Our researchers & lived experience partners work to improve the health care system for children & youth with special health care needs and their families.
United States
Joined February 2021
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Extended-Stay Hotels, a Growing Option for Poor Families, Can Lead to Health Problems for Kids kffhealthnews.org/news/artic…
CYSHCNet - Pediatric Health Systems Researchers retweeted
November is National Family Caregivers Month. Family Voices' vision is focused on making sure all children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.
ALT November is National Family Caregivers Month. Family Voices' vision is focused on making sure all children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.
CYSHCNet - Pediatric Health Systems Researchers retweeted
The number of American children and adults diagnosed with #autism increased 175% in roughly a decade, according to new research that shows an uptick among certain groups appears to be driving the trend. disabilityscoop.com/2024/10/… #disabilities
This Wednesday! Join our researchers and partners for a discussion about Health Equity and Anti-Ableism Through Family Partnership. ⬇️ Please share!
Join us Wednesday, Oct. 30, 4-5 p.m. ET for the fifth of six virtual cafés about Health Equity and Anti-Ableism Through Family Partnership. Register and learn more: bostonu.zoom.us/meeting/regi…
ICYMI: @epmzine explores employment and transition buff.ly/4hvSk4L?
Check out our latest news, featuring the Pediatric Complex Care Lifetime Achievement Awards!
buff.ly/4hg08Hy
Parent-led academic rounds tackle ableism in pediatric care buff.ly/3YzYVUd
Join us Wednesday, Oct. 30, 4-5 p.m. ET for the fifth of six virtual cafés about Health Equity and Anti-Ableism Through Family Partnership. Register and learn more: bostonu.zoom.us/meeting/regi…
Family-Led Academic Grand "FLAG" Rounds start Jan. 16, 2025!
Join this 5-session virtual series, funded by @LPFCH, to explore ableism in healthcare & learn how to better care for children with disabilities & medical complexity.
thebluebirdway.org/flag-fami…
A new episode of the Complex Care Journal Club podcast just dropped! In this episode, Dr. Renee Turchi discusses improving emergency preparedness for families with children and youth with special healthcare needs.
youtube.com/watch?v=ZLBm0H_P…
CYSHCNet - Pediatric Health Systems Researchers retweeted
Alice Wong, a writer, editor and activist was recognized by the MacArthur Foundation with one of its prestigious fellowships for her work on increasing representation of people with #disabilities. disabilityscoop.com/2024/10/…
CYSHCNet - Pediatric Health Systems Researchers retweeted
If you care about health literacy and health equity, plain language should be a part of your approach to communicating with families. Learn more by downloading our resources on Health Literacy. For more resources, visit familyvoices.org/languageacc…. #HealthLiteracyMonth
ALT If you care about health literacy and health equity, plain language should be a part of your approach to communicating with families. Learn more by downloading our resources on Health Literacy. #HealthLiteracyMonth
The Pediatric Complex Care Lifetime Achievement Award presentation starts in ONE HOUR! Please join us! Links below.
Join us in celebrating two pioneers who changed how we care for children with medical complexity!
We are pleased to present Nora Wells and John Gordon with the Pediatric Complex Care Lifetime Achievement Award. Join us on Sept. 26 from 2:30-3:30 p.m. ET. cyshcnet.org/award/
CYSHCNet - Pediatric Health Systems Researchers retweeted
Hundreds of people with developmental #disabilities mistakenly received letters saying they would be booted from their health insurance and community-based services. disabilityscoop.com/2024/09/… #Medicaid
CYSHCNet - Pediatric Health Systems Researchers retweeted
🗣️Today is the LAST DAY to submit your Scholarly Sessions, SIGs, workshops, and volunteer applications! Don’t miss this final opportunity to be part of #PAS2025. Submit now! ⏰
🔗pas-meeting.org/2025-program…
CYSHCNet - Pediatric Health Systems Researchers retweeted
🚨 Only one week left to submit your Scholarly Sessions, Workshops, SIGs, and Volunteers applications! Don’t miss out—submissions close on September 18. Get involved and make an impact at #PAS2025!
➡️pas-meeting.org/2025-program…
Join us in celebrating two pioneers who changed how we care for children with medical complexity!
We are pleased to present Nora Wells and John Gordon with the Pediatric Complex Care Lifetime Achievement Award. Join us on Sept. 26 from 2:30-3:30 p.m. ET. cyshcnet.org/award/
We are proud partners of the SafeCare@Home4Kids Learning Lab! We're dedicated to understanding how family caregivers and home nurses currently identify, communicate, and prevent healthcare safety errors and adverse events at home.
Learn more: sites.northwestern.edu/safec…
Researchers, we've added to our Primary Data Center an example of a research project's short description of working with a Lived Experience Partner.
cyshcnet.org/tools-templates…
#cyshcn #research #primarydata
