📢 The ECLLA October Newsletter is here!
It's been an exciting & productive few months for #ECLLA as we continue turning collaboration into meaningful action for people affected by chronic lymphocytic leukaemia (#CLL) across Europe.
Read our Newsletter:
mailchi.mp/3ff8fbbdbc7b/euro…
The ECLLA European Holistic Framework brings together six interconnected pillars.
🔎 Discover the framework: eclla.org/wp-content/uploads…
#BloodCancerAwarenessMonth #CLL #ECLLA #OneEuropeEqualCare
📣 REGISTER NOW - Join us in Brussels or online on 30 September for Blood Cancers and CLL on the European Agenda: From Recognition to Action, hosted by Regina Doherty MEP at the European Parliament.
🔗 Register: info-hub.booking.europarl.eu…
#CLL #ECLLA #BloodCancerAwarenessMonth
📢 Blood Cancers & #CLL on the European Agenda-Join us for policy dialogue hosted by Regina Doherty MEP and the launch of #ECLLA’s European Policy Brief.
🗓 Wed, 30 Sep l🕙 10–12 CET l📍 Hub Space, European Parliament, Brussels l 💻 In-person & online
🔗 eclla.org/european-policy-br…
Monica Racovita explores inequalities across countries, gaps in psychosocial & wider support, and why health systems need to become better prepared to support patients comprehensively and holistically during periods away from treatment.
🎥 vimeo.com/1222019335?fl=ml&f…
#VoicesOnCLLCare
Voices on #CLL Care: Prof Kostas Stamatopoulos discusses progress with targeted combinations, the potential for deep responses and long-term disease control, and why longer follow-up and accurate monitoring remain essential.
🎥 Watch the full video: vimeo.com/1222019962?fl=ml&f…
Treatment-free periods can bring hope, relief and renewed confidence — while uncertainty and fear of progression may remain.
📖 Read the Insight Paper: eclla.org/time-off-treatment…
#BloodCancerAwarenessMonth #CLL #ECLLA #OneEuropeEqualCare
Voices on #CLL Care: Eugene Beirne, Clinical Nurse Specialist in Psychological Medicine discusses shared care, the role of nurses & multidisciplinary teams in education, infection awareness and psychological support. 🎥 Watch the full video here: vimeo.com/1222013519?fl=ml&f…
#ECLLA
New chronic lymphocytic leukemia (#CLL) advancements may help patients spend less time in care settings and get back to work. Felice Bombaci shares the broader societal impact of new medical innovations.
In partnership with @ECLLAorg, we’re sharing a new European Insight Paper on treatment-free care in #CLL, addressing critical gaps in patient support.
Full paper: rebrand.ly/3449b2
Voices on #CLL Care Prof Amanda Kracen: Successful treatment does not always mean anxiety immediately disappears. 🎥 Watch the full video: vimeo.com/1222019810?fl=ml&f…
The ECLLA Insight Paper places psychological wellbeing at the heart of treatment-free care: eclla.org/time-off-treatment…
What does ‘success’ in '#CLL care mean? The #ECLLA Insight Paper highlights the importance of a broader, person-centred view of success, alongside stronger shared decision-making throughout the CLL pathway.
🔎 Explore the Insight Paper: eclla.org/wp-content/uploads…
#OneEuropeEqualCare
📢 We are delighted to invite #ECLLA members to register for the ECLLA Club Session 2: Immune Health in CLL. 🗓 29 September,🕒 3:00–4:30 PM CEST,💻 Zoom - Featuring Dr Lydia Scarfò, moderated by Jan Rynne. Learn more: eclla.org/eclla-club/
#ECLLAClub #CLL #OneEuropeEqualCare
Voices on #CLL Care: What can a treatment-free period mean for people living with CLL & their care partners in everyday life? Patient advocate & care partner perspective by Felice Bombaci.
🎥 Full video: vimeo.com/1222013521?fl=ml&f…
📖 Read the Insight Paper: eclla.org/time-off-treatment…
Voices on #CLL Care: Dr Talha Munir explores the clinical evidence behind fixed-duration treatment.
🎥 Watch the full video: vimeo.com/1222013517?fl=ml&f…
📖 Read the Insight Paper: eclla.org/time-off-treatment…
#VoicesOnCLLCare #BloodCancerAwarenessMonth #ECLLA #OneEuropeEqualCare
See less
Treatment-free care is not the absence of care. For many people with CLL, time off treatment can mean greater independence & less treatment burden — but it can also bring uncertainty about monitoring, relapse & what comes next. 📖 Read the Insight Paper: eclla.org/time-off-treatment…
Today, we join the global community in marking 🌍 World Leukemia Day and raising awareness of leukemia, its impact, and the experiences of people and families living with blood cancer.🩸
#WorldLeukemiaDay #BloodCancerAwarenessMonth #CLL #ECLLA
Voices on CLL Care: Jan Rynne explores why treatment-free care must be individualised & supported by clear conversations with the healthcare team.
🎥 Watch the full video: vimeo.com/1222013520?fl=ml&f…
📖 Read the Insight Paper: eclla.org/time-off-treatment…
#CLL #ECLLA #OneEuropeEqualCare








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