ME/CFS San Diego are patients and/or caregivers sharing information, support for each other, and education about Myalgic Encephalitis/ Chronic Fatigue Syndrome
San Diego, CA
Joined July 2020
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COVID-19 and Dormant Viruses: A study of 1,154 hospitalized patients linked reactivation of dormant viruses to greater illness severity and persistent disability after COVID-19, suggesting viral reactivation may help explain some LC symptoms. science.org/content/article/…
CODA's (Complex Disorders Alliance) MAESTRO Health Innovators: Team developing AI to improve assessment of complex chronic illnesses advances to Phase 2 of an HHS/NIH tech competition for AI and invisible illness. youtube.com/watch?v=53zp-OtN… VOTE HERE: invisibleillness.crowdicity.…
7T fMRI of CSF Flow and Brainstem Dysfunction in ME/CFS/LC: @polybioRF funded research at the Martinos Center investigating CSF flow, brainstem and craniocervical abnormalities, cerebral blood flow and autonomic dysfunction. polybio.org/projects/case-st… polybio.org/2026-spring-symp…
ME/CFS Genetics Meta-Analysis: Dr. Hanna Ollila presented findings from 60,542 cases and 2.77M controls, incl. 11 genetic loci, pituitary tissue signals and strong genetic correlations between ME/CFS, LC & FM. Cases included self-reported chronic fatigue. youtube.com/watch?v=47EEXnQH…
Iceland Health Directorate Report on ME/CFS/LC, POTS & Environmental Illness: minister-requested group calls for better care, social support, research & training, & an end to harmful rehabilitation. mefelag.is/report-directorat…
ME/CFS PhD Positions at the Medical University of Vienna: Two fully funded projects on genetic and clinical endotypes, using genomic analysis and electronic health records. Applicants with ME/CFS are welcome. Apply by 22 Nov 2026: oc10.meduniwien.ac.at/open-p…
Webinar @BrainInflCollab 10/29, 12pm PT: Free webinar on inflammation and hypermobility in ME/CFS/LC and MCAS zoom.us/webinar/register/WN_…
PRIME Neurology Webinar Reminder: International researchers explore ME/CFS neurology on 28 October, 2-5 pm GMT. Online via Zoom. Register: actionforme.org.uk/register-…
LC/ME/CFS @thephysicsgirl Article: Dianna Cowern describes severe illness and partial gains with experimental treatments. kpbs.org/news/arts-culture/2…
Wallersee ME/CFS Charity Hike: 1,250 Austrian students raised funds for WE&ME Foundation research into ME/CFS and post-viral illness, while raising awareness salzburg.orf.at/stories/3376…
No Surprises Act Arbitration Profits: The law protects patients from surprise out-of-network bills, but created a lucrative industry of paid arbitrators & billing middlemen. The fees & inflated provider payouts add to healthcare costs. cbsnews.com/news/no-surprise…
ATLAS Dysautonomia Manual Safety Concerns: David Putrino’s lab endorses this progressive POTS rehabilitation protocol for ME/CFS but patient safety concerns include delayed PEM, cumulative overexertion and suitability across severity levels. coresinai.org/manual
CAR-T & Autoimmune Disease Safety: A patient died during a MS CAR-T study previous trials were paused after fatal immune complications. Experts are questioning the risk-benefit balance of CAR-T for nonfatal diseases. biospace.com/drug-developmen…
Take Action NIH Research Censorship: Urge Congress to restore terminated grants & stop political interference in research, including studies of chronic diseases. action.aclu.org/send-message…
Humanized Mouse SARS-CoV-2 Persistence Model: In mice, human immune cells increased viral RNA across organs; T cells dampened antiviral responses. Viral RNA persisted 8 weeks. frontiersin.org/journals/imm…
GLP-1 and GLP-2 in Gut Injury: In mice, both hormones helped limit T-cell-induced intestinal damage, highlighting their potential to reduce inflammation and restore mucosal integrity. cell.com/cell-reports-medici…
Olympian Beth Dobbin Calls for ME Research Funding: After revealing her ME diagnosis, the former Team GB athlete wrote to Andy Burnham urging the UK government to invest more in research. bbc.com/sport/athletics/arti…
CMS Medicare/Medicaid Exclusions: Expanded authority to bar healthcare organizations could raise hospitals’ legal and administrative costs, while leaving unclear how providers can challenge decisions. kffhealthnews.org/morning-br…
Resolvin D1 in ME/CFS/LC: In 106 participants from a RECOVER symptom-defined WHO-LC cohort, researchers found altered lipoxygenase activity and reduced RvD1. Reduced RvD1 has also been reported in ME/CFS research. cell.com/iscience/fulltext/S…
ME/CFS Research Roadmap: Neurologist Ilene Ruhoy urges Congress to fund it with $50 million, saying promising research is stalled by lack of funding. painnewsnetwork.org/stories/…
