Irish Lung Fibrosis Association provides research, education and support for patients and families of Lung Fibrosis - a serious and life-limiting condition.
Dublin, Ireland
Joined November 2010
- Tweets4.3K
- Following1.1K
- Followers1.9K
- Likes10.4K
Organising your finances
It is important to organize your financial records, provide clear direction for your care going forward and update your will.
Watch our planning ahead session from our recent Patient Summit here – youtube.com/playlist?list=PL…
Establish a Care Plan
Having conversations about your wishes early can help ensure you, your family and health care team understand what matters most to you.
For more information visits our website - Planning Ahead - Irish Lung Fibrosis Association
Planning ahead for physical and mental wellbeing with lung fibrosis
ILFA has many resources available to help you navigate your way through the challenges you might face.
Visit our website for more information - Planning Ahead - Irish Lung Fibrosis Association
Special thanks to our advocates, @cathcallaghan1 (Catherine Callaghan TD), and @JohnLahart (John Lahart TD) for sponsoring our AV Room presentation on September 23rd.
Thank you to everyone who advocated for our #Budget2027 priorities.
#ILFA #YourVoiceMatters #ILFAAdvocacy
#Budget2027 must provide the staffing and resources (€140,500) needed to lead the ILD Pathway Framework implementation across the HSE
Ahead of #Budget2027, we are highlighting Key Priority 3: Resource the ILD Pathway Framework Implementation.
Budget 2026 funded this vital HSE National Framework to improve care nationwide. These recommendations will transform lung fibrosis care—but they must be implemented
We want to make your voice heard! 🗣️
The Irish Lung Fibrosis Association is calling on members to complete the EU-PFF Access Index Patient Survey.
Your insights will help improve care and advocacy in Ireland.
Deadline: 15th Nov.👉Take the survey: advisoryenvironment.surveysp…
As one patient shared: "I have been declined disability & invalidity payments... My life savings are now almost zero and having to rely on my partner's wage."
We need urgent action to relieve this high cost of care. Read our full affordability data: [LINK]
#ILFA #Budget2027
#Budget2027 - Key Priority 2: Medical cards & utility cost relief for lung fibrosis patients.
Our recent survey shows 1 in 3 patients face severe financial difficulty due to their condition. Routine medical cards & oxygen utility grants are vital.
Budget 2027 Priority 1: Continued ILFA funding to support critical services (€315,000)
Budget 2026 Delivered:
ILD Nurse Advice line
Virtual Pulmonary Rehabilitation
Daily exercise and wellbeing programmes.
Psychological counselling
Budget 2027 must fund these services
Huge thanks to @JohnLahart and the @fiannafailparty
comms team for giving @ILFA_Ireland this platform and to @MDMacAuley for sharing his compelling story. ILFA's #Budget2027
Fianna Fáil: In Our Own Words Podcast - Living with Lung Fibrosis | Free Listening on Podbean App
Budget 2027 must deliver for the lung fibrosis community. ILFA is calling on the government to prioritize:
Continued ILFA funding to support critical services (€315,000)
Medical cards and utility cost relief for patients
Resource the ILD Pathway Framework (€140,500)
Ahead of #Budget2027, lung fibrosis patients across Ireland need delivery on our core Leinster House asks:
🔹 €315k for critical ILFA services
🔹 Medical cards & utility relief
🔹 €140.5k to resource the ILD Pathway Framework
Understanding your diagnosis and treatment plan
When receiving a diagnosis of lung fibrosis, it is important to understand more about the diagnosis and treatment plan.
For more information visit our website - Planning Ahead - Irish Lung Fibrosis Association
ILFA proudly held our first Patient Summit this week, with 100 members registered, expert led panels and patient sharing experiences. We would like to Thank our sponsors @Boehringer for making this event possible.
Light up in Blue Campaign ! Today buildings and landmarks across Ireland will be lit up to show support for lung (pulmonary) fibrosis patients. To learn more contact [email protected]
#ILFA #WorldLungDay #PulmonaryFibrosisAwarenessMonth #LightUpBlueILFA2026 #BlueUp4PF
ILFA is proudly supporting World Lung Day today for pulmonary fibrosis patients in Ireland and across the world. To learn more visit ilfa.ie and follow us on social media.
#ILFA #WorldLungDay #LungFibrosis #PulmonaryFibrosis #PulmonaryFibrosisAwarenessMonth
Pulmonary Fibrosis Awareness Month starts with a focus on early diagnosis.
On average, it takes 18 months to receive an accurate diagnosis of lung fibrosis. Early detection and specialist care can make a significant difference.
Visit - ilfa.ie/awareness-month-2026…
ILFA is looking forward to today's Lunchtime Live programme on Newstalk (@newstalkfm), where our CEO, Maureen O'Donnell, will discuss the importance of lung transplantation and the significant decline in transplant rates, which have yet to recover to pre-Covid levels.