Improving outcomes and experiences for patients with JIA through education and engagement events. A QI programme by @RheumatologyUK and @RUBISQi
London
Joined April 2022
- Tweets441
- Following164
- Followers308
- Likes637
JIA Learning Collaborative retweeted
#WearPurpleForJIA at NRAS will taking place on Friday 24th May this year 💜
#WearPurpleForJIA is our annual campaign dedicated to raising awareness and funds for the benefit of those living with JIA and their families.
Get involved now 👉 bit.ly/3wzfeQm
JIA Learning Collaborative retweeted
We're delighted to share a short interim update on the @JIAlearn project and we'll have more to share in the summer too.
In the latest update, we were pleased to hear how patient involvement is becoming embedded in the improvements that teams are making. More on IG/FB
#JIALearn
JIA Learning Collaborative retweeted
What a journey @JIAlearn has been. Thank you for inviting me to the last Action Learning Set & hearing all the amazing QI work all 12 paeditric rheumatology teams have been doing & will continue to do. Proud to have been a small part of this fantastic project. 😊
JIA Learning Collaborative retweeted
It was wonderful to take part in the celebration action learning set event for @JIAlearn today.
It was a privilege to hear the teams reflect on their achievements and learning in improving juvenile idiopathic arthritis care.
@RheumatologyUK @RUBISQi
JIA Learning Collaborative retweeted
Sharing our #BlueMonday post again this year... Kipo is here to remind us that however burdened we are feeling from living with #JIA, there is always blue sky above the clouds, whether we can see it or not. This is your reminder to do something that helps you see that blue sky.
JIA Learning Collaborative retweeted
12 Days of Fact vs Fiction 🔎
JIA impacts young lives differently, targeting various joints and presenting in diverse subtypes. Let's shed light on the unique journeys of these young warriors and stand together for awareness and support. 💙
Share your story in the comments below👇 or email [email protected] if you would like your story to be featured on our website.
JIA Learning Collaborative retweeted
Maria and Rowan had a wonderful time in Birmingham last week presenting interim findings from our evaluation of @JIAlearn.
@JIAlearn is a national juvenile idiopathic arthritis quality improvement programme funded by @RheumatologyUK and delivered by @RUBISQi.
JIA Learning Collaborative retweeted
What is juvenile arthritis? @BBCYoungReporter Evan has all you need to know. After a life-changing diagnosis on Christmas Eve he's back on the pitch and loving it🏆⚽Here's his story bbc.co.uk/newsround/av/67485… #JuvenileArthritis #JIA #BBCYoungReporter #CCAA
JIA Learning Collaborative retweeted
It was a great day. I feel very lucky to be part of such a vibrant and collaborative community!
JIA Learning Collaborative retweeted
An amazing day working with all 12 paediatric & adolescent rheumatology teams involved in @JIAlearn. Such inspiring qi work going on in the teams. So many ideas on sustainability for the collaborative. Thank you @DrGavinCleary & @FloraJIALearn1 for leading this great project.
JIA Learning Collaborative retweeted
On route to Birmingham for the @RheumatologyUK @JIAlearn collaborative. Looking forward to seeing the paediatric teams and hearing updates on their quality improvement projects. 😊
JIA Learning Collaborative retweeted
We're excited about the @jialearn November event. The project is a @RheumatologyUK and @NHSGIRFT funded programme, aiming to improve the quality of care for children and young people with #JIA living across the UK. Thank you to all who have provided feedback. Read more on FB/IG
JIA Learning Collaborative retweeted
Mel was diagnosed with #arthritis at 4-years-old. She's had 22 procedures to help her pain and mobility, but is still waiting in pain for a knee replacement to give her freedom to carry out everyday tasks.
Watch her story and learn more: versusarthritis.org/about-ar… @ITNBusiness
JIA Learning Collaborative retweeted
Isaac shows us that although JIA has very much been a hugely impactful and prevalent feature in his life, he is trying to empower himself and others to see "there is hope" and purpose to your life when living with a chronic condition.
JIA was not something Isaac ever thought he would have to factor into his life but he is an image of determination, resilience and bravery and to all of the brave, resilient, determined and incredible people living with this condition... you are MAGNIFICENT.
Please share your stories with us and tell us, what arthritis looks like for you. For further information on living with JIA, take a look at our 'JIA Explained' publication over on our website jia.org.uk/resource/jia-expl…
JIA Learning Collaborative retweeted
Thank you for your input into the #JIALearn project so far. We’d love to hear some of your ideas on how improvements could be achieved.
No matter how wild or wacky, if you had one wish to make improvements to JIA care, what would it be? What would those solutions look like?
JIA Learning Collaborative retweeted
Living with a chronic illness can be challenging, but remember, your mental well-being matters too! 💖 Check out our latest blog post on '10 ways you can improve your mental-wellbeing if you have a chronic illness'.
Read now 👉bit.ly/3LPQGfJ
#mentalhealth4all #WorldMentalHealthDay
JIA Learning Collaborative retweeted
It's ok to not be ok.
We're here to support you on #WorldMentalHealthDay and beyond.💜
Visit: versusarthritis.org/get-help
JIA Learning Collaborative retweeted
Today is WORLD MENTAL HEALTH DAY - A day to remind ourselves just how important it is to take care of our mental health, just as we take care of our physical health.
Read more on our IG/FB page.
#worldmentalhealthday #worldmentalhealthday2023 @mentalhealthfoundation #ThinkJIA
JIA Learning Collaborative retweeted
The WORD day video launched last week at #PReS2023. WORD day is World yOung Rheumatic Diseases day and happens each year on 18th March. We need to work together to raise awareness of these conditions because awareness changes lives. #WORDday2024
youtube.com/watch?v=yEfV1Gco…
JIA Learning Collaborative retweeted
We recently ran an online #arttherapy group in partnership with @CCAA_org to support children & young people with #JuvenileIdiopathicArthritis using art therapy to:
💫explore self-awareness
💫develop self-confidence
💫gain peer support
💫share experiences of #JIA through art.
