The BLOOM clinical study is researching to see if an investigational medicine, MRM-3379, can safely and effectively help improve certain symptoms of Fragile X syndrome. Talk to your healthcare provider about participating. hubs.ly/Q04mvNf30

We are proud to announce that the NFXF has been awarded a $1 million grant from the Centers for Disease Control and Prevention for a new FORWARD initiative titled, “Component C: Creating Resources, Support, and Strengthening Capacity for People with FXS.” hubs.ly/Q04z33Jg0

What does the Texas v. Kennedy ruling mean for community living and Medicaid HCBS? Learn what has/has not changed, and why both federal and state advocacy matter. Questions about the NFXF’s advocacy work? Email [email protected]. hubs.ly/Q04ywTCP0

If you are the caregiver of a child with an IDD aged 3-17, you may be able to participate in a study exploring stress & coping 💚 Participation involves one confidential interview ~45–60 minutes 📞💻 For more info, please contact 👇 Ella Cullen, RN, MSN // [email protected]

The BLOOM clinical study is researching to see if an investigational medicine, MRM-3379, can safely and effectively help improve certain symptoms of Fragile X syndrome. Talk to your healthcare provider about participating. hubs.ly/Q04mvSD-0

Congratulations to Laurie Bridges and Kara Frech, recipients of our 2026 Special Recognition Award! Thank you both for your extraordinary leadership and all you've done for the Fragile X community. Congratulations on this well-deserved recognition! 💙

Congratulations to the University of South Carolina Fragile X Collaborative, recipient of the 2026 NFXF Research Award! Their dedication to scientific discovery and advocacy is helping shape the future of Fragile X research and improve care for generations to come.

Congratulations to Dr. Flora Tassone, recipient of the 2026 Hagerman Award! Dr. Tassone's groundbreaking work in molecular research and biomarkers has significantly advanced our understanding of the Fragile X premutation and FXTAS.

The BLOOM clinical study is researching to see if an investigational medicine, MRM-3379, can safely and effectively help improve certain symptoms of Fragile X syndrome. Talk to your healthcare provider about participating. hubs.ly/Q04mvKpL0

Congratulations to Marcella Almeida, recipient of the 2026 NFXF Community Impact Award. After three of her four children were diagnosed with Fragile X syndrome, Marcella turned their journey into action. Thank you, Marcella, for your commitment to helping others. 💙

Congratulations to Joey Christoff, recipient of the 2026 Al & Melissa Blount Lifetime Achievement Award! From serving as NFXF Board President to hosting the annual Fishing for a Cure fundraiser and raising awareness in countless creative ways, his impact has been extraordinary.

Congratulations to Dr. Deborah Sara Barbouth, recipient of the 2026 NFXF Clinical Award! Her holistic approach to care and her commitment to expanding services continue to make a meaningful difference for families across the Fragile X community. Congratulations! 💙

📢 Are you living w/ the Fragile X premutation? Help researchers improve education & awareness about FXTAS by taking a short survey. Your feedback will help identify knowledge gaps and shape future educational resources. 📝 Take the survey here: hubs.ly/Q04qzG-30

The BLOOM clinical study is researching to see if an investigational medicine, MRM-3379, can safely and effectively help improve certain symptoms of Fragile X syndrome. Talk to your healthcare provider about participating. hubs.ly/Q04mwqbs0

The BLOOM clinical study is researching to see if an investigational medicine, MRM-3379, can safely and effectively help improve certain symptoms of Fragile X syndrome. Talk to your healthcare provider about participating. hubs.ly/Q04mvLdH0

📣 Adult siblings needed for research! Do you have a sibling with Fragile X syndrome or Down Syndrome? Take a quick online survey to help researchers who are investigating how siblings prepare for future caregiving as parents age. 🔗 Take the survey: hubs.ly/Q04lFJcL0

🔔 Looking for males ages 12–19 with FXS for at-home sleep study! Participation includes: • At-home sleep headband for 3 nights • Questionnaires & sleep diaries • 2 *optional* in-person visits More info: 🖱️ hubs.ly/Q04jwbQ-0 📧 [email protected]

If you are a man 50+ w/ the premutation (no FXTAS) — or if you know one — researchers at the MIND Institute & University of Maryland have a message on getting involved in crucial research. 🎥 Watch this video to learn more & help move research forward! hubs.ly/Q04hXc8R0

Meet the 2026 Jr. Investigator Awardees 💚These rising researchers are helping shape the future of Fragile X research. We can’t wait to see them present their work at the 20th NFXF International Fragile X Conference this July! hubs.ly/Q04hnrxT0

Shionogi has released updates from the EXPERIENCE clinical trials for Fragile X. Read the full update 👉 fragilex.org/research-fx/upd… Join @NFXF, @FRAXA and @Shionogi for a community Q&A: 📷 May 19, 2026 | 12 PM ET Register & submit your questions here 📷hubs.ly/Q04gr5Xc0