@CFF_Chicago

@CFF_Chicago supports the search for a cure for cystic fibrosis by fundraising, promoting awareness & providing community support.

 Chicago, IL
fightcf.cff.org/chicagoanf
Joined April 2013
  • Tweets4.2K
  • Following799
  • Followers763
1.7KMedia
CFF Chicago retweeted
Megan@breathsofhope30 Jun 2021
Please support the development of new antibiotics by cosponsoring the PASTEUR ACT. Your vote will save the lives of so many, especially people fighting cf. #CFAdvocacy @SenatorDurbin @SenDuckworth @RepMikeQuigley @CFF_Chicago @CF_Foundation #PASTEURAct #cysticfibrosis
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CFF Chicago retweeted
NBC Chicago
@nbcchicago2 Jun 2021
Suburban Boy, 12, Walking 26 Miles to Benefit Cystic Fibrosis Research nbcchi.com/qLKbpo2
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On this #MLKDay of Service, we extend our thanks to every member of the #cysticfibrosis community who continues to go above and beyond to support those living with CF, and helps move us closer to a cure.
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Because of you, we are entering a new era in cystic fibrosis. Because of you, people with CF are living longer than ever before. Because of you, we will not stop until there is a cure. Help us keep the momentum going. Make your gift before midnight: on.cff.org/2020
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Join us in giving a big 👏 for @RamsNFL player @BigCorbs73 for supporting the Foundation with his #MyCauseMyCleats.
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Today, we awarded up to $3.3M to Polyphor to develop an inhaled version of murepavadin, an antibiotic that targets multi-drug resistant Pseudomonas infections in people with #cysticfibrosis. Funding will support a Phase 1b/2a clinical trial in 4Q 2021. on.cff.org/2J4ZxwI
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People with CF and their loved ones are germ smart experts. This flu season, remind others to help #FightFlu by: 🔹 Wash your 👏 with 🧼 and 💧 for at least 20 seconds 🔹 Cover your cough, & use a tissue when you cough or sneeze 🤧 🔹 Keep at least 6 feet from others–even in a 😷
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(2/2) And a HUGE thanks to our three speakers who enlightened everyone on the process of making bourbon and the science & artistry involved; Nick Nagele from @WhiskeyAcres, Greg Buttera from @MakersMark & Freddie Noe from @beamsuntory!! @CFF_Chicago see you @BinnysBev next year!
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(1/2) I cannot truly express my gratitude to everyone who participated in our Bourbon & Bacon virtual event tonight! Thank you for helping us keep the spirit of the event alive during COVID. Thank you for your donations!! Cont.... @CFF_Chicago
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HUGE thanks to all our sponsors this year for Bourbon & Bacon, all proceeds benefit @CFF_Chicago: @DUDEwipes, @AmericanAir, Morgan/Harbour Construction, Stuart Feldman P.C., Jennifer & Rob McClary, @BinnysBev!! Your support is so gratefully appreciated. events.cff.org/bourbonandbac…
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#WhiskeyWednesday, no review but some important updates on the 6th annual Bourbon & Bacon event benefiting @CFF_Chicago! Hope to Zoom w/you next Thursday. And hopefully we’re all back @BinnysBev in Nov ‘21! Thanks for all the support over the years! events.cff.org/bourbonandbac…
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Passing along info for those inquiring about the 6th annual Bourbon & Bacon benefitting @CFF_Chicago. Virtual event this year, free to join, next Thru, Nov 5 from 7-8pm. Spread the word, @TWaddle87 @WaddleandSilvy @Jurko64 @tweetjhood @thekapman afasignup.formstack.com/form…
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Today we celebrate the 1️⃣ year anniversary of the approval of Trikafta, a CFTR modulator for people with cystic fibrosis ages 12 and older with at least one F508del mutation. As we celebrate, let's look back on the reflections of the CF community from the last year. 🧵
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In order to be considered for a lung transplant, you must undergo an extensive evaluation at a transplant center. @ellabalasa1, an adult living with #cysticfibrosis, shares what she wishes she had known about the process. on.cff.org/311LfDP
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The #cysticfibrosis community has sent thousands of messages and shared stories urging Congress to support expanded paid family and medical leave to protect Americans who are most vulnerable to #COVID19. But our work isn’t done yet. act.cff.org/XNV58Lw

Cystic Fibrosis Foundation

Cystic Fibrosis Foundation

act.cff.org
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Today our president & CEO, Dr. Mike Boyle, will join health leaders including @ScottGottliebMD and @pewhealth on a panel to discuss the need for novel antibiotics, as antibiotic resistance remains a global health concern. #StopSuperBugs
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Our president and CEO provides an update on how we're addressing racism and discrimination. on.cff.org/2ClUuV6
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"Growing up, I never met anyone else who had CF. I knew people existed around the world maybe, but no one I was able to start a Skype call with or share stories with over the phone." -Kadeem Morgan, an adult with #cysticfibrosis on.cff.org/3i47FdL
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“There were moments where I was so tired that I didn't think I was going to be able to keep going, but there's so many reasons to keep fighting.” -@travisflores, an adult with #cysticfibrosis who recently received his third double-lung transplant on.cff.org/37VKM7I

Meet Travis Flores, a survivor of a rare third lung transplant

Flores, who has cystic fibrosis, said being able to hold his partner again provided motivation for him to keep fighting.

nbcnews.com
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We have invested up to $14M in 4D Molecular Therapeutics Inc. to develop a vehicle to deliver a healthy CFTR gene into the lung cells of people with #cysticfibrosis. Gene delivery is a key hurdle in developing genetic-based therapies for CF. #CFresearch on.cff.org/2AMCMtJ
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