Fibromyalgia diary (@ChronicallyILLi) profile picture

Chronically ch(ILL) nigerian

Joined January 2024
Fibromyalgia diary retweeted
Oh my, is this a physiotherapy. It worked ๐Ÿฅบ The little boys smiles๐Ÿฅน๐Ÿฅน๐Ÿฅน
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Picking up my treatment that was so rudely interrupted by Timmah the tumor. Felt just like scuba diving clearing your ears, no big deal. This is part of the week-long @CPIStemCells healing protocol. Another therapeutic treatment that can help our veterans and first responders, which is why @MiracleHopeFdn works with CPI.
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Fibromyalgia diary retweeted
Dear Fibromyalgia, Monday is here again, not sure I rested enough at the weekend ready for another week. Here are some more blooms from my garden that I took yesterday as I haven't ventured outside yet today.
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Fibromyalgia diary retweeted
"F" is special for us with Fibromyalgia... Fearing Fibromyalgiaโ€™s Forever pain,๐Ÿ˜” Fiercely Facing it,โœŠ Feeling Fragile.๐Ÿค’ Fighting Fatigue,๐Ÿฅฑ Flourishing in small victories - knowing we are Fortunate!๐Ÿฅ‡๐Ÿ† Fibro may be Forever,๐Ÿฅฒ But FibroFairies are Forever Free in spirit.๐Ÿงšโ€โ™€๏ธ๐Ÿชฝ๐ŸŒŸ ๐Ÿฉต What does "F" mean for you?
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It's nice to see fibromyalgia legitimatized and acknowledged as very painful. Even when my fibro is at its worst it's still not as painful as my chronic pelvic pain. So ya pain sucks.๐Ÿ˜ข
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Fibromyalgia diary retweeted
Dear Fibromyalgia, My tired is tired my fatigue is fatigued, my hurt is hurting and it's Monday, everything I try to do either takes twice as long or I keep dropping things, hope the week improves or it's going to be a looonnnggg week.
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In case yโ€™all didnโ€™t know what I was diagnosed with a couple weeks ago! This is all very new to me now. Please donโ€™t let the stress get to you like it did for me๐Ÿฉท Now I live with this for the rest of my life ;-; #Fibromyalgia
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Why is it when I post about Fibromyalgia people assume I've had it for 5 minutes, know nothing about it and have done nothing to help myself? Some fellow sufferers need to do better. I don't treat people like that.
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Fibromyalgia diary retweeted
Anyone diagnosed with fibromyalgia?? Please dm me
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Fibromyalgia diary retweeted
Have you ever forgotten what you were saying mid-sentence? Or walked into a room and couldnโ€™t remember why you were there? Frustrating? - Thatโ€™s my life every day with fibromyalgiaโ€”it's called fibro fog. It messes with my focus, my speech, and even how I think. Itโ€™s like my brain gets stuck in quicksand, and no matter how hard I try, I just canโ€™t get it to work the way it used to. Over the time iโ€™ve learned to get over the grief, and laugh about it. My stepdad, who fought cancer for over 10 years before he died, taught me that humor is one of the best ways to handle the hardest things in life. He could make a joke about anything, himself, any situation, and even his illness, and it inspired me to stop taking my foggy moments so seriously. Now, when I blank out or forget something, I crack a joke about it. It lightens the mood, and it reminds me not to beat myself up. Living with fibro fog isnโ€™t easy, but finding tools that work and learning to laugh along the way makes a huge difference. If youโ€™re dealing with fibro fog too, how do you manage it? Do you have tips, tricks, or funny stories? Letโ€™s share with each otherโ€”because this fog might be frustrating, but together, we can navigate it.
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Fibromyalgia diary retweeted
Omooo๐Ÿ˜‚๐Ÿ˜‚
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Fibromyalgia diary retweeted
Iโ€™m really struggling with ME/CFS right now. The loneliness, the pain, the feeling like life is passing me by โ€” itโ€™s all so heavy. If you see this, maybe share something thatโ€™s helped you, or an affirmation. I could really use a bit of light today. #MECFS #ChronicIllness #pots
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Fibromyalgia diary retweeted
This is a sea change in my personality and it's not great for me. I preferred being more stoical and taciturn. I did have a temper at times but it was much easier to manage.
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Fibromyalgia diary retweeted
This also effects my mood. I can be irritable or approach full blown rage without sufficient reason (sorry range rover drive who almost hit me turning without looking when I was walking and got screamed at by me). I might also feel very sensitive or upset by minor things.
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Fibromyalgia diary retweeted
Now when I crash and I'm fatigued I'll experience "brain fog" this is caused by neurological damage that showed up on MRI. I won't be able to find words. I'll speak in clipped sentences. I'll struggle to remember places, people and even concepts.
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Despite feeling ill as fuck and with the worst brain fog, I still managed to go into college on two separate days and sit my exams. I've probably failed but at least I turned up and tried my best. Pls say you're proud of me ๐Ÿฅฒ
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Fibromyalgia diary retweeted
I hate the assumption that if youโ€™re chronically ill then youโ€™re not already doing everything you can.
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Fibromyalgia diary retweeted
Chronic illness motto?โ€”โ€œIโ€™m a bit of a mess but Iโ€™m doing my best!โ€
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