National Down Syndrome Policy Group retweeted
We really did meet truly inspiring people who are committed to helping others changing lives and trying to keep people safe through loving care.
Thank you @PrideOfBritain for sharing such inspiring stories. Find out more on itv on Thursday at 8 pm
👏 Down’s Syndrome Lancashire took action!
Members used our Easy Read resources to write to their MPs about the delayed Down Syndrome Act guidance. 📮
Will your group be next?
ndspg.org/october-campaign/
#FourYearsStillWaiting #ActIntoAction
💗 Our voices. Our rights. Our future.
Our Advisory Group took their campaign to Downing Street.
Four years on, we're still waiting for the Down Syndrome Act guidance.
📩 Write to your MP:
ndspg.org/october-campaign/
#FourYearsStillWaiting #DownSyndromeAct
📮 Ben wrote to his MP about the Down Syndrome Act — and received a letter of support! 👏💗
Your voice matters too.
📖 Read
✍️ Sign if you agree
📮 Post
Get our Easy Read pack:
ndspg.org/october-campaign/
#FourYearsStillWaiting #ActIntoAction
A packed @APPGDS AGM! Fair Shot CIC shared how they’re supporting people with #DownSyndrome into work, while the @NDSPolicyGroup Advisory Group raised concerns over delays to the #DownSyndromeAct2022 Guidance. Great discussions & importantly, hearing directly from people with DS.
Four years ago, Cheshire families shared their views on the Down Syndrome Act.
They did their bit. The guidance is STILL not published.
📮 Write to your MP and demand action.
Get our Easy Read pack:
ndspg.org/october-campaign/
#FourYearsStillWaiting
Deeply moving account from Aaron John Huxter whose daughter Olivia-Grace died last year. Aaron says: “I’m sorry you never got to meet her” & “She was so incredible she deserves to be missed every day”
Our hearts go out to all who knew & loved Olivia-Grace bit.ly/4hF5GO8
Thank you Ben
Ben, one of our Advisory Group members, met his Local Authority Social Worker team today to talk about the Down Syndrome Act and why the guidance matters.
📮 You can take action too get our Easy Read MP pack from our website.
#FourYearsStillWaiting #ActIntoAction
📮 Make your voice heard this #DownSyndromeAwarenessMonth.
We’ve created an Easy Read pack to help people with Down syndrome write to their MP about the Down Syndrome Act.
📖 Read
✍️ Sign if you agree
📮 Post to your MP
pack info: ndspg.org/october-campaign/
#FourYearsStillWaiting
Exciting news! Emily has launched Down Syndrome Opportunities & Connections CIC, creating social opportunities & friendships for young people & adults with Down syndrome!
🎃 First event: Halloween Party, 30 October (15+).
dsoandco.co.uk
🎭 READY TO ACT? FREE acting workshops with industry pros for people with #DownSyndrome (18-30) in Portsmouth, Sheffield, Cheltenham & London! 🌟
🎬 Build skills & confidence
🤝 Meet performers
⭐ Gain experience
🔥 Places filling fast!
📩 Sign up: Contact Tibo below!
October is #DownSyndromeAwarenessMonth 💙💛
The Down Syndrome Act became law in 2022. Four years later, we’re still waiting for the guidance.
Help make your voice heard.
📩 Write to your MP using our Easy Read pack:
ndspg.org/october-campaign/
#FourYearsStillWaiting
Becky has written to the PM and her own MP about the long delay to the Down Syndrome Act guidance. 💜 Participation may look different for everyone, but every voice should have a way to be heard. 👏
Ben’s been busy adding his voice to our campaign, writing to @andyburnham PM & his MP about the delay in publishing Down Syndrome Act guidance.
Participation may look different for everyone but people with Down syndrome should have real opportunities to make their views heard.
People with Down syndrome and other learning disabilities continue to face unacceptable health inequalities. This has to change.” xitter.cf/itvnews/status/2100816…
NHS 'unable to treat and look after' people with learning disabilities, says care commission chair
The NHS is failing people with learning disabilities and hospitals are “unable to sufficiently treat and look after” them, says Baroness Louise Casey, the head of the government’s commission into adult social care, as ITV News Investigations Editor @DanielHewittITV reports
itv.com/news/2026-09-17/case…
Huge well done to our friends at Cornwall Down Syndrome Advisory Group, HIGHLY COMMENDED in the BBC Cornwall Make a Difference Community Group Award last week! 👏
Wonderful to see the work of this brilliant group recognised ❤️
Congratulations to everyone involved! 🎉
Black Child Down Syndrome Project created to increase visibility & build community for Black children with Down syndrome & their families has been nominated for @BBC Make A Difference award.
🔗 bbc.co.uk/news/
NDSPG was quoted @Independent’s coverage of yesterday’s assisted dying debate.
Dame Karen Bradley MP:
“NDSPG put it best: this Bill hopes for the best rather than prepares for the worst.”
Our community’s concerns were heard in Parliament.
independent.co.uk/news/uk/ho… “
Theo, who has Down syndrome, turned his 21-bag litter-picking challenge into a fundraiser for @DownCheshire — and he’s now a finalist in the JustGiving Awards 2026! 💙💛
Vote by 13 September:
page.justgiving.com/justgivi…
Watch his story:
youtu.be/x5tMUj__tSg
The Assisted Dying Bill has been voted down today. We welcome the decision to put safety first, & we too thank all who listened to the concerns raised.
“I feel joy in my heart.
Thank you to all the MPs
and members of the
House of Lords who heard us.” @tommyjessop
Huge thanks to our advocates & campaigners for their tireless work & determination. And to @nmdacosta, thank you for keeping everyone informed with accurate, timely updates & bringing so many voices together. A tremendous collective effort, and one that mattered.