Took a decade to get a diagnosis. Raising awareness on Mast Cell Activation Syndrome, symptoms, protocol & research to improve quality of life.
Joined April 2019
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- Followers2.6K
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MastCellChat retweeted
I met a young man whose Dx journey to mast cell activation syndr took many frustrating yrs, incl being dismissed by many. He said “I would’ve thought doctors would be interested&excited to help discover what was wrong. That was not the case.”
I think about this a lot #MedTwitter
MastCellChat retweeted
Immunological dysfunction and mast cell activation syndrome in #longCOVID
journals.lww.com/apallergy/F…
MastCellChat retweeted
I was today-years-old when I learned that 90% of the citric acid used in food/beverages is manufactured citric acid (MCA), mass produced using Aspergillus niger—a type of black #mold & people w/ #chronicillness and weakened immune systems may react badly to it.
Read my latest👇
It’s possible that something hidden in your daily routine may be sabotaging your healing.
A potential culprit is a common food additive that's made from toxic mold. Many chronically ill people react badly to it.
READ MORE lymedisease.org/unknowingly-…
MastCellChat retweeted
“I wonder though, if people who don’t live with #chronicillness truly realise how much it impacts upon daily life? Do they realise that symptoms can be there 24/7…that medication doesn’t magically alleviate all our symptoms?” buff.ly/3WkQJ63 @throughfibrofog #chronicpain
MastCellChat retweeted
The average time to diagnosis for MCD patients is ten years. We are working tirelessly to close this gap and to advocate to physicians to help lower this number.
READ one patients diagnosis journey: tmsforacure.org/pams-story/
#MASTCELLDISEASE AWARENESS
#diagnosisjourney
MastCellChat retweeted
The condition’s root causes can also lead to several distinct but interlocking illnesses, including mast cell activation syndrome, Ehlers-Danlos syndrome, fibromyalgia, dysautonomia (usually manifesting as POTS), and several autoimmune and gastrointestinal disorders….
🚨I wrote about ME/CFS (chronic fatigue syndrome). The US has millions of people with it & maybe two dozen docs who specialize in it.
This medical crisis needs urgent attention, esp. now COVID has hugely increased the number of long-haulers. 1/
theatlantic.com/health/archi…
MastCellChat retweeted
Mast cell-mediated neuroinflammation may have a role in attention deficit hyperactivity disorder (Review) 2020 buff.ly/3SoLVM7 #MCAS #ADHD #ADD #autism #allergy #nuerology #inflammation #NEISvoid #EDS #HSD #hypermobility #MedTwitter
MastCellChat retweeted
Mast cell specific biomarker - no wonder its complex- mast cell hide in tissue, share mediators with other inflamatory immune cells, heterogenous mechanism of mast cell activation make mast cell so special #eaaci2022 – at Burgh Le Marsh, England
MastCellChat retweeted
Mastcell activation syndrome - #eaaci2022, a risk of over Dx as the symptom complex is heterogenous, multisystem involvement, many symptoms (neuro psychiatric) could well be ill defined & where objective evidence is difficult to obtain #eaaci2022
karger.com/Article/FullText/… – at Burgh Le Marsh, England
MastCellChat retweeted
Association of mast-cell-related conditions with hypermobile syndromes: a review of the literature 2022 Monaco, Choi, Uzun, Maitland and Riley
buff.ly/3lVUcYF #EDS #MCAD #MCAS #NEISvoid #MedTwitter #MedEd #Hypermobilty
MastCellChat retweeted
Mike Bender's @MensHealthMag story discusses the interplay of many environmental factors that could be responsible for #MCAS symptoms that persist despite conventional treatment. Keep us updated Mike on your progress! #mastcelldisease
menshealth.com/trending-news…
MastCellChat retweeted
Unfortunately, MCAS is so new that few physicians know much about it. This interview 👇 w/ one of the few experts in the field, Dr. Afrin, is a good overview of the diagnosis & management of mast-cell disorders. #LongCovid is discussed.
youtube.com/watch?v=cX6uZKIn…
MastCellChat retweeted
Mast Cell Activation Syndrome (MCAS) is often a part of #MECFS #longCOVID #fibro #EDS #POTS & similar illnesses. It's caused by immune dysfunction, resulting in allergic-type reactions to foods, environment & more. Treating MCAS often helps many symptoms! livewithcfs.blogspot.com/201…
MastCellChat retweeted
Is anyone aware of any studies regarding the safety of the #COVID19vaccine in patients with mast cell activation syndrome? #MCAS @DrTaniaDempsey @mastcellhelp @MastCellChat
This data suggests the mRNA is safe in patients w/ hx of severe allergic run's. teapawt.org/LonnieRhea/status/1474…
New | Data suggest the BNT162b2 (Pfizer mRNA) #Covid19vaccine is relatively safe also in patients with severe allergic background; however, some precautions are required. #allergies pubmed.ncbi.nlm.nih.gov/3459…
MastCellChat retweeted
#Mastcell activation is associated with post-acute #COVID19 syndrome. First author: Wechsler, J.B., corresponding author: Youngblood, B.A.
Read more👉 doi.org/10.1111/all.15188
Read all recent COVID-19 papers published in Allergy here 👉journalallergy.com/COVID-19
#Allergy_journal
MastCellChat retweeted
"Environmental Sciences Europe, a journal reaching regulatory toxicologists worldwide, published the study Nov. 18, titled, “Mast cell activation may explain many cases of chemical intolerance.”
tiltresearch.org/2021/12/02/…
...
#HumanCanaries #TILT #MCAS
#EnvironmentalSensitivities
MastCellChat retweeted
My 5 main triggers for mast cell activation and how I manage them
#MCAS #MastCellActivationSyndrome #RareDisease #ChronicIllness #Health
throughthefibrofog.com/5-mai…
MastCellChat retweeted
Mast Cell Activation awareness day.
MCAS varies person to person and what may be okay one day can have a severe effect another.
It may appear as if our triggers are weird, but please don’t shrug them off just because their not “typical”
MastCellChat retweeted
🧐”Mechanisms of vitamin D₃ metabolite repression of IgE-dependent mast cell activation”pubmed.ncbi.nlm.nih.gov/2446…
