@LymphomaAction

We are the UK’s leading charity dedicated to supporting people affected by lymphoma, the most common blood cancer.

 United Kingdom
lymphoma-action.org.uk/
Joined October 2008
  • Tweets21.5K
  • Following5.4K
  • Followers9.9K
7.1KMedia
Despite a joint appeal from Lymphoma Action, @AnthonyNolan and @bloodcancer_uk, and a further appeal from manufacturer Gilead, @NICEComms hasn't recommended #Tecartus for relapsed or refractory mantle cell lymphoma after two or more lines of systemic treatment in England & Wales.
Purple periwinkle is show alongside text: "Tecartus update. At Lymphoma Action, alongside Anthony Nolan and Blood Cancer UK, we are deeply disappointed at NICE’s decision to remove NHS access to the CAR-T cell therapy Tecartus for people with relapsed or refractory mantle cell lymphoma.".

ALT Purple periwinkle is show alongside text: "Tecartus update. At Lymphoma Action, alongside Anthony Nolan and Blood Cancer UK, we are deeply disappointed at NICE’s decision to remove NHS access to the CAR-T cell therapy Tecartus for people with relapsed or refractory mantle cell lymphoma.".

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While NICE acknowledged that the treatment is clinically effective, it concluded that there was too much uncertainty about the extent of its benefit to recommend it as a cost-effective use of NHS resources. Read more 👉 lymphoma-action.org.uk/news/…

NICE decision regarding Tecartus for mantle cell lymphoma | Lymphoma Action

NICE has announced that it will reconsider its decision to recommend the removal of Tecartus (brexucabtagene autoleucel) for treating relapsed or refractory mantle cell lymphoma.

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If you would like to talk, or need information and support, contact our Helpline Services (open 10am to 3pm, Monday to Friday). You can call freephone 0808 808 5555, email [email protected] or use the purple Live Chat box on our website - lymphoma-action.org.uk/helpl….

Helpline Services | Lymphoma Action

We're here to support you however you're affected by lymphoma.

lymphoma-action.org.uk
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The #NonHodgkinLymphoma Audit helps improve outcomes by identifying variation in care and highlighting opportunities for improvement across England and Wales. Patient and Public Involvement and Engagement is such an important part of the audit’s work.
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At Lymphoma Action, we're proud to help ensure that patient voices are central to the audit’s development. Read how people affected by #Lymphoma are helping to improve care: lymphoma-action.org.uk/news/…

How patient voices are helping improve lymphoma care | Lymphoma Action

Discover how lived experience contributes to the National Non-Hodgkin Lymphoma Audit and its recommendations for improving care.

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GPs and primary care teams - build your confidence in identifying #Lymphoma early! Take a look at this training 👉 lymphoma-action.org.uk/healt…
Image with text that reads: GP and primary care training free online lymphoma learning real-life examples of classical and non-classical presentations.' Underneath this is an icon of someone using a tablet.

ALT Image with text that reads: GP and primary care training free online lymphoma learning real-life examples of classical and non-classical presentations.' Underneath this is an icon of someone using a tablet.

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Our Christmas cards are here - available now from our online shop. We know the festive season can bring a range of emotions. If you are looking to celebrate this year, with our cards you can help us to make sure that no one faces #Lymphoma alone.
Collage of 8 of Lymphoma Action's Christmas cards. Card one depicts a Christmas village. Card two depicts a Christmas tree. Card three depicts a camper van with a Christmas tree. Card four depicts a snowman with robins. Card five depicts four dogs looking up to the sky with 'Merry Christmas' written on. Card six depicts highland cows in the snow. Card seven depicts Robins on a post box. Card eight shows a Christmas candy shop. In the centre 'Christmas cards are here!' is written.

ALT Collage of 8 of Lymphoma Action's Christmas cards. Card one depicts a Christmas village. Card two depicts a Christmas tree. Card three depicts a camper van with a Christmas tree. Card four depicts a snowman with robins. Card five depicts four dogs looking up to the sky with 'Merry Christmas' written on. Card six depicts highland cows in the snow. Card seven depicts Robins on a post box. Card eight shows a Christmas candy shop. In the centre 'Christmas cards are here!' is written.

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With more than 20 designs to choose from, order a pack today 👉 charitycardshop.com/lymphoma…
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We’re seeking a senior clinician with expertise in #Lymphoma to join our Board of Trustees. You’ll help ensure our work is informed by current clinical practice and emerging developments in lymphoma. Find out more and apply 👉 lymphoma-action.org.uk/trust… #LymSM #Haematology
Text reads 'Trustee wanted! We’re looking for a clinician with lymphoma expertise to join our Board of Trustees. Voluntary role. Four Board meetings a year. Annual Away Day. Closing date: 9 November. Image also shows the Lymphoma Action logo and a digital icon of healthcare professionals.

