Muscular Dystrophy Australia is the leading peak national organisation providing support and services to the Australian Muscular Dystrophy community.
Melbourne, Victoria
Joined August 2010
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Muscular Dystrophy Australia retweeted
🌟🚀 Gather your family, friends, schools, and businesses for #SuperheroWeek from 4th to 10th September! 🦸♂️ Be a superhero for a great cause! 💪🌈 #CommunityImpact #TeamBuilding #MakeADifference 🎉🤝💼Signg up: superheroweek.org.au/
Muscular Dystrophy Australia retweeted
Today we’ve been busy typing up a storm to explain muscular dystrophy. Certain social media CEOs, take note... #ElonMusk #HalliThorleifsson @iamharaldur
ALT 5 things you to know about muscular dystrophy before firing off your next tweet 1. They can cause progressive muscle weakening & wasting over time. 2. Research is underway for the development of treatments. 3. It can effect every part of the body. 4. The symptoms mean using aids can help to make life more manageable. 5. People affected face challenges every day because of physical barriers and negative attitudes.
Muscular Dystrophy Australia retweeted
Avidity Biosciences made an exciting announcement this week! The company has received FDA Orphan Drug Designation for its experimental #FSHD treatment, AOC 1020. Find more information about the designation and the FORTITUDE trial in our latest blog post: bit.ly/3k26jWO
Muscular Dystrophy Australia retweeted
There are 53 days until Rare Disease Day 2023!
#IDFA #RareDiseaseDay #RareDisease #PID #PrimaryImmunodeficiencies
Muscular Dystrophy Australia retweeted
Carmela has been practicing her first ever song on a guitar and here is the full song as she promised.
Please note that Carmela has very weak arms and hands so plucking is her style to play #learningguitar #myway #fun #weakarms #musculardystrophy #lcmd
Muscular Dystrophy Australia retweeted
We’re thrilled to share that FSHD Community member Barbara Zehetbauer-Hoehl has launched her own line of handmade foot orthotics! OLUX offers elegant braces for people who experience foot drop—a common symptom caused by FSHD. Check out oluxbrand.com! #afo #fshd
Muscular Dystrophy Australia retweeted
Carmela demonstrates, where there's a will, there's a way.
Muscular Dystrophy is not stopping Carmela hoverboard!
Great balance and control demonstrated for someone with very weak muscles. #SeeTheAbility #hoverboard #overcomingobstacles #Influencer #SundayFunday – at Market Lavington, England
Muscular Dystrophy Australia retweeted
❓ Did you know there are over 6000 identified rare diseases worldwide?
👉 Download statistics like this from our website and spread the word to raise awareness for #RareDiseaseDay: cutt.ly/cYCUyc9
#RareDiseaseDay
Muscular Dystrophy Australia retweeted
Outcome measures for non-ambulant patients with #DMD are lacking. Could readily available motion-tracking technologies be the answer?
Read the full study from @LUMC_Leiden here: bit.ly/3BTmdsY
#Duchenne #MuscularDystrophy #Myotwitter #OpenAccess
Muscular Dystrophy Australia retweeted
Be a Superhero🌪️🦘for Muscular Dystrophy #Australia this September.
Get your team together & raise funds to find a cure @MDAust
superheroweek.org.au/
via #web
#superhero
Muscular Dystrophy Australia retweeted
You might remember him as the Ironman Grandad, riding from Hervey Bay in Queensland to Melbourne to raise awareness for muscular dystrophy. Geoff Lavers is making a pit stop at our studio. @MDAust #Studio10 #GeoffLavers #SuperGrandad #MuscularDystrophy #RideForStrength
Muscular Dystrophy Australia retweeted
Phyllis McDonald loved deers. At 81, her daughters knew their mum's time was running out, so they arranged one last surprise, a visit from Bambi.
#TheProjectTV
Muscular Dystrophy Australia retweeted
Back for more Euro Enduro on #iRacing with 6 hours of Imola in the Porsche 911 RSR. Let's hope it goes better than last time.
Come hang out and support the stream while we support @MDAust
youtube.com/watch?v=e1XWSgR-…
Muscular Dystrophy Australia retweeted
Thank you Jan it was lovely to see you on 96.5 FM this morning..We're so looking forward to meeting you in person and for supporting our upcoming coming trip.."Geoff's Ride for Strength" ..
Muscular Dystrophy Australia retweeted
Wow. I’m forever grateful. My purpose today and everyday is to change perceptions so people with disability can live the lives they deserve to live. I’ll do my best to make you all proud as your Australian of the Year xx
Muscular Dystrophy Australia retweeted
Also just wanted to give a huge shout out to my amazing followers and viewers, who have donated over $600(!!) to @MDAust already through the course of this race.
You are all incredible. So much love for you all.
I need a power nap now, but I’ll be back around 6:30am!
Muscular Dystrophy Australia retweeted
New research, published in Nature Communications and led by @petecurr, has discovered a novel regulatory mechanism involved in muscle pathology in muscular dystrophy. Read the paper via nature.com/articles/s41467-0…
Muscular Dystrophy Australia retweeted
Great to see our work @petecurr lab out in @NatureComms today. Thanks to all our collaborators especially Nicki Packers lab @Macquarie_Uni. Ping @BushbyKate @LochmullerLab @MDAust @ZebrafishRock @VicMuscleNet @MDUK_News #muscle #Zebrafish
New research, published in Nature Communications and led by @petecurr, has discovered a novel regulatory mechanism involved in muscle pathology in muscular dystrophy. Read the paper via nature.com/articles/s41467-0…
Muscular Dystrophy Australia retweeted
Who watched @TheVoiceAU last night? We met superstar Dylan Marguccio! Dylan has Duchenne Muscular Dystrophy and he is paving the way for people with a disability! Be like Dylan, get out there, show it & be proud! youtu.be/xCEfHAxWp0k #TheVoiceAU
Muscular Dystrophy Australia retweeted
SAVE THE DATE: 15th October 2020... 3rd annual Victorian Muscle Network Symposium. Great for #ECRs across Melbourne and surround areas. Please RT and follow. @VicMuscleNet @Avnika_R @hardee_phd @AdamTrewin @dshiam1
We are excited to announce a ‘save the date’ for the 3rd annual VMN symposium: October 15th 2020. victorianmusclenetwork.wordp…
We will be closely monitoring the COVID-19 situation and will confirm further details in due course.
#Muscle #ECR #Research #EarlyCareerResearchers #science
