#NiemannPickC | #ChildhoodDementia | #RareDisease | #mRNAtherapeutics | researcher @TheFlorey. Views are my own.
Joined October 2015
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Ya Hui Hung retweeted
Today is Niemann-Pick Disease Awareness Day, a time to support those affected by conditions such as Niemann-Pick Disease Type C (NP-C).
Supported by @NiemannPickOz, Dr @HungYaHui's team is working on an innovative mRNA gene therapy for NP-C.
Learn more: florey.edu.au/research-proje…
Ya Hui Hung retweeted
In honour of Niemann-Pick Disease Awareness Day, we spoke with Mandy Whitechurch, Founder of @NiemannPickOz Foundation and mother of Timothy and Matthew.
With volunteers and families, @NiemannPickOz supports our research into a new gene therapy for NP-C: bit.ly/3YpTBTg
Emotions like Joy, Sadness, Anger, Anxiety, Fear, and Disgust, all contribute to the creation of memories.
For those living with childhood dementia, these emotions and memories slip away. They become confused and disoriented.
#ChildhoodDementiaAwarenessDay #ChildhoodDementia
@TheFlorey, my team and I are joining @Child_Dementia to #FACEit, to raise Childhood Dementia Awareness and help to make a difference through our research for effective treatments.
Learn more 👉 childhooddementia.org
Ya Hui Hung retweeted
We are grateful to the Australian NPC Disease Foundation (@niemannpickoz) for supporting our research at The Florey to improve the health and wellbeing of those living with NP-C.
Learn more: florey.edu.au/research-proje…
#TheFlorey #impact #neuroscience #NiemannPickC
@HungYaHui
Ya Hui Hung retweeted
It's an honour to take part in the 2024 NPC Conference held by the Australian NPC Disease Foundation this week, with Dr @HungYaHui from The Florey presenting her team's research in developing an effective mRNA gene therapy for #NiemannPickC.
Ya Hui Hung retweeted
It's great to see our partners from the Australian NPC Disease Foundation (@NiemannPickOz) featured in the Herald Sun this morning.
Thank you @NiemannPickOz for supporting Florey's research to help Noah and other children with NPC disease.
Read here: heraldsun.com.au/lifestyle/h…
Ya Hui Hung retweeted
Please join us for this important event #YOD
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Ya Hui Hung retweeted
This International Women's Day, hear from some of our Florey scientists who have shared their perspectives and stories being women in science.
Read the story in full: florey.edu.au/news/2024/03/i…
#TheFlorey #IWD2024 #InspireInclusion
Today is 29th February - a day that occurs only every 1,461 days. A rare day, making it is extra special to celebrate #RareDiseaseDay today to raise awareness and support for 300 million people living with a #RareDisease.
Learn more about our rare disease research @TheFlorey 👇
Ya Hui Hung retweeted
We love Renee's intro to her kids. She's one of the parents raising awareness to create change. Sadly, Hudson, Holly and Austin all have #childhooddementia caused by Niemann-Pick disease type C. You can see Renee’s full interview here: bit.ly/3SuyYRz
Ya Hui Hung retweeted
Promoting understanding and offering support, the @NiemannPickOz is dedicated to improving lives affected by Niemann-Pick disease. Learn more on their website: npcd.org.au
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#RareDiseaseDay2024 #LightUpForRare #ShareYourColours #RareDiseaseDay #raredisease
Ya Hui Hung retweeted
Very pleased to see the launch of this short comedy/drama on the importance of increasing the number of conditions included in newborn heelprick tests - please watch and share!
@fragilexuk @M4RareDiseases @GeneticAll_UK @camraredisease #rareconditions
youtube.com/watch?v=oVKBVERB…
Ya Hui Hung retweeted
What are Lysosomal Storage Diseases? youtu.be/gW6_QWbQLCs via @YouTube
Neat intro video from a collab with Platt lab team @PharmOxford @NiemannPickUK
Today is the Global #NiemannPickDisease Awareness Day. If you have not heard of Niemann-Pick Disease, learn more about this rare and devastating condition and how you can help to support the #NiemannPick community 👉 npcd.org.au
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It's #ChildhoodDementia Day today! My team at @theflorey is helping to raise Childhood Dementia awareness by putting stickers on our faces to #FACEit. Learn more 👉 @Child_Dementia
childhooddementia.org/
Join me at the #LysosomalDisease Summit in Melbourne, 27-29 October 2023. There are student scholarships available, sponsored by @FabryAustralia. Apply here: lysosomaldiseasesummit.org/s… Deadline has been extended to 22 September, 2023.
More details about the Lysosomal Disease Summit can be found here: bit.ly/LDSummit2023
Prof @MarkWalterfang presenting on #NiemannPickC clinical research in #Melbourne at the @NiemannPickOz Australian NP-C Conference.
#NPConf2023
@TheRMH @TheFlorey
The 2023 Australian #NiemamnPickC #conference is now happening in the Ian Potter Auditorium @TheFlorey
@NiemannPickOz #NPConf20234
