Mesothelioma UK is a national resource centre dedicated to providing specialist Mesothelioma information, support & improved care and treatment

Joined March 2010
The British Mesothelioma Spotlight Audit aims to build a clearer picture of treatment and outcomes across the UK, helping identify inequalities in mesothelioma care. Diagnosing trusts should submit patient data to: 📧 [email protected] 📞 0800 169 2409
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Peter Browne lost his wife after she was exposed to asbestos during school building work in the 1970s. He said Julia was told to “carry on as normal” with her PE lessons in the school hall, despite being able to “taste the dust”. Decades later, Julia fell ill - one of 5,000 asbestos-related deaths in the UK each year. Meanwhile, a schoolteacher, who wanted to remain anonymous, is growing “paranoid” and even “scans the floor” every day before children come in for lessons. “It’s always going to be there” he said, lamenting that “it’s too expensive to deal with”. New installation of the cancer-causing material was banned years ago in the UK but it is still present in more than a million buildings, including three-quarters of schools. Teachers and campaigners want a UK wide programme to remove it from their buildings, which are deteriorating over time. The Health and Safety Executive government agency told 5 News: “There is no data to support claims of a higher risk profile in schools compared to other settings. “Great Britain does not require routine air sampling as little or no airborne asbestos fibres would be detected under normal circumstances. “Asbestos must be removed if it cannot be safely managed in place”.
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Mark your calendars! #GreatChristmasJumperDay is coming on Thurs 3 December! Enter our Christmas Jumper Competition! Categories include: 👥Best Dressed Team 🌟Most Creative Jumper 🐶Best Pet & Owner Combo! Full details here: mesothelioma.uk.com/great-ch…
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Our free Carers Course is back! A past participant, shared: “I have found the course very interesting and informative. It has been nice to make a connection with others." Explore the image to see what we’re covering each week & email [email protected] to join. #Carer
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In this podcast clip, Clare shares how she received her mesothelioma diagnosis, 16 months after first experiencing symptoms. Tune in at the end of the month to hear Clare and her son, Oli, discuss their journey as a family: ow.ly/SEij50ZYAUR #ForwardTogether
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Today, Parliament is debating plans to make asbestos compensation fairer for bereaved families. Sir Stephen Timms and @Mesouk discuss why ending lower compensation payments for dependants is the right thing to do. 🎥⬇️ #Mesothelioma #Asbestos #Fairness
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Our Patient and Carer Day brought our #mesothelioma community together to learn, share knowledge, connect and support one another💙 A huge thank you to everyone who attended, spoke at and sponsored the event. #PCD2026
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🎄Our new charity Christmas cards and lightly scented candle have arrived - perfect for sharing warmth with loved ones while supporting people affected by mesothelioma. ✨ Browse our Christmas shop at: ow.ly/8G2L50ZYAIG #ShopForGood #CharityChristmasCards #MakeADifference
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Did you watch the segment on Channel 5 News yesterday, where they discussed #asbestos in school buildings? We've joined members of the National Asbestos Taskforce in calling for urgent Government action on asbestos in schools across England. Read more at: ow.ly/uL9H50ZYvSu
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💙 It’s okay not to be okay. In this clip from Episode 3 of our #ForwardTogether podcast, Oli shares his experience of navigating life with his mum following her mesothelioma diagnosis. 🎙️ Coming later this month - find us on Spotify and Apple Podcasts. #MesotheliomaPodcast
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📣 Our October Mesothelioma Matters E-Bulletin is out now! 💙 Personal stories 📄 Mesothelioma research 🎥 Video from our Research Centre Read it here: ow.ly/4kAr50WeAW9 #Mesothelioma #MesoMatters
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We're incredibly proud to share that our recent BBC Radio 4 appeal has so far raised over £12,000! 🎉 A huge thank you to everyone who listened, donated, shared & helped to spread the word about #mesothelioma and the dangers of #asbestos. Listen back: ow.ly/lKim50ZWfRR
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If you or a loved one is living with #mesothelioma, or going through treatment, you may be more at risk of catching flu. A #fluvaccine could offer some extra protection this winter. You can talk to your GP or hospital team about getting vaccinated & help look after your health.
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Data submission open for British Mesothelioma Spotlight Audit - BriSMA will provide a snapshot of treatment practices and outcomes across the UK,. Trusts are invited to submit data for patients diagnosed between 1 April–31 July 2025. 📧 [email protected] 📞 0800 169 2409
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To everyone who has taken part in our Mesothelioma UK Lottery — thanks for your generosity. Every ticket sold helps fund our specialist nurses & crucial support. This Oct, you have a chance to win an Apple iPhone 18 Pro Max. Learn more: ow.ly/yRJK50ZV6lK #CharityLottery
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🎙️ We’re honoured to share the personal story of a family affected by #mesothelioma in Ep 3 of our #ForwardTogether Podcast - coming later this month. They’ll be chatting about their journey & the incredible fundraising they’ve done. 🎧 Episodes 1 & 2: mesothelioma.uk.com/podcast/
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Mesothelioma UK’s #GreatChristmasJumperDay is back!🧑‍🎄 On 3 Dec, dust off your best winter woolly and get into the festive spirit! With your help, people affected by #mesothelioma & their families will have a place to turn to. Start fundraising: ow.ly/b7Mb50ZUs0X
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October is #FreeWillsMonth 💙 A Will can help you protect the people, things and causes you care about. Our free Will writing service is available all year round to anyone touched by mesothelioma. Find out more: ow.ly/6tFN50ZUm5K #FreeWillsMonth #GiftsInWills
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Not everyone knows how it feels to care for someone living with #mesothelioma. Our Carers Hour is a place to talk to those who know exactly what it's like. Meetings take place at 2pm on Zoom on the 2nd Weds of the month. It's free to join💙 Email: [email protected]
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Patient & Carer Day is happening 💙 We’re delighted to come together with our mesothelioma community today. Among the informative talks is our Ambassador, Richard Blunt, speaking about policy work & external affairs activity across the UK. If you’re joining, share with #PCD26!
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