UK IBD Registry (@IBDRegistry) header
UK IBD Registry (@IBDRegistry) profile picture

Collecting and analysing data to improve the health of people living with inflammatory bowel disease in the UK

London, England
Joined March 2017
Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)Photo by UK IBD Registry (@IBDRegistry)
A busy time for the team, but the festive period is for celebration. This week, 3 research studies we have led or been involved in were accepted for the European Crohn's and Colitis Conference in 2024! Huge thanks to all our participants, partners, stakeholders and supporters.
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Wishing the @CrohnsColitisUK team and #IBD representatives the best of luck for today💜 #CrohnsAndColitisAwarenessWeek
Thank you to everyone who came to our Senedd drop-in event to talk about how we can work together for better diagnosis, better care and support for better lives for people living with Crohn’s and Colitis. We’re looking forward to being in Westminster tomorrow!
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What a fantastic informative post from @GutsCharityUK for #CrohnAndColitisAwarenessWeek💜 #IBD #Crohns #Colitis
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Finding the right words to talk about #IBD isn't always easy. Using resources such as @CrohnsColitisUK Talking Toolkit can be a great place to start💜 #CrohnsAndColitisAwarenessWeek
This Crohn’s and Colitis Awareness Week, we want to help you find the right words to share what you’re going through. Get your own Talking Toolkit with all the info, talking tips and resources you’ll need to feel confident to start your conversation 💜 crohnsandcolitis.org.uk/our-…
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As an organisation focused on improving the lives of people with #IBD, awareness events are an important part of our year. This includes #CrohnsAndColitisAwarenessWeek starting today! 💜@CrohnsColitisUK @CICRAcharity @GutsCharityUK @IBDSuperHeroes @GetYourBellyOut @BritSocGastro
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Our research into effectiveness of different classes of biological therapies for #IBD (BISCUITS) is being presented at ISPOR today. This is a methodology poster showing how using the #IBDRegistry can deliver efficient research. Read more: rb.gy/0zsm57 #ISPOREurope
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Fantastic to see #IBD awareness reaching the big screen!💜
Watch our new Cut The Crap campaign ad that's launching in cinemas across the UK today. Let us know where you spot it! We say #CutTheCrap to all the excuses people make to delay checking their symptoms. Use our symptom checker to help you decide if you should seek further help.
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We’ve published our 2023 annual report on biological therapies in #IBD – an essential part of our expanding quality improvement work to support better treatment and care for people with IBD in the UK #data #NHS Find out more at: ibdregistry.org.uk/2023/10/i…
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More than 5,000 people with #IBD have now joined @IBDRegistry to help improve IBD treatment and care and support #research. 🎉 Thank you to everyone who has joined! Continue to help grow this valuable resource at ibdregistry.org.uk/join #Crohns #colitis
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It's #WorldPatientSafetyDay! As the national registry for #IBD, we recognise the importance of patient safety. From data protection and drug safety studies to our Patient Advisory Group, read more about our work here: ibdregistry.org.uk/informati… #WorldPatientSafetyDay2023
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UK IBD Registry retweeted
We've extended the deadlines for the Benchmarking surveys to Monday 11th September🗓️ We encourage all IBD services to register for and complete the Service Survey. It takes 30 minutes to complete. You may provide estimates or skip questions as needed. ibduk.org/ibd-benchmarking-t…
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Thank you to the #IBD team at Jenny Lind for sharing how participating in @IBDRegistry provides valuable insights to help them improve their IBD service – read their story at ibdregistry.org.uk/clinical-… 💜 #NHS #InflammatoryBowelDisease
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📢 1 week left to complete the IBD Service Survey 2023! This gives UK #IBD services the chance to have your say on how you're doing against the IBD Standards. @IBDUKTEAM @CrohnsColitisUK @BritSocGastro surveys.ibdregistry.org.uk/r…
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Not long left to complete the 2023 #IBD Patient Survey and Service Survey. Closing date Friday 25 August!
The IBD Patient Survey and Service Survey are only open for 10 more days🗓️ We need as many patients and services to complete the surveys as possible to inform how we can improve standards of care for everyone living with IBD. Find both surveys below 👇 ibduk.org/ibd-benchmarking-t…
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Congratulations to Chesterfield Royal Hospital for submitting #data using our new platform! 🥳 Great to work together to capture valuable #health data to help improve treatment and care for people with #IBD 👏 @royalhospital
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UK IBD Registry retweeted
We've extended the deadline for the Service Survey to 25th August 🗓️ We want to give enough time for as many UK IBD Services to complete the survey as possible. This is a chance for services to tell us how they're doing against the IBD Standards 2019. surveys.ibdregistry.org.uk/r…
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Great to see more #IBD hospital teams signing up to our new #data platform to submit valuable #health data 🥳 Thank you for participating in the @IBDRegistry to help improve treatment and care for people with IBD! 😀 @UHMBT @WorcsAcuteNHS @UHSussex
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Fantastic to see more #IBD hospital teams successfully submitting data to our new platform! 👋 We're so pleased to be working with you to help improve treatment and care of people with IBD 💜 #NHS @AlderHey @ImperialNHS @MSEHospitals @uhbwNHS @UHDBTrust
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📢 UK IBD services - The IBD Service Survey 2023 deadline has been extended to Friday 25 August. We are proud to deliver the Service Survey on behalf of IBD UK, including any support needed by clinical teams in their completion. surveys.ibdregistry.org.uk/r…
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UK IBD Registry retweeted
The 2023 Service Survey, as part of the #IBD UK Benchmarking 2023, is now open and will close on Friday 25th August. Follow the link below to register for the survey and benchmark your IBD service against the IBD Standards 👇 bit.ly/3PWcn0I
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