ALT Text reads 'Trustee wanted! We’re looking for a clinician with lymphoma expertise to join our Board of Trustees. Voluntary role. Four Board meetings a year. Annual Away Day. Closing date: 9 November. Image also shows the Lymphoma Action logo and a digital icon of healthcare professionals.

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Our Helpline can have conversations in more than 250 languages! We are supported by @LanguageisE who offer an interpreting service, so everyone can access the information and support they need. Find out more: lymphoma-action.org.uk/infor…
Image of two phones with speech bubbles coming out. In one speech bubble 'Dzień dobry, potrzebuję wsparcia' is written. Underneath in another speech bubble 'Hello, I need support' is written. Above this 'Talk to us in your chosen language' is written.

ALT Image of two phones with speech bubbles coming out. In one speech bubble 'Dzień dobry, potrzebuję wsparcia' is written. Underneath in another speech bubble 'Hello, I need support' is written. Above this 'Talk to us in your chosen language' is written.

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You may remember us talking about the Global Patient Survey on #Lymphomas & CLL (@knowyournodes). 1,700 of you took part here in the UK. That's the highest number ever! We're now analysing everything you shared - we're incredibly grateful for your time & honesty. Your feedback...
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We've also been reminded just how valued Lymphoma Action is as a specialist lymphoma charity. Written information & resources remain the highest priority for you & your loved ones when you’re looking to understand your lymphoma.
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We'll be sharing more of what we've learned, & how it will shape our work, in the months ahead. For now, thank you!
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Bookings close at 9am on Monday 5 October! Don't miss your chance to join the annual UKHRG meeting for updates on lymphoma radiotherapy, clinical trials & advances in practice. Hear from leading clinicians & take part in interactive discussion. Sign up: lymphoma-action.org.uk/event…
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We have two new support meetings: post CAR-T cell therapy and life, work and #Lymphoma. Find these, and our full range of support meetings, on our website 👉 lymphoma-action.org.uk/event…

Support Meetings | Lymphoma Action

We offer a range of support meetings for people affected by different types, treatments and experiences of lymphoma.

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It's been a fantastic year for #LymphomaManagement! You can now catch up on all the presentation videos and download copies of the slides. Register for on-demand access 👉 lymphoma-action.org.uk/event… @graham74GC @tobyeyre82 @OxfordHaem
Text that reads: Lymphoma Management 2026 Learn about lymphoma with on demand access 16 recordings from expert speakers Course directors: Prof. Graham Collins and Dr Toby Eyre. Next to this is a photo of someone using a laptop.

ALT Text that reads: Lymphoma Management 2026 Learn about lymphoma with on demand access 16 recordings from expert speakers Course directors: Prof. Graham Collins and Dr Toby Eyre. Next to this is a photo of someone using a laptop.

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#Lymphoma is the UK’s most common blood cancer. As we come to the end of Blood Cancer Awareness Month, let's keep talking about the symptoms. Please share this post so that more people know the common symptoms to look out for. Find out more 👉 lymphoma-action.org.uk/Sympt…
'Know the common symptoms of lymphoma' is written at the top of the page. Next to it is the Lymphoma Action's Let's talk lymphoma logo. Underneath are animations with 'Swollen lymph nodes, Fatigue without reason, Unexplained weight loss, More infections than normal, Drenching night sweats, Itching, Fever, Abdominal swelling, Chest pain, Difficulty swallowing.' written below. Next to it 'Speak to your GP if you are concerned about any of these symptoms' is written.

ALT 'Know the common symptoms of lymphoma' is written at the top of the page. Next to it is the Lymphoma Action's Let's talk lymphoma logo. Underneath are animations with 'Swollen lymph nodes, Fatigue without reason, Unexplained weight loss, More infections than normal, Drenching night sweats, Itching, Fever, Abdominal swelling, Chest pain, Difficulty swallowing.' written below. Next to it 'Speak to your GP if you are concerned about any of these symptoms' is written.

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That's a wrap for #LymphomaManagement 2026! Thank you to everyone who joined us and to our brilliant speakers! On-demand access to the webinars will be available from 1 October. Keep an eye on this page for updates - lymphoma-action.org.uk/event… @graham74GC @tobyeyre82 @OxfordHaem
Image of a laptop screen with a Lymphoma Action thank you sign on it.

ALT Image of a laptop screen with a Lymphoma Action thank you sign on it.

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Tonight will be the final week of #LymphomaManagement 2026! We'll focus on Indolent Non-Hodgkin Lymphoma including MCL, follicular lymphoma and more! @graham74GC @tobyeyre82 @OxfordHaem
Image of a laptop screen with 'Lymphoma Management week 4' written on it. In the corner is Lymphoma Action's logo.

ALT Image of a laptop screen with 'Lymphoma Management week 4' written on it. In the corner is Lymphoma Action's logo.

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