Care4ASH1L is a community dedicated for advocating ASH1L related disorders. The group has been built to accelerate research on ASH1L gene mutation.
Toronto, Canada
Joined December 2020
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On Rare Disease Day, we honor:
✨ ASH1L Warriors
✨ Parents and caregivers
✨ Adults navigating diagnosis
✨ Researchers committed to discovery
✨ Advocates amplifying rare voices
ASH1L may be ultra-rare.
But together, we are powerful.
Thank you.
We are stronger than rare.
Rare may be isolating.
But community is powerful.
Care4ASH1L was created with one mission:
To bring families together and bridge the gap between lived experience and science.
To the scientists, clinicians, nonprofit leaders, and families walking this path with us — thank you
🌟 Heartfelt Gratitude to Ella Gauthier & Arthur Stevenson School! 🌟
We are beyond grateful to Ella, a loving sibling to an ASH1L Warrior, and her incredible schoolmates from Arthur Stevenson School for their kindness and initiative.
Thank you, Ella, and all the students.
📢 Support Care4ASH1L at MyGivingCircle.org. By voting, you can help them secure vital grants worth $500,000. Let's create a better world together! 🌍 #VoteForACause #MyGivingCircle mygivingcircle.org/care4ash1…
📢 Support Care4ASH1L at MyGivingCircle.org. By voting, you can help them secure vital grants worth $500,000. Let's create a better world together! 🌍 #VoteForACause #MyGivingCircle mygivingcircle.org/care4ash1…
Pleased to announce that Jack, our ASH1L Warrior, along with his family have raised $3100 at the Tumbleweed Toys fundraising event held between 21-23 April 2023.
We would like to extend our special thank you to Tumbleweed Toys for believing and supporting us in our mission! Lastly, a big applause to all the volunteers who have come and dedicated their valuable time in making this event a huge success.
Care4ASH1L is grateful and thankful for the contribution by Kimberly Gauthier in helping us raise awareness on ASH1L related disorders and also raise funds for the ASH1L research.
Care4ASH1L retweeted
Today we celebrate #ASH1LAwarenessDay with our friends at @Care4ASH1L! We currently have over 10 people with #ASH1L enrolled in #SimonsSearchlight. You can find educational resources, gene guides and more on the ASH1L webpage: bit.ly/SimonsSearchlight_ASH…
Join us tomorrow 21 April 2023 at 10:30AM EDT for the 2nd ASH1L Scientific Conference (Virtual) and hear from our leading ASH1L researchers about their ongoing ASH1L research. To register - form.jotform.com/23093489022…
Presentation by Dr. Judy Liu WILL NOT be recorded or shared.
We are very pleased to announce that Care4ASH1L has been registered provincially in Ontario, Canada. Although, Care4ASH1L has been established as a charity federally since December 2021, this provincial registration enables us to host in-person/on-field fundraising events.
ASH1L SCIENTIFIC CONFERENCE (ONLINE WEBINAR) - Register now to attend this conference to learn more about ASH1L and the ongoing research from our expert speakers!
REGISTER NOW - form.jotform.com/23093489022…
Care4ASH1L is hosting it's 2nd Virtual ASH1L Scientific Conference on 21 April 2023.
In order to attend this conference, we request you to please register for the event by scanning the QR code from the flyer or by clicking the link - form.jotform.com/23093489022…
Here is our AGENDA for the ASH1L Scientific Conference on 21 April 2023. The conference will be recorded. However, to respect and ensure the privacy of confidential data, the presentation by Dr. Judy Liu will NOT be recorded or shared.
Introducing our Speakers for the ASH1L Scientific Conference on 21 April 2023 - Dr. Judy Liu (Brown University), Dr. Sofia Lizarraga (Brown University), Dr. Jin He (Michigan State University), Dr. Carin Papendorp (Brown University) and Ashley Liautaud (NIGMS). Stay tuned!
On 21 April 2023, we will be hosting our 2nd ASH1L Scientific Conference (virtual) where renowned ASH1L researchers will be presenting about their ongoing ASH1L research progress. We are working on the agenda and will soon announce the details. Stay tuned for all the updates!
