🇨🇦MEDICAL MAMA🤞🏽IMPROVING SDM & PATIENT ENGAGEMENT🤞🏽STORYTELLER & LISTENER

Ontario
Joined September 2017
I have not read something more relatable than this in a while.
You know when you’re cutting a new bag of milk but the scissors don’t make a clean cut so every time you pour it there’s some milk that dribbles down and ok so now that the Americans have stopped reading this HAPPY THANKSGIVING, MY FELLOW HOSERS! 🇨🇦🍁
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“Embrace the chaos the same way you embrace the calm.” A great way to look at life.
I first saw Simple Minds in 1991, at Massey Hall. I’m only 18, a warm summer June night w/ a girlfriend & we shopped at Sam The Record Man & HMV, & ate before the show at Mr. Greenjeans at the Eaton Centre. Tonight I saw them for the 8th time, brought my 19 year-old son, & he bought me a beer, & the show 34 years later was probably the best I’ve seen them play - certainly the most euphoric the crowd has been. Go to shows. Drive places. Travel your ass off while you can, if you can. Embrace the chaos the same way you embrace the calm. Commit to someone. Have kids. Realize it never was about you as much as you thought it was…..& the payoff is your son buying you a beer at Simple Minds 34 summers after you first saw them. Fuck yeah.
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The @LindAlliance Critical Care Medicine Priority Setting Partnership is inviting participants to select the top 10 most important questions in critical care medicine from the perspectives of patients/families (caregivers, relatives, friends). @srinmurthy99 #ICU #PICU
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'Parent caregivers of adult children must be allocated the same support as parents w younger children because many adults w #disabilities continue relying on their parents.' policyoptions.irpp.org/magaz…
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If you've spent time at SickKids as a patient, family or caregiver, we want to hear from you! Help inform SickKids' priorities and areas of focus in this 10-min survey👉 bit.ly/3WJ8BuE Thanks for your help in shaping the future of child and youth health!
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Come work with us in @CanadaPirn! We are hiring a Research Coordinator to oversee several multi-centre prospective studies in hospitalized children. Rewarding project, great team, impactful work! See link for details: career.sickkids.ca:8001/psc/… @Sanj_Mahant @SickKidsNews @ihpmeuoft
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From referrals, to registration, to follow-ups, coordinating clinic visits can be complicated. That's why SickKids staff have been listening to experiences of patients & caregivers. With your help, we’re working on ways to improve & make the process more efficient for everyone.
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Come work with us in @CanadaPirn! We are hiring a Research Coordinator to oversee several multi-centre prospective studies in hospitalized children. Rewarding project, great team, impactful work! See link for details: career.sickkids.ca:8001/psc/… @Sanj_Mahant @SickKidsNews @ihpmeuoft
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In 2022, 4-year-old Michael received an individual gene therapy at SickKids for #SPG50, an ultra-rare neurodegenerative condition. Today, #SKResearch shows Michael’s progress & the potential impact his clinical trial holds for genetic medicine.🧬 Read ➡️ bit.ly/3La4mBv
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For my followers who don’t know why I do the work I do - read on.
It's #ChildAndFamilyCentredCareWeek at SickKids! Hear from Francine Buchanan, a "medical mom" turned engagement leader, about what it means to truly value the knowledge & continuity that comes from those closest to patients. Read her #SKPerspective ➡️ bit.ly/3XoUP0Y
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Parents, youth, families - Help us to improve inpatient care for children with medical complexity! We have just launched a survey (only 3 questions, < 15minutes) - let us know your priorities and recommendations that we can guide our work moving forward! Adult/parent version 1st
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Important research for my children with medical complexity peeps. Consider completing this short survey.
Parents, youth, families - Help us to improve inpatient care for children with medical complexity! We have just launched a survey (only 3 questions, < 15minutes) - let us know your priorities and recommendations that we can guide our work moving forward! Adult/parent version 1st
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Please have a read of the new editorial I have written in @JournalofCHC. It is about public and community involvement in childhood disability research. doi.org/10.1177/136749352412… A huge thank you to @Stephen8McK for your encouragement. I hope you find it interesting.
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I'm going to use this in my doctoral class on public health communication. The old model of communication was all about preventing panic. But the cost of that is increased distrust. The only way out of the much of distrust is with overwhelming transparency... and that means DATA.
We developed an assay for testing for H5N1 from wastewater over a year ago. (I wasn't expecting it in milk, but I figured it was going to poke up somewhere.) However, I was just on a call with the CDC and they are advising us NOT to use it. I need a drink.
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A great opportunity for those interested in in clinical trials.
Come work with us in @CanadaPirn! We are hiring a Research Coordinator to develop, and plan clinical trials focused on hospitalized children. Rewarding project, great team, impactful work! See below for details: career.sickkids.ca:8001/psc/… @Sanj_Mahant @SickKidsNews @ihpmeuoft
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“Patient partners are at the centre of what we do everyday” Thank you @peterjgill for sharing PIRN’s approach to research with an international audience dedicated to #PHM @PASMeeting #PAS2024
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We are hiring at The Hospital for Sick Children: Program Manager, Knowledge Mobilization and Patient Engagement, CHILD Study. linkedin.com/jobs/view/38652…
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Important research into #PatientEngagement #PPI #PatientPartners
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The movie is finished! It is gloriously done. I cried at the end. Thank you Dan, Big Beach, creative team, crew, and incredible actors! Thank you, Wendy. And Larry, Crystal, Cory, and Damon. And thank you, Lord, for allowing this masterpiece to be shared with the world. 🙏🏾💕🦋
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Excited that our family could be part of this exciting project. I hope this picture can do a little to change some perspectives.
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