Mum, Haemoglobinopathy Community Matron | Clinical lead for #NEL Peer mentoring | Patient Advocate All views are my own.
London, England
Joined January 2017
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Thrilled to have contributed to the 2nd Edition of this vital care planning book for healthcare professionals! This chapter on Sickle Cell management highlights why education is key to optimal care. Let's raise awareness! #SickleCell #ACTNOW #EducationMatters #closethegap
Debz O'Dele RNC,MSc DipHE retweeted
✨ Meet Your Mentors ✨
First up, meet two of our London team!
This Black History Month, we’re celebrating community — reminding each other that we’re stronger together and never alone.
Find out more by scanning the QR code.
#SickleCellSociety #BlackHistoryMonth #Mentoring
Debz O'Dele RNC,MSc DipHE retweeted
Today, we launch a co-produced resource to help parents spot signs of jaundice in babies with dark skin tones. It will be shared with every maternity & neonatal service across the country and across primary care.
You can download it here: nhsrho.org/resources/a-paren…
ALT Image of the coproduced parents’ guide to recognising jaundice in Black and Brown babies. Includes photographs to support and information on where and how to seek help.
Debz O'Dele RNC,MSc DipHE retweeted
One of the most important interviews I’ve done …
My message to the Government 👇🏽
Debz O'Dele RNC,MSc DipHE retweeted
Are you a parent in North-East London with a child (12–16) living with Sickle Cell? Join our RHO Transition Project Working Group to help improve the move from child to adult care.
Sign up by Fri 23 May 2025: bit.ly/RHOparent-rep
It was a pleasure to lecture NTPN on Sickle Cell management & emergencies, & LSBU CPPD students on pain management in #SickleCell. Essential learning for all healthcare professionals & this should be standard across all higher education institutions! #closethegap #raiseawareness
Debz O'Dele RNC,MSc DipHE retweeted
Join Dr Claudine Matthews on her online course about Managing Nutrition in Sickle Cell Disorder! You can join every Wednesday starting from 12th March, for more information please click below
tickettailor.com/events/ther…
Debz O'Dele RNC,MSc DipHE retweeted
✨ Reflecting on an incredible year for our mentoring program across London! We've seen amazing moments—smiles, growth, and real impact for kids with sickle cell. Watch our first video featuring mentees, mentors & clinical leads! 📢 Share & help us reach more! #SickleCell
Debz O'Dele RNC,MSc DipHE retweeted
excellent news for sickle cell patients today, now need to make more accessible at scale theguardian.com/society/2025…
Debz O'Dele RNC,MSc DipHE retweeted
NEW TREATMENT APPROVED FOR SICKLE CELL! We are delighted that NICE has today approved the groundbreaking gene therapy, Exa-cel, or Casgevy, for use through the NHS in people living with sickle cell disorder. Our CEO John James OBE comments here.
Debz O'Dele RNC,MSc DipHE retweeted
Are you finding it hard to get the right support for your child in school?
We help you organise, communicate, and advocate effectively.
Session: SEND Support & Advocacy for Black Children in Schools
🗓️️ 5th Feb | 6:30 PM | Online | Free
Register: portal.cahn.org.uk/familyand…
Debz O'Dele RNC,MSc DipHE retweeted
🎙️ Throwback to our first Sickle Cell podcast episode! Bolaji shared with host Kesewaa how daunting it felt to transition from children’s to adult services. Do you remember your experience? How can doctors make it easier?🎧 Listen now on all platforms. #SickleCellAwareness
Debz O'Dele RNC,MSc DipHE retweeted
Today, a plaque honouring the lifesaving work of the UK’s first sickle cell nurse specialist, Professor Dame Elizabeth Anionwu, was unveiled at London’s newest blood donor centre in the heart of Brixton.
Book your appointment to donate blood today: buff.ly/4jsiAh9
Debz O'Dele RNC,MSc DipHE retweeted
Open to all NHS staff who support people during a sickle cell crisis, book your webinar place to learn more about the ACT NOW approach and how it supports rapid help for patients. Book now via this link:
events.england.nhs.uk/events…
Debz O'Dele RNC,MSc DipHE retweeted
We are looking for the next Chair for our Board of Trustees. Could it be you?
Further information via the dedicated microsite: prospect-us-site.co.uk/scs
#Boardchair #sicklecellawareness
Debz O'Dele RNC,MSc DipHE retweeted
🌟 Join us as a Lead Mentor in North East London! Support young people (10-24) with Sickle Cell Disorder through mentoring, leading a team, and organizing activities.
📝 Apply by 29th Jan 2024! 📧 Email: [email protected] #SickleCellAwareness #MentorsNeeded
🌟 Want to make a difference in 2025? Here’s how!
1️⃣ Donate blood➡️Regular transfusions save lives! blood.co.uk
2️⃣ Advocate➡️Call for better healthcare policies for people with #SickleCell
3️⃣ Learn & Share➡️Spread awareness by sharing this post.
#TakeAction
Debz O'Dele RNC,MSc DipHE retweeted
Every pint of blood counts, and for someone with #SickleCell, it could mean fewer hospital visits and more time with loved ones. Give a gift of life this Christmas 🎄
Sign up here>>>>blood.co.uk
#DonateBloodSaveLives #Givebloodspreadlove #welistenwedontjudge
Debz O'Dele RNC,MSc DipHE retweeted
The festive season can be joyful yet challenging for mental health. This Christmas, we’re highlighting organizations supporting the Black community to foster unity and well-being. Let’s uplift mental health together! 🎄 #BlackMentalHealth #SupportThisChristmas #CommunityCare
Every pint of blood counts, and for someone with #SickleCell, it could mean fewer hospital visits and more time with loved ones. Give a gift of life this Christmas 🎄
Sign up here>>>>blood.co.uk
#DonateBloodSaveLives #Givebloodspreadlove #welistenwedontjudge
Debz O'Dele RNC,MSc DipHE retweeted
📺 Catch Casualty's Christmas Special on BBC One, December 21st at 21:40! 🎄 The episode emphasizes blood donation's importance. Watch for a familiar face and be inspired to donate! More info at @givebloodspreadlove. Let's make a difference together. 🩸 #GiveBloodSpreadLove
