”Esto de la Hemostasia..lo llevo en la sangre..”😌 #hemofilia #Coagulopatias Médico @SoterodelRio @ucchistus 👨🏻‍💻🏥 #SaludDigital @SaludSurOriente

Joined March 2012
With all novel drugs in #Hemophilia it’s a time to focus on treatment of a larger number of patients who have no access for regular #prophylaxis #ISTH2025
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Gualtierotti #ISTH2025 on timeline of development of ultrasound tool. I believe this will be a very important tool to assist with diagnosis and bleed management. Ideally, if a PWH can scan a joint at home using phone or tablet and send image to HTC, they can confirm if bleeding
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Do you have anticoagulated patients undergoing major surgery? This qualitative study ID’ed what patients want! 💙 Written instructions ♥️ Access to team 💙 Concern with injections ♥️ Fear of bleeding 💙 Clotting risk ♥️ Written instructions (yes, important) #ISTH2025
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🔍 Thrombophilia testing? Knowing when and how to test is crucial — but so is knowing which lab to trust. The latest ISTH SSC guidance outlines best practices and recommendations for lab selection and testing reliability. Read it👇Share it Apply it #ISTH2025 #Hemostasis
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JCMorales retweeted
👏 Congratulations to Meaghan O'Donnell and the EAHAD WG+BD WG for presenting "Menstrual Outcomes are Frequently Excluded from von Willebrand Disease Trials" at today's session at #ISTH2025! Read the full article: onlinelibrary.wiley.com/doi/…
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From my Gene Therapy lecture #ISTH2025 Gene Therapy decision drivers depend on the individuals lived experience with haemophilia . Shared decision making should be compulsory and each potential patient should take time to make a fully informed personal decision 1/9
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JCMorales retweeted
#AireFresco | Dr. Juan Cristóbal Morales sobre la hemofilia: "Es una enfermedad de origen génetico. Se manifiesta en una baja de un factor de la coagulación. Que son proteínas que todos tenemos, y en el caso de que esté bajo el 8 o el 9, determina si tienes hemofilia A o B". 🔷En vivo en Youtube, radioduna.cl/tv y diales
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A new study on #GeneTherapy highlights the need for consistent methods in viral vector production, liver function assessment, and factor expression measurement to improve safety, efficacy, and predictability.📖 Read the study: bit.ly/42TUjJB
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🌍✨ We’re proud to share that WFH USA has been awarded the Platinum Seal of Transparency from Candid — the highest level of recognition for nonprofit transparency! Learn more: bit.ly/44vYOMy
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JCMorales retweeted
#AireFresco | Estamos en #DunaCiencia con el Dr. Juan Cristóbal Morales, médico experto en trastornos de la coagulación. 🔷En vivo en Youtube, radioduna.cl/tv y diales
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JCMorales retweeted
#AireFresco | Dr. Juan Cristóbal Morales sobre la hemofilia: “Actualmente hay tratamientos mucho más modernos que tienen la posibilidad de tener un efecto más largo y que es más fácil de administrar” duna.cl/programa/aire-fresco…
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JCMorales retweeted
#AireFresco | "El problema con la hemofilia es que requiere de aportar muchas veces esta proteína que tú tienes baja. Y el foco es que hagas prevención, y eso se llama profilaxis". 🔷En vivo en Youtube, radioduna.cl/tv y diales
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JCMorales retweeted
#AireFresco | "Actualmente hay tratamientos mucho más modernos que tienen la posibilidad de tener un efecto más largo y que es más fácil de administrar". 🔷En vivo en Youtube, radioduna.cl/tv y diales
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Hoy nos encontraremos en #plazapuentealto ❤️❤️ ¡Conoce el 🚌de la donación y salva vidas! ¡Te esperamos! 🥰🥰
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Our paper on the severity of #hemophilia has just been published in the journal Hemasphere. Baseline clotting factors do not always accurately reflect the severity of the disease. tinyurl.com/3hn9hhrn
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As women approach menopause, heavy and irregular bleeding can be a challenge—especially for those with bleeding disorders, who face a higher risk of severe symptoms. Awareness and treatment are key. Let's support #WHD2025 & advocate for #TreatmentForAll: bit.ly/3up6exA
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The last several months have seen a trend to halt the development or commercialization of some hemophilia therapies; nevertheless, the WFH remains committed to encouraging innovation to improve care for the global community. Read our full statement: bit.ly/4lipeaS
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🖊️ Have a bleeding disorder and a tattoo—or thinking of getting one? The WFH Nurses Committee wants to hear from you! 🩸 Share your experience to help improve tattoo management recommendations. Take the survey here: bit.ly/4kZiOxa #BleedingDisorders
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