@ChronicallyJess

Patient advocate living with #Crohns. Collaboration with patients is the future of medicine. #IBDparenthoodproject @trellushealth @dartmouthMHCDS ‘20

 New Hampshire, USA
chronically-jess.com
Joined September 2016
  • Tweets3.6K
  • Following450
  • Followers1.5K
79Media
#AIBD2023 Pregnancy in #IBD @ChronicallyJess 💎B clear: healthy🤰🏼on Rx = healthy 👶🏻 🤰🏻needs to know she’s doing the right thing for👶🏻 AND fight misinformation & “advice” from “internet & well-meaning in-laws” 💎Enroll🤰in #PIANO: it’s empowering for🤰🏽to be part of ⏩ science
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#IBD patients: hang on to this slide! #EmilyBlock sharing resources for how to get access to medications 💊💉 #AIBD2023 @IBDConference
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One of the most important things I learned @IBDConference was on panel w/@ChronicallyJess “when pt comes in w/certain beliefs/therapies, they’re coming from a place of hope, hope that therapy “x” cures them & they don’t need y&z” . Understanding that changes the whole interaction
ChronicallyJess@ChronicallyJess14 Dec 2023
Replying to @UmaMahadevanIBD @MLongMD
Three AMAZING women right there. The #ibd world is so lucky to have you!!
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📣 The latest #AboutIBDPodcast covers a tool called CDPATH, which is available now for some people w/ #Crohns. It could help in deciding, for instance, about medications. @DrCoreySiegel and @ChronicallyJess give the details on Ep 128! Listen or read here: bit.ly/AIBD128
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Incredible meeting @ChronicallyJess & @UmaMahadevanIBD IRL! And @SCKimCHP @IBD_Afzali seeing you again! The work you all do for women & children w/ #IBD is groundbreaking. I am humbled to know you 💜🙏🏽 #AIBD2022 @MRegueiroMD @IBDConference
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“We getting pulled up tonight” 🎶 When GI docs pull up at #AIBD2022 with patients…@IBDConference @MRegueiroMD @MLongMD @NMH_SHanauerMD @SCKimCHP @JeremyAdlerMD
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Amazing discussion with @UmaMahadevanIBD & patient advocate @ChronicallyJess on #pregnancy & #IBD! 💎 Have conversations early & discuss safety of therapies 💎 Share data with patient & loved ones + discuss openly as the emotional process is enormous #AIBD2022 @IBDConference
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Thank you to @ChronicallyJess and @ownyourcrohns for sharing your courage, candor and wisdom. We are better with you on the podium! #AIBD2022
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ChronicallyJess retweeted
Ahmed Kurdi@Ahmed_Kurdi_886 Dec 2022
IBD Summit:Highly educational meeting for fellows interested in #IBD! Basic &🔥 topics by leaders who revolutionized management & treatment!Thx to @DrCoreySiegel @IBDMD @NMH_SHanauerMD @VindicoMedEd @EdwardLoftus2 @ibddocmaria @MLongMD @ChronicallyJess @MRegueiroMD #MarlaDubinsky
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Diet as therapy for IBD. Patient perspective @ChronicallyJess: Pts can internalize blame related to diet- important to reassure patients IT IS NOT THEIR FAULT. #aibd2022 @IBDConference
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Replying to @oridamas
@oridamas @GIdietitian @ChronicallyJess #JimLewisMD #IkuoHiranoMD. Promising data on Diet as therapy: Low fat diet, SCD. Mediterranean diet - common denominator may be HIGH FIBER. ? Effects on symptoms vs inflammation @IBDConference #aibd2022
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As an #IBD patient, really exciting to see positioning of newer therapies being discussed. Personalization is coming, fellow patient community! 🙌🏽 Thank you to @IBD_Afzali @MLongMD @DrCoreySiegel for explaining strategies to use newer tx VEDO, UST & RISA. #AIBD2022
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.@gilkaplan giving an excellent talk on immunosuppression-related development of extraintestinal #cancer in #IBD. Always screen and monitor while also treating IBD proactively to reduce risk of #CRC. #AIBD22 @IBDConference @MRegueiroMD @MLongMD @NMH_SHanauerMD
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ChronicallyJess retweeted
Trellus Health@TeamTrellus5 Dec 2022
At the Pre-Conference Session at #AIBD2022: Women in IBD Workshop, our CEO and CoFounder, Dr. Marla Dubinsky and the Keynote speaker, Shelley Zalis, CEO of the Female Quotient, led a riveting discussion about navigating the gender gap in #healthcare #inspirational #leadership
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ChronicallyJess retweeted
Katie Dunleavy@dunleavy_katie5 Dec 2022
Incredible weekend at #IBDFellowsSummit learning & connecting with the #IBDglitterati @VindicoMedEd 🌴🎄 Congrats to @DrCoreySiegel & @IBDMD for organizing. Thank you to ⭐️ faculty @EdwardLoftus2 @MLongMD @ibddocmaria #MarlaDubinsky @MRegueiroMD @NMH_SHanauerMD @ChronicallyJess
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ChronicallyJess retweeted
Edward Loftus@EdwardLoftus24 Dec 2022
All star crew @IBDMD @DrCoreySiegel #MarlaDubinsky @ibddocmaria @ChronicallyJess @VindicoMedEd
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I learned so much at the IBD summit for fellows. Thank you to the amazing faculty! @IBDMD @DrCoreySiegel @ibddocmaria @ChronicallyJess @EdwardLoftus2 @MLongMD @MRegueiroMD @VindicoMedEd
Edward Loftus@EdwardLoftus24 Dec 2022
All star crew @IBDMD @DrCoreySiegel #MarlaDubinsky @ibddocmaria @ChronicallyJess @VindicoMedEd
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ChronicallyJess retweeted
Edward Loftus@EdwardLoftus23 Dec 2022
Great suggestions for how to be a great #IBD provider by ⁦@ChronicallyJess⁩ ⁦@VindicoMedEd⁩ ⁦
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ChronicallyJess retweeted
Miguel Regueiro@MRegueiroMD3 Dec 2022
⁦@ChronicallyJess⁩ teaching #IBD fellows at The IBD summit prior to ⁦#AIBD2022. Important messages - listen to your pts, understand personal goals, work together with your pts. Humbling,powerful, and educational. Thanks Jess! ⁦@VindicoMedEd⁩ ⁦@DrCoreySiegel⁩
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ChronicallyJess retweeted
IBDesis@ibdesis6 Nov 2022
In this blog post & in a recent @southasianibd FB LIVE, Tanya shares the need for more patient-centric resources: @pianoibd 🎹 by @umamahadevanibd & @amergastroassn’s IBD Parenthood Project + advocates @nataliesparacio @chronicallyjess in resource-limited settings like India.
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