I go on adventures BECAUSE I have Crohn's Disease. | Blogger | Adventurer | Patient Advocate | #SayYesMore Ambassador @yestribe
London
Joined September 2013
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TheChronicAdventurer retweeted
Crohn’s & Colitis Awareness Week is nearly here
This year we’re highlighting what it feels like to live with these conditions the symptoms, the invisible struggles and the unseen strength. Join the conversation 1–7 December crohnsandcolitis.org.uk/awar…
#HowCrohnsFeels #HowColitisFeels
TheChronicAdventurer retweeted
Our new strategic ambition and new look were shaped by our community. Together we’ve created a bold, united vision for faster diagnosis, better care and a future free from Crohn’s and Colitis. This is change driven by you, for you.
crohnsandcolitis.org.uk/our-…
#Crohns #Colitis
TheChronicAdventurer retweeted
1 in 120 people in the UK live with Crohn’s or Colitis - lifelong, unpredictable and often misunderstood.
We’re here to change that through research, support and bold campaigns. Crohn’s? Colitis? We’ll face it together.
crohnsandcolitis.org.uk/our-…
#Crohns #Colitis
TheChronicAdventurer retweeted
Do you have #Crohns or #Colitis? Are you living with a #stoma or might be getting one? Do you wish to chat to others who may be going through similar experiences? You're not alone. Join us on 13th October at 6.30pm.
Register Today: ow.ly/Z7gZ50X8yUb
#IBD
ALT Image description: A cartoon style computer screen is displayed showing a virtual teams event. Speech bubbles read: "I want to share my stoma experience with others" "I wish to meet others who have a stoma" "I wish to hear tips for living with a stoma" The text below reads: "Sound familiar? Register today for our Living with a Stoma - Virtual Social Event 13 October 6:30pm - 8pm"
TheChronicAdventurer retweeted
I’d like to announce I’m back on this app but since I don’t pay for premium, it will be seen by 4 people. Anyway to those 4 people, I captured something amazing this month 🐻
TheChronicAdventurer retweeted
Places are available at our upcoming ‘Living with a Stoma’ virtual social event on Monday 2nd June at 6.30pm.
crohnsandcolitis.org.uk/virt…
TheChronicAdventurer retweeted
World IBD Day is one week away! 💜🌍
On 19th May, we stand together for the 500,000 people in the UK living with Crohn’s or Colitis.
This year, we’re talking about courage. Share what courage means to you!
For resources and ideas visit: crohnsandcolitis.org.uk/get-…
#WorldIBDDay
TheChronicAdventurer retweeted
Still time to have your say. Please take some time this weekend to complete this survey and help decide on the priorities for research in perianal disease management and support
@StMarksHospital
@LindAlliance
@CrohnsColitisUK
@saia_ibd
TheChronicAdventurer retweeted
Eating disorders can affect anyone at any time - and it might not be who you expect.
This Eating Disorders Awareness Week, we want you to know you are not alone. Greater public awareness is needed. #EatingDisordersAwarenessWeek #EDAW2025 #AnyoneAnytime
TheChronicAdventurer retweeted
Excited to announce results of our #ADDapt trial
After 6 years and the help of 154 people with #CrohnsDisease we prove that restricting #emulsifiers improves disease
Award winning presentation from @AaronBancil at #ECCO25
Excited for next steps to help people with Crohns
TheChronicAdventurer retweeted
Amy Dowden has been honoured with an MBE for her work as an advocate and ambassador for Crohn’s & Colitis UK.
Read more:
dailymail.co.uk/tvshowbiz/ar…
#Crohns #Colitis #CrohnsAndColitisuUk #InflammatoryBowelDisease #ibd #MBE
TheChronicAdventurer retweeted
If any politicians care to read this then, please listen, I am a former Man Utd player and have a teammate Lou Macari, doing great work with the homeless, He will not ask but I am, give him something for his services, He is a top man who cares.
TheChronicAdventurer retweeted
It’s Crohn’s & Colitis Awareness Week.
It takes guts to talk about Crohn’s and Colitis, but we can do it and break the stigma. Sending love to everybody affected by these conditions.
#CrohnsAndColitisAwarenessWeek
TheChronicAdventurer retweeted
People are struggling without support for far too long.
Will you join Femi in being one of the faces behind the facts? Help us highlight where improvement is needed by sharing your experiences.
Visit: crohnsandcolitis.org.uk/our-…
#crohnsandcolitisawarenessweek #FaceTheFacts
TheChronicAdventurer retweeted
It’s time to #FaceTheFacts and accept that change is urgently needed to fuel improvement for the half a million people living with Crohn’s or Colitis in the UK.
Visit: crohnsandcolitis.org.uk/our-…
#crohnsandcolitisawarenessweek
TheChronicAdventurer retweeted
It's #CrohnsandColitisAwarenessWeek it’s time to #FaceTheFacts
We hear too many stories of late intervention, delayed diagnosis & emergency A&E visits. Help us drive change to ensure better quality of care and life for people with IBD.
Visit: ow.ly/2c5a50Ui59N
TheChronicAdventurer retweeted
It’s #WorldToiletDay. We hear every day from people living with Crohn’s and Colitis about the challenges they face accessing toilets and how it impacts their day to day lives. We are continuing to advocate for better toilet provision across the UK: ow.ly/kzpu50U9Oyu
TheChronicAdventurer retweeted
Thank you @A_J_Snowden for using your maiden speech in Parliament to share your wife Caroline's experience of Inflammatory Bowel Disease.
We look forward to working with you and other MPs to tackle stigma and raise awareness of invisible conditions like Crohn's and Colitis.