Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own
Illinois, USA
Joined December 2019
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- Following745
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J Roberts retweeted
In a recent interview, @JonRob08 of @BloodExpertsIL discusses the findings of a study evaluating joint health status & bleeding phenotype in patients with severe & non-severe #hemophilia A or B using musculoskeletal ultrasound and other clinical tools.🩸
Watch here: 👉 ow.ly/YRzs50XLmKr
#Hematology #ASH25
J Roberts retweeted
Honored to receive the Mary Draeger Schultz scholarship 2024 @OSFHealthCare!
Grateful for the opportunity to promote #QI and #PatientSafety in healthcare, and for the incredible support from @UICOMPeoria @UicompP
J Roberts retweeted
Contrasting Approaches in the Implementation of GRADE Methodology in Guidelines for Haemophilia and VWD. onlinelibrary.wiley.com/doi/… This article developed by a global team of 48 experts and international organizations rigorously examines a number of GRADE methodology adaptations.
J Roberts retweeted
Come say Hi! 🍷
Poster number: 5014
xitter.cf/docrishabhsingh/status…
Poster 1: Comparing Perioperative Anticoagulation Management Guidelines across U.S. Institutions, working with Venous thromboEmbolism Network U.S #SBH group
📅 Monday, Dec 9, 2024 | 6:00–8:00 PM
📍 Session 901
#AnticoagulationStewardship
@heme_fan @RosovskyRachel @YoukhanaMD
J Roberts retweeted
A critique of the ISTH Haemophilia Guidelines was published in #Haemophilia Journal today with 49 eminent authors representing a global mixture of expertise, all united in their serious concerns about these guidelines which were already outdated on publication 1/3
J Roberts retweeted
Here is our just published review in #Blood focusing on how new biological insights into #FVIII
are setting the stage for new #hemophilia therapies.
#hemesky #medsky
authors.elsevier.com/a/1k8Qn…
J Roberts retweeted
With 70% of bleeding events linked to identified or suspected causes, this study highlights the pressing need for better strategies, including long-term VWD factor (VWF) prophylaxis, to reduce hospitalizations and improve quality of life. Read More: bit.ly/3UWiu6Z
J Roberts retweeted
Centessa have discontinued development of their rebalancing agent, Serpin PC despite encouraging Phase 2 PREScent clinical trial results Decision due to competition from marstacimab and possibly concizumab. This leaves these 2 plus Fitusiran in trials or licenced @ProfMakris
J Roberts retweeted
I strongly disagree with this commentary in the journal Blood Transfusion. The authors try to justify the decision of the @WHO to have cryoprecipitate and pathogen reduced cryoprecipitate (rather than FVIII concentrate) for the treatment of #hemophilia in the list of essential medicines. I do not know of ANY hemophilia treater who agrees with the World Health Organisation policy. What they recommend is dangerous for persons with #hemophilia in poor countries. Pathogen reduced cryo is only available in a tiny number of countries (?2). So essentially they are recommending unsafe cryoprecipitate and suggesting these poor countries introduce the technology to pathogen reduce the cryoprecipitate. It is about time that the @WHO includes hemophilia treaters in the "expert panel" who make recommendations for treatment of persons with hemophilia. tinyurl.com/mtuyt5fs
J Roberts retweeted
Congratulations Dr @leslieskeith!! Amazing work.
Curious to know if vWD affects pregnancy outcome❓
This multi-center cohort study finds no significant difference in pregnancy loss risk between women with von Willebrand disease (VWD), those with similar bleeding disorders, and non-bleeding controls (OR of pregnancy losses in the VWD group versus non-VWD group was 0.94, 95% CI 0.65, 1.36).
✍️ @leslieskeith @james_paulad @PKouides @lisa_duffett @sholzberg @ragnmv @CukerMd
Read more at jthjournal.org/article/S1538…
J Roberts retweeted
Montgomery Educational Symposium on Hemostasis (MESH) was a huge success thanks to the incredibly bright minds and warm hearts that gathered to honor ‘Montgomery, Milwaukee’s’ amazing career @VersitiResearch
J Roberts retweeted
The painful personal story of Dr Keith Hoots’ experiences in the early days of the #HIV #AIDS epidemic is recounted at the #PartnersPhysicianAcademy.. Attendees gained appreciation on the challenges #hemophilia community faced. We must NEVER FORGET THE PAST!
J Roberts retweeted
Our publication on children with severe hemophilia A reveals they have smaller cerebellar gray matter volumes associated with executive dysfunction. Check it out - sciencedirect.com/science/ar…
J Roberts retweeted
I encourage anyone considering applying for the Winter 2024 workshop to take this opportunity! It's an amazing platform to grow both academically and personally.
@HTRSFellows
@ASH_hematology
@HemOncFellows
@DrRajivPruthi
@ShubhAgrawalMD
@heme_fan
@Clot1
@JonRob08
@rushadpatell
J Roberts retweeted
Amazing work by @sholzberg to achieve health equity in ferritin reference ranges in Canada. Now how can we get this done in the US? @Labcorp @QuestDX @ARUPLabs
Saying it again, a ferritin of <30 ug/L is IRON DEFICIENCY for both males and females!
@acweyand @Bloodman @sholzberg
Very pleased to see this in the mail today! Congrats to @sholzberg and team in bringing impactful change after years of advocacy and hard work. @LifeLabs
J Roberts retweeted
At @nbd_foundation's #BDC2024, Dr. Tarantino earned the distinguished honor of NBDF’s Lifetime Achievement award! Please join us in congratulating Dr. T for this well-deserved award!
To learn more about the NBDF Lifetime Achievement Award, visit: ilbcdi.org/news/dr-tarantino…
J Roberts retweeted
Out in #Blood this week, our work showing emi could be repurposed for some #hemophilia B.
W/ @doshib25 @LindseyAGeorge @PishkoMD
Enhanced procoagulant activity of select hemophilia B causing factor IX variants with emicizumab ashpublications.org/blood/ar…
J Roberts retweeted
Long awaited and really needed
The management of liver disease in people with congenital bleeding disorders: guidance from EAHAD, EHC, ISTH, WFH - Journal of Thrombosis and Haemostasis
@JTHjournal @flora_peyvandi @ProfMakris @Brianhemophilia jthjournal.org/article/S1538…
J Roberts retweeted
Exciting news in #hemophilia A treatment!🩸Efanesoctocog alfa, designated as an Ultra-Long FVIII to differentiate it from Extended half-life FVIII, may provide longer lasting protection and fewer infusions, greatly improving quality of life. Full article➡️ bit.ly/4g8p9nA
J Roberts retweeted
Honored to co-author this #RPTHeditorial with @ProfMakris published today with @RPTHjournal. 🤖 🧬📔
We discuss the inevitable integration of #ArtificialIntelligence into scientific communication, as an indispensable tool that offers significant advantages for authors and editors alike, by streamlining tasks such as improving language, screening manuscripts, and disseminating scientific content. However, challenges like improper use, inaccuracies, and ethical concerns persist. Embracing AI responsibly can revolutionize science, but oversight is crucial to ensure integrity.
rpthjournal.org/article/S247…