlineplus/bone…
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CENA Project retweeted
Ian James@ByIanJames5 Aug 2014
Outpouring of support brings new life for family coping with boy's rare disease desert.sn/1nm6ykF @mydesert @MLDfoundation @fotornelas
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CENA Project retweeted
Julie Gralow@jrgralow5 Aug 2014
Higher Stromal Tumor-Infiltrating Lymphocyte Level Associated With Improved Outcome in Triple-Negative Breast Cancer ascopost.com/viewnews.aspx?n…
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Good 2 Connect w/ @Dr_Lanie @deborahsolo @TheDocCoach @123ddawn @IYFTeenRehab @CENAProject @ShapingYouth - look forward to your tweets!
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