Cure IBM is dedicated to inclusion body myositis awareness, education, and research.
Joined November 2017
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Abcuro announces clinical trial results for ulviprubart in inclusion body myositis.
cureibm.org/ulviprubart-in-i…
Enrollment for the Abcuro clinical trial of Ulviprubart (ABC008) for inclusion body myositis (IBM) is now complete. Abcuro expects to be able to release initial results of the trial during the first half of 2026.
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Peter Frampton, who will be inducted into the Rock and Roll Hall of Fame in October, provides an update on his life with inclusion body myositis (IBM).
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ALT Peter Frampton playing guitar
The Myositis Association is offering a research grant of up to $80,000 to study inclusion body myositis. Letters of intent are due tomorrow, May 24.
Since 2002, TMA has provided nearly $8 million in competitive research grants for myositis projects around the world. Letters of intent are due May 24 and applications, if invited, will be due July 15.
myositis.org/research/resear…
When you have inclusion body myositis (IBM), you gradually become an expert about the disease and about living with a disability. Sharing your knowledge can be rewarding.
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Rare disease clinical research requires input from patients.
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Apple is planning a software update that will allow people with advanced inclusion body myositis (IBM) to control their iPhone or iPad with their eyes. #ALS
fox29.com/news/apple-ios-eye…
Self-driving wheelchairs? Why not? They can increase safety and mobility for people who use power wheelchairs. The linked article includes an excellent video.
#wheelchair #disability #accessibility #inclusionbodymyositis
fox32chicago.com/news/self-d…
The Connecticut House of Representatives passed a bill to improve the wheelchair repair situation in CT. Bills like this are needed in every state. Talk with your state representative and start the process! #wheelchair #disability #accessibility
ctnewsjunkie.com/2024/05/07/…
The inclusion body myositis community is enthusiastic and hopeful about Abcuro’s current clinical trial of Ulviprubart (ABC008).
We are taking May, #MyositisAwarenessMonth, to recognize the estimated 54,000 people affected by #InclusionBodyMyositis, a chronic, progressive muscle disease with no approved therapies.
#IBM @TheMyositisAssc
When you need a caregiver, what do you do if something happens to your caregiver?
#caregiver #carer #inhomecare #inclusionbodymyositis
aarp.org/caregiving/basics/i…
Many people with inclusion body Myositis eventually need to use wheelchairs. Modern power wheelchairs are amazing technological aids, but, when they break, repairs are difficult.
statnews.com/2024/05/01/whee…
The COVAD studies are large, international studies that have provided valuable information about autoimmune diseases. The COVAD-3 survey is now open and seeking volunteers. If you have inclusion body Myositis, please participate.
cureibm.org/volunteers-neede…
Future help for people with inclusion body myositis? Robots may be able to help provide caregiving for people with IBM and other physically disabling conditions. #als #mnd
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Man with inclusion body Myositis, pushed in a wheelchair, completes London Marathon.
guernseypress.com/news/2024/…
The new ENMC criteria for the diagnosis of inclusion body myositis reflect increasing knowledge, recognize the diversity of the disease in different patients, utilize new and improving technologies, and simplify the diagnosis.
cureibm.org/new-enmc-criteri…
Cure IBM—Inclusion Body Myositis retweeted
1/n) How to search for clinical trials‼️a🧵
Whether you’re a patient or a doctor 🧑⚕️, knowing how to access this information is crucial ⚠️
I demonstrate this to all my patients!
👉Special tip for #medicalstudents at the end 😊
#MedEd #Neurotwitter @MedEdPORTAL #ClinicalTrials
The IndeeLift is a device that helps many people with inclusion body Myositis (IBM). Its primary purpose is to help you get up off of the floor after a fall, but it has many other uses.
sfchronicle.com/bayarea/arti…
For more information about the IndeeLift, see this Cure IBM video:
youtu.be/ceH9eR1KXfU?si=Yyzw…
Cure IBM—Inclusion Body Myositis retweeted
Thank you @TheLancetNeuro for recognising the value of this article! An excellent example of collaboration between industry and academia, and one of the largest IBM trials to date, providing important lessons for IBM research @MikeHanna18 @UCLIoN @UCL_QS_CNMD
In our latest issue: @pedrommcmachado and colleagues report results from a randomised trial of arimoclomol for inclusion body myositis
thelancet.com/journals/laneu…
