👩🏻🦰 Patient Adviser @uoftfamilymed & @camhnews & @CIHI_ICIS & @immunocompCA 🦓 MCAS | GGM | Adenomyosis 🌿 Slow living, Toronto ME/CFS 📚 Book in progress
Toronto, Ontario
Joined March 2011
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Access to our health records shouldn’t be controversial.
“Transparency and dignity are not competing goals. They are mutually reinforcing.”
👉 My latest piece in @HealthyDebate on @myopennotes and mental health care:
🔗healthydebate.ca/2026/03/top… @CAMHnews
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💡Emily Foucault retweeted
Tonight the #CNTower will be lit purple for Mast Cell Activation Syndrome Awareness Day
Ce soir, la #TourCN sera illuminée en violet pour la Journée internationale de sensibilisation à la mastocytose et au syndrome d'activation mastocytaire
ALT Closeup of the CN Tower at night lit purple/ Gros plan de la Tour CN illuminée en violet la nuit.
🐺A little different from my usual posts, but one that’s deeply personal.
Today, a paper I co-authored was published in @FrontiersIn.
From Liberty Village to peer-reviewed research on evidence-based wildlife management.
🔗frontiersin.org/journals/eco…
#coyotes @ausmalik
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💡Emily Foucault retweeted
"I enjoyed my time in the U.S. but it definitely feels like a moment for Canada right now."
Dr. Chris Noel, Head & Neck Surgical Oncologist and Microvascular Surgeon at UHN, was recruited from Ohio through the Canada Leads program.
Read more @UPI:
upi.com/Top_News/US/2026/03/…
Access to our health records shouldn’t be controversial.
“Transparency and dignity are not competing goals. They are mutually reinforcing.”
My latest in @HealthyDebate on @myopennotes and mental health care
healthydebate.ca/2026/03/top…
Have you ever had trouble accessing your records?
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💡Emily Foucault retweeted
Wow, this is amazing progress that "we" collectively worked hard to achieve! Neurologic and psychiatric manifestations of MCAS are numerous, but are very rarely talked about in psychiatry or neurology.
Our 2 recent papers on the topic are below:
sciencedirect.com/science/ar…
mdpi.com/2075-4426/13/11/156…
#BrainHealth @AANmember #MedTwitter #Neurology #Psychiatry
🥳Proud to share our poster “Developing the CAMH Clear & Inclusive Writing Guidelines: An example of co-creation & meaningful engagement” WON the Best Status Only Faculty Poster Award at #DWED2026
Grateful to the collaborative team. @CAMHnews @UofTPsych
psychiatry.utoronto.ca/event…
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Co-writing @CAMHnews Clear and Inclusive Writing Guide has been a profoundly meaningful project. Grateful to @HealthyDebate for publishing our co-produced article.Words have power & this piece shares how we’re working to shift culture through inclusive, patient-informed language.
The words we use: Why inclusive language in health care is about safety
healthydebate.ca/2025/11/top…
💡Emily Foucault retweeted
The MCAS care crisis: Canada can’t afford to look away
healthydebate.ca/2025/10/top…
🗣️ My latest piece in @HealthyDebate is out: “The MCAS care crisis: Canada can’t afford to look away.”
🚨 Thousands of Canadians with Mast Cell Activation Syndrome are being left without care. It’s time for urgent action.
🔗 healthydebate.ca/2025/10/top…
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Grateful to share my story with @yahoolife about my journey through decades of pain, being dismissed and finally getting a hysterectomy.
🔗 Read the full interview here ➡ tinyurl.com/2hx3d26u
@SinaiHealth #menopause #womenshealth #adenomyosis
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💡Emily Foucault retweeted
We recently interviewed Dr. Larry Afrin, a prominent physician-scientist and one of the world's authorities on mast cell disorders.
Here are 4 surprising things we learned about MCAS...🧵
ALT ID: Decorative image of a brain.
Millions are suffering in silence. It’s time to change that.
🔗 emilyfoucault.com/post/mcas2…
#MCASAwareness #InvisibleIllness #mcas #mastcell
Tonight the #CNTower will be lit purple for Mast Cell Activation Syndrome Awareness Day / Ce soir, la #TourCN sera illuminée en violet pour la Journée de sensibilisation au syndrome d'activation mastocytaire
ALT Closeup of the CN Tower at night lit purple/ Gros plan de la Tour CN illuminée en violet la nuit.
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🟣 Today is International Mastocytosis & MCAS Awareness Day.
💜 Tonight, the @TourCNTower, @NiagaraFalls, @TheCalgaryTower, @TELUS_Spark will shine purple for a condition that remains vastly under-recognized — Mast Cell Activation Syndrome (MCAS).
Millions are suffering in silence. It’s time to change that.
🔗 emilyfoucault.com/post/mcas2…
#MCASAwareness #InvisibleIllness #mcas
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💡Emily Foucault retweeted
🔬Most people think mast cells are only involved in allergies or rare conditions like MCAS or mastocytosis. That’s incorrect.
Research shows mast cells are active in many diseases, including neurodegenerative, autoimmune, infectious, heart, gut, and mental health conditions🧵
🚨 Groundbreaking: @DecodeMEstudy has identified key genetic differences in people with ME/CFS. Read more here theguardian.com/society/2025… @theguardianfeed #MECFS #DecodeME @iansample
Our initial DNA results! DecodeME have discovered that people with an ME/CFS diagnosis have significant genetic differences compared to the general population. Summary of our results: shorturl.at/pgsjk Check out our full preprint paper: shorturl.at/VwN3s
ALT DecodeME: The Results announcement post. The graphic has a blue background with a DNA helix. In the centre of the graphic it says ‘We have released our initial DNA results! We have discovered that your genes contribute to your chances of developing ME/CFS.’ At the bottom left of the graphic is an image of a research paper.
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💬 On Monday, I was honoured to speak on a @CAMHnews panel about what empowerment means in recovery. I’ve written a blog reflecting on the experience & why patient voices matter.
🔗 Read it here: emilyfoucault.com/post/recla…
#CAMH #LivedExperience #Empowerment @SarahEDowney1
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I’m looking forward to a rich conversation today about empowerment @CAMHnews
💜 I’m honoured to speak on a @CAMHnews panel for Patient & Family Experience Week about what empowerment means in recovery.
✨It took years of being dismissed before I found my voice.
🔗Join us virtually April 28, 12–1PM EST. Link in bio.
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