We exist to promote progress in the awareness, diagnosis and treatment of Mast Cell Activation Syndrome and to provide support to people affected by MCAS.

England, United Kingdom
Joined June 2016
Triggers can be anywhere and can change, as our reactions to them can change.
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Being surrounded by people doesn’t always stop MCAS from feeling isolating. Feeling understood matters - and there are others who truly get what this is like.
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There was always something missing in my health story until MCAS came along. Could #MCAS be the missing piece you’ve been searching for?
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Fragrances can be really challenging for people with MCAS causing debilitating reactions. #MCASMoments
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Managing MCAS takes physical and emotional energy that isn’t always visible.
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“I can be kind to myself on the days that feel hardest.” Self-compassion is especially important when symptoms or emotions feel overwhelming.
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Imagine your whole life revolving around what other people spray, eat, wear, or clean with. MCAS can turn everyday social contact into a minefield.
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Organising social events: Choosing venues carefully. Asking awkward questions. Planning exit routes. Cancelling at the last minute. Socialising with MCAS takes energy long before you arrive. #MCASBehindTheScenes
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MCAS can change so many aspects of life that it’s easy to feel disconnected from who you used to be. You are still you - adapting, surviving, and learning as you go.
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Our August events schedule is a little quieter this month, as many of our wonderful hosts take a well-deserved summer break. We hope you’ll find something that interests you and look forward to welcoming you at an upcoming event. Thank you for being part of our community!
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Some hobbies include scents as an integral part of them. It can be hard to find safe yoga or pilates classes and often people with MCAS can find it hard to speak up and ask for the support they need. This can also affect other wellbeing activities like meditations and sound baths
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Fiction: Children grow out of MCAS. Fact: Some children may see changes over time, but MCAS can be a long-term condition requiring ongoing support.
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Our August events schedule is a little quieter this month, as many of our wonderful hosts take a well-deserved summer break. We hope you’ll find something that interests you and look forward to welcoming you at an upcoming event. Thank you for being part of our community!
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But pushing through can mean days of consequences…Pain, flares, exhaustion. You’re not avoiding life. You’re trying to manage it safely for you and that’s ok.
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For many, MCAS is not one linear challenge to meet, but many tiny challenges to overcome. But it can be done. #MCASmoments #LifeWithMCAS #MastCellAction
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Our August events schedule is a little quieter this month, as many of our wonderful hosts take a well-deserved summer break. We hope you’ll find something that interests you and look forward to welcoming you at an upcoming event. Thank you for being part of our community!
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Explaining MCAS: Finding the words. Simplifying something complex. Deciding how much to disclose. Preparing for more questions. #MCASBehindTheScenes
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Many people with MCAS avoid asking for adjustments due to fear of judgement or disbelief #MCAS #LivingwithMCAS #MastCellAction
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💥Exciting things are happening every month for the MCAS community! Join our online events and be part of something special. Sign up for our newsletter now and make sure you’re always in the know—don’t miss out! #MCAS #MCASAware #MCASEvents #MastCellAction
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🦸Being an MCAS Hero isn’t about big gestures. It’s about quietly showing up, month after month, so others don’t feel alone. Our MCAS Heroes are part of the heart of Mast Cell Action. Become an MCAS Hero today, find out more mastcellaction.org/mcas-hero…
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