NASCIC has the mission to bring about unified achievements in research, care & policy by supporting efforts across the spinal cord injury community.
North America
Joined August 2018
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Today, 3:00 PM EST: SCI Connections Q3 webinar, PFDD Debrief: What We Heard and What Comes Next. Free, live on Zoom.
Jerrod Kerr and Ian Burkhart on what the SCI community told the FDA and what comes next. Still time to register.
nascic.org/sci-connections-w…
#SCI #PFDD #NASCIC
The SCI PFDD meeting may be over, but people living with SCI and caregivers can still make their voices heard by submitting comments to help shape a report that can inform FDA decisions, research priorities, and future treatments.
Deadline: October 30
scipfdd.org/comments
Under a week out: SCI Connections Q3 webinar, PFDD Debrief: What We Heard and What Comes Next. Oct 21, 3 PM EST. Free.
Over 400 people told the FDA what matters most about living with SCI. Jerrod Kerr and Ian Burkhart share what comes next.
nascic.org/sci-connections-w…
#SCI #PFDD
Registration is open: SCI Connections Q3 webinar, PFDD Debrief: What We Heard and What Comes Next. Wed, Oct 21, 3:00 PM EST. Free.
NASCIC's Jerrod Kerr and Ian Burkhart share what comes next.
nascic.org/sci-connections-w…
#SCI #PFDD
There’s still time to share your perspective from now until October 30th!
Missed the SCI PFDD Meeting?
Visit scipfdd.org to submit your comments or watch the recording.
#SCI #PatientVoice #PFDD #SpinalCordInjury #scicommunity
Brain tech is usually designed without the people it's meant to help. A Pitt study is changing that.
Seeking patients, caregivers, spouses & advocates for a 30-45 min Zoom interview. $50 gift card.
Contact Dr. Amy Flick: (412) 423-6051 or [email protected]
#Neurotech #BCI
North American Spinal Cord Injury Consortium retweeted
THANK YOU to our PFDD Partners for making Tuesday's meeting a success!
And to our SCI Community, thank you for sharing your perspectives and experiences. There's still time to share!
Visit scipfdd.org to watch the recording or submit your comments.
#SCI #PFDD
Mayo Clinic researchers are seeking adult volunteers living with a spinal cord injury to participate in a survey. 10–15 min online: mayoclinic.org/spine #SCI #Research
On @U2FP_CureSCI's CureCast, Ian Burkhart, past President of NASCIC, makes the case for the SCI community to take part in the first EL-PFDD meeting for spinal cord injury. Sept 29, 10 AM to 3 PM ET. Free and virtual. @scipfdd
nascic.org/generational-pfdd…
#NASCIC #SCIPFDD
September is Spinal Cord Injury (SCI) Awareness Month
Still to come:
Sept 18: free iBCI-CC public meeting registration closes.
Sept 29: the first Patient-Focused Drug Development meeting for SCI. The FDA listens. Free, virtual.
nascic.org/spinal-cord-injur…
#SCIAwarenessMonth
One week left. Registration for the 3rd Annual Meeting of the Implanted Brain-Computer Interface Collaborative Community (iBCI-CC) closes September 18. The meeting is October 16, 2026, the closing day of the #ACRM Annual Fall Conference at the Washington Hilton in Washington, DC.
Free to attend and open to anyone who registers, in person or by @Zoom. Virtual-only registration closes October 5. The agenda includes a regulatory science block with the #FDA and a keynote from Martha J. Morrell, MD. NASCIC is a charter member.
nascic.org/acrm-annual-fall-…
#iBCI
September 29: the first Externally-Led Patient-Focused Drug Development meeting for spinal cord injury. Free and virtual, 10 AM to 3 PM ET.
People with #SCI and care partners tell the #FDA what matters most.
nascic.org/sci-patient-focus…
#SCIPFDD #NASCIC
Living with SCI? Help shape future research 🧠
Share your experience with studies during your first year post-injury in this quick, anonymous 15-min survey. 18+, >1yr post-SCI, English speakers eligible.
👉 uthealth.questionpro.com/a/T…
#SCI #SpinalCordInjury #UTHealth
Volunteers needed! Drexel University is studying online group exercise vs. self-guided videos for people living with SCI. 18–75, SCI 1+ yr, wheelchair/mobility aid users — earn up to $200. All virtual. 📧 [email protected] #SpinalCordInjury #ResearchStudy
The future of SCI care should be shaped by people living with SCI.
What matters most to you? Your voice and experiences can help shape the future of SCI research and treatment.
📅 September 29
🔗 Register: scipfdd.org/register
Make your voice heard. Help spread the word.
New from PVA: a Clinical Practice Guideline on Outcomes Following Traumatic Spinal Cord Injury.
See all of PVA's CPGs 👇
pva.org/research-resources/p…
#SpinalCordInjury #Veterans #PVA
Two meetings, one week in Washington.
The 103rd ACRM Annual Fall Conference and EXPO is October 12 to 16, and it closes with the 3rd iBCI-CC Annual Meeting on Friday, October 16.
Full details: nascic.org/acrm-annual-fall-…
#SpinalCordInjury #ACRM2026 #NASCIC
Help shape the future of brain tech. University of Pittsburgh is running a co-design study on brain-computer interfaces — and they want input from patients, caregivers & families.
30-45 min Zoom call • $50 gift card • confidential
📧 [email protected]
📞 (412) 423-6051
North American Spinal Cord Injury Consortium retweeted
What role does FDA play in facilitating drug development?
A glimpse from our recent SCI PFDD webinar. Join us on Sept. 29 to continue the conversation and help advance patient-focused drug development for spinal cord injury.
🔗 Register: scipfdd.org/register
#SCIPFDD #SCI