So things have gone from bad to worse recently for Harvey unfortunately. While we have been campaigning, while we have all been sharing his story, while we have been watching footage of Harvey struggling to breathe, while we have been watching him screaming in pain, @CHI_Ireland took it upon themselves to remove Harvey from the waiting list. Harvey was on the list since February 2022 and had been waiting over two years, and he was removed without our consent, or even us being informed. The only reason we even know is because I queried his status again. Where else in the world would you see a child with a curvature well over 100° actually taken *off* a surgical list. Spending years sitting on that list is bad enough but to go ahead and actually remove that little glimmer of hope we had is just inexcusable. They had no plan in place for Harvey, no scheduled follow up appointments, just him kicked off the list without even a curtesy call to let us know. As far as I can tell they gave zero consideration to his wellbeing in making that decision. We have been spending so much time trying to decide if we should put this out publicly but you have all been so supportive of us, and all the children waiting so far and it just felt too important to not share. Your support helps us fight for better, because we all know these children, and the children that will come after them deserve better. From our own experience, this new task force is nothing but a media spin between CHI and @SimonHarrisTD to make it seem like they’re making things better but this is the reality. Not only have things not got better for most of us, in some cases they’ve somehow got worse. They say that they’re improving communications with parents but I have asked David Moore (the lead of the task force) repeatedly for information like when Harvey was removed from the list and he is actively evading answering. Don’t let the media spin fool you, these children are continuing to be failed and CHI and this government are not only allowing it, they’re causing it.