Living w #IBD & an #ostomy. #Migraines. #ChronicPain. #PTSD. #Patient #Advocate. @ibd_hu Showing others they aren't alone in their struggles! 🤗
New Jersey
Joined October 2012
- Tweets17.4K
- Following2.6K
- Followers4.6K
- Likes12.2K
Marisa Troy retweeted
#MondayNightIBD #IBDPoll2️⃣
Reflecting on Intestinal Ultrasound (IUS)
What is appealing about IUS over other monitoring tools? Would you prefer IUS - why/why not? 🤔
Please answer the poll & share your experiences in replies ⬇️
#PatientExperience #SouthAsianIBD
79%Non invasive / No prep
16%Done by GI at the appt
5%Shorter wait time
0%🔽Cost
63 votes • Final results Marisa Troy retweeted
📢#IBD patients & caregivers:
#MondayNightIBD #IBDPoll1️⃣
📊Thinking about your IBD experience, what mode of disease monitoring do you prefer to stay on top of your care? 🔽
In replies, please share your #PatientExperience, preferences/barriers to monitoring ✏️
#SouthAsianIBD
25%Blood/stool tests 🩸
25%Colonoscopy 🥼
12%CT / MRI 🩻
37%Intestinal Ultrasound 📡
51 votes • Final results Marisa Troy retweeted
🙏🏽Patients, advocates & caregivers for sharing their journey w us!
📡 Scanning #PatientExperience on disease monitoring & #IUS w @rebelliousgut leading the convo
🗳️2 #IBDPolls👇🏽
📣RT & share your💭 w us!
#StrongerTogether #MondayNightIBD
Supported by edu grant @EliLillyandCo
Monday I go in for my first #cataract surgery.
Some thoughts about surrendering control & how tough that can be when you've been burned so much.
#chronicillness #patient #doctor
instagram.com/p/Czd5uIfOOf5/…
Marisa Troy retweeted
Honored to have spoken to DPT students at @Hunter_College @CUNY on #physicaltherapy in #painmanagement!
PT
👉🏽 critical in my #IBD surgery recovery
👉🏽 managed #pelvicfloordysfunction
👉🏽prevented prolonged use of pain meds
Important for med students to learn from patients 🙏🏽
If you're in the DC area this weekend, please join us for a happy hour meet & greet with fellow #IBD community members.
#inflammatoryboweldisease #crohns #crohnsdisease #UC #ulcerativecolitis #ostomy #Jpouch #meetup
Random but it's so awesome to sit in silence while getting a haircut. No meaningless small talk. Just relaxing.
I never share things like this but this org is in desperate need of help.
#adoptdontshop #rescue
Please help us rescue and re-home 50 dogs from a breeder going out of business by donating and sharing. gofund.me/75dc6bc8
So proud of @ownyourcrohns !!!
💜💜💜💜
Please help me congratulate the kind, caring, smart, compassionate, and all around wonderful Tina of @ownyourcrohns.
Yesterday, Tina graduated with her MPH from @IcahnMountSinai and gave the commencement address!!
Tina, you are incredible! CONGRATULATIONS, my friend! 🥂
Marisa Troy retweeted
This Pride Month on Lights, Camera, Crohn’s a look at the most common concerns & patient experiences, helpful guidance to support the LGBTQIA+ community, the added risk factors & screenings, tips for communicating with your care team, and much more.
lightscameracrohns.com/2023/…
Marisa Troy retweeted
Webinar 👩💻 Supporting young people with a #stoma: current challenges & future directions: bit.ly/StomaWebinar June 7th, 6.30 - 8pm BST.
I'll be there 👋 talking about unmet needs & the importance of advocacy groups such as @IBDSuperHeroes. PLUS...
Marisa Troy retweeted
I MAY be looking for people with, or who have had, #ColorectalCancer for some paid interviews. I was just wondering whether there's anyone in my current network that might be interested if that project moves forward? #ColonCancer
Marisa Troy retweeted
Calling all #IBD #AYA patients & #caregivers, tune in today to @MondayNightIBD’s #patientexperience co-led by IBDesis’ patient advocate @mahaparakala & @AaronBlocker_ 🙌🏽🙌🏽
You’re unable to view this Post because this account owner limits who can view their Posts. Learn more
💯 !!
#WorldIBDDay
#worldi
On #WorldIBDDay my message to patients…find a gastroenterologist that is specifically trained and interested in taking care of #IBD patients. Not all GIs have specialized training or interest to do this just like not all GIs do ERCP or hepatology. This is essential for the best outcomes especially if your disease is not well controlled. Progress is happening and is measurable!
I haven't shared much about my #health & #IBD journey in a while. It's been too triggering for me. But I'm working on it & my goal is to get back into advocating a bit more (if possible ♥️)
If I did a post for #WorldIBDDay - what would you like to see from me?
Feel free to DM.
Marisa Troy retweeted
A Call to Action, US colleagues and people with #IBD, please take a minute:
crohnscolitisfoundation.org/…
Marisa Troy retweeted
Today is Day 2 of #CCAwarenessWeek!
I've chosen to make #IBDvisible by sharing a photo of the completion of my 10 hour #TPN infusion.
This is how I #gratefully begin every day!
#IBDCantStopMe
#CrohnsDisease
#ShortBowelSyndrome
Marisa Troy retweeted
Day 2 #CCAwarenessWeek!
Thank you to @healthcentral for featuring me alongside other #Crohns warriors on what has worked for us in living our best lives!
Read here: healthcentral.com/article/cr…
Marisa Troy retweeted
Another 'oldie but goodie' from the #IBD blog vault is our Traveling with #IBD and an #Ostomy
@JournalingIBD recorded it back in 2016 but it's still relevant today and might prove useful when traveling for the holiday season.
cceffect.org/traveling-with-…