The Nottinghamshire Branch of the Motor Neurone Disease Association has the sole aim of serving all those people in the area affected by Motor Neurone Disease
Nottinghamshire
Joined June 2013
- Tweets924
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MND Nottinghamshire Branch retweeted
We’re helping gather views from people with MND/ALS and their carers across Europe to improve care and support. Your experiences will help shape a new care pathway and highlight what really matters.
The survey is anonymous, easy to complete, and available in many languages—please take part or share with others:
🔗ec.europa.eu/eusurvey/runner…
MND Nottinghamshire Branch retweeted
Our research shows that average wait times for genetic testing for people with MND have dropped from 18 months to around three months.
The decrease follows more than a year of engagement by Association teams with NHS England, raising concerns about the impact delays in genetic testing have on people with MND.
Read more. 🔗
mndassociation.org/media/lat…
MND Nottinghamshire Branch retweeted
Diary dates for our support groups. Please note the next Rutland one is tomorrow see below. 🧡
MND Nottinghamshire Branch retweeted
On Sunday, Joff, who has MND, appeared on BBC Spotlight to share why he’s determined to fundraise for the Motor Neurone Disease Association during one of his many cold plunge fundraisers!
Joff has raised over £50,000 since his diagnosis in October.
Watch his feature now! ⬇️
🔗justgiving.com/page/jon-mach…
MND Nottinghamshire Branch retweeted
Charity places available for Manchester Marathon 2025 📢
Be part of #TeamMND and conquer 26.2 miles in one of the UK's flattest and fastest major marathons!
Whether you're chasing a personal best or soaking up the atmosphere, this race is unforgettable.
MND Nottinghamshire Branch retweeted
Hope you can join us at this Notts MNDA event:
facebook.com/share/pm12hT7fX…
MND Nottinghamshire Branch retweeted
Man embarks on B-road coast-to-coast challenge for MND charity - BBC News bbc.co.uk/news/uk-england-68…
MND Nottinghamshire Branch retweeted
Rob Burrow 💔😢 rest in peace xx
It is with deep sadness that the club can confirm that former player Rob Burrow CBE has passed away, aged 41.
More here therhinos.co.uk/article/2042…
MND Nottinghamshire Branch retweeted
#Leeds Marathon done - 5hrs 13 mins in support of @mndassoc
@mndcampaigns @MNDNotts Some pretty brutal hills and warmer than most of my training runs but a great atmosphere from the spectators.
Thanks to everyone who sponsored me and to all those who shared my posts.
MND Nottinghamshire Branch retweeted
Shoutout to the incredible #TeamMND who have dived into #Swim6kinMay!
Your dedication has already raised a staggering £100k for the MND community. Let's keep making waves 🏊
MND Nottinghamshire Branch retweeted
#TeamMND know how important Luke has been in raising awareness for the Association and the MND community.
Now, he is giving you the chance to win a signed shirt to raise vital funds. We 💙 @LukeTheNuke180!
Looking forward to night 15 @OfficialPDC Premier League in Leeds 🎯 For a chance to win tonight’s Pdc Premier League Leeds match worn signed shirt 🎯 Click on the link below donate as little as £1 to be in the draw ☢️ @mndassoc
justgiving.com/page/lukelitt…
MND Nottinghamshire Branch retweeted
Just one of many amazing memories for Sam yesterday #BusinessFinished
Massive cheers for @StandAgainstMND founder, Sam Perkins, for completing @LondonMarathon 🧡
MND Nottinghamshire Branch retweeted
Big congrats 🙌 @LukeTheNuke180 and thanks hugely again for supporting us @mndassoc too 🏆💙🎯
MND Nottinghamshire Branch retweeted
Introducing @StandAgainstMND and @mndresearch PhD student, @Hannah_Bailey00!
The project Hannah is working on investigates if blocking a naturally occurring biomolecule will help to protect motor neurones.
You can read the full story below 🧬
MND Nottinghamshire Branch retweeted
Take the plunge and join #TeamMND for the Great North Swim this June.
Your one mile swim in Lake Windermere will help us be there for more families facing MND.
Sign up now for just £15 plus £195 fundraising pledge 🏊
MND Nottinghamshire Branch retweeted
With the MND Association, you can write or amend your Will for free at a time that suits you.
Ensure your family is protected and your wishes are followed without having to worry about the costs involved.
Find out more and request your Will writing information pack today ✍
MND Nottinghamshire Branch retweeted
We are thrilled to join forces with @standagainstMND to continue to fund #MND #ALS research at @UniofNottingham.
The Stand Against MND PhD studentship aims to help develop the MND research leaders of tomorrow. 🧑🔬🔬
Read more: mndassociation.org/media/lat…
ALT Hannah Bailey and Sam Perkins in a laboratory
MND Nottinghamshire Branch retweeted
Introducing the @StandAgainstMND @mndassoc PhD student… @Hannah_Bailey00!
Hannah is investigating astrocytes, which help to protect neurons. In #MND #ALS this protection is reduced. 📉
Her work aims to make astrocytes more protective.
Read more: mndassociation.org/research/…
ALT Person working in the laboratory wearing a MND Association lab coat
MND Nottinghamshire Branch retweeted
📣 Participants needed! 📣
The @earswitch team are developing a new assistive communication device for people with #MND.
They are looking for people who can “ear rumble” to investigate if it could interact with this new technology.
More info ⬇
mndassociation.org/research/…
ALT Person with sensor going into ear