Author of "A Woman's Guide to Living With Heart Disease" @JHUPress. Speaker. https://xitter.cf/t.co/dK5alvp3zn Mayo Clinic-trained 🫀Patient Activist. Zack & Rosie's Baba.
Victoria, BC Canada
Joined May 2009
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For women living with heart disease: join me over in the friendly skies at bsky.app/profile/heart-siste… (dot) bsky (dot) social 🫀
Weekly Round-Up: The Pinktober Begins Edition
21 years ago, diagnosed with #breastcancer in October, she wore her pink ribbon proudly. It made her feel less alone. Two decades later, Marie Ennis O'Connor sees Pinktober differently...
journeyingbeyondbreastcancer… via @JBBC
Why are women (still!) under-represented in medical research?
"How are these research results still being submitted, peer-reviewed, accepted and published in medical journals when they continue to ignore over half the population?"
myheartsisters.org/2025/10/0… via @HeartSisters
"How can clinicians help patients hold onto hope? Should hope be protected, even when being hopeful is unrealistic? Or should clinicians risk a loss of hope to ensure that patients understand their prognosis?”
myheartsisters.org/2025/09/2… via @HeartSisters
Patients, twisted thinking and cognitive distortion
"Any new life-altering medical condition can throw us off-balance, both physically and emotionally..."
myheartsisters.org/2025/09/1…
Carolyn Thomas ☮️ retweeted
Just going to leave this right here. 🇨🇦❤️
Plein de fierté. Jusqu’au bout. 🇨🇦❤️
#4Nations
Carolyn Thomas ☮️ retweeted
Dear America,
We're not booing your hockey players.
We're not booing your country.
We're not even booing you.
We're booing your asshole of a president who keeps threatening our sovereignty for zero reason. Once he leaves us alone it'll stop.
Hope that clears it up for you.
Carolyn Thomas ☮️ retweeted
Do you wonder if drinking #coffee is good for you? @HeartSisters discusses benefit/risk for heart patients in her latest. Tho I fill a mug at least 3 times a day, I actually only drink 1-2 as I never seem to finish a cup. Are you a ☕️drinker? #heartdisease myheartsisters.org/2025/01/2…
Implantable cardiac defibrillator shocks vs. "careful and kind" end-of-life care:
STUDY: "Even among patients with DNR orders, over half had their implanted defibrillators programmed "ON" just one hour before death...”
myheartsisters.org/2025/01/1… via @HeartSisters
Coffee: a win-win for #AFib ?
“Atrial fibrillation is an independent risk factor for the development of cognitive impairments. Coffee consumption is associated with better cognitive performance in patients with atrial fibrillation..."
myheartsisters.org/2025/01/2… via @HeartSisters
Reader comment replying to post re turning off defibrillators in end-of-life care:
"I was stunned at resistance from several staff. I asked them if they “really understood the consequences” of dying with an activated #ICD in place..."
myheartsisters.org/2025/01/1… via @HeartSisters
A useful tip for all cardiac researchers recruiting survey participants: Every extra hoop you ask patients to jump through (e.g. not including a direct non-Facebook URL link to your survey) means another potential participant who will just move on. . .
💕
Thank you dear Marie for including my post about how every word of hearing an emotionally traumatic diagnosis is so often vividly remembered due to that “flashbulb memory” mechanism - even decades later. 💕
@HeartSisters @NancysPoint @BRCAresponder @gabbymot @letlifehappen @crosserriddle featured in this week's blog round-up
journeyingbeyondbreastcancer…
Dear @CBCNews
...Then why aren't you where the sky is blue?
cbc.ca/news/canada/cbc-ads-f…
Coffee: good or bad for our hearts?
"The thinking about coffee’s effects on the heart has swung in both directions,” explains Harvard professor of medicine Dr. J. Michael Gaziano. Here's why we've had such mixed messages. . .
myheartsisters.org/2025/01/2… via @HeartSisters
Do you have a survey link for those of us no longer on Facebook, pls and thank you!? 💕
@DrMarthaGulati @InocaInternati1
In collaboration with Prof C Noel Bairey Merz and Prof Martha Gulati, with full IRB approval from Cedars Sinai and hosted on Survey Monkey so all responses are anonymous
If you haven't taken our brand new survey yet, you can access it via the linked page!
facebook.com/groups/28796069…