We are an alliance of neurological charities committed to improving neurological services for those living in Scotland
Joined September 2020
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X, it's been a blast, but it's time for us to move to a more representative, inclusive and straightforward platform. We'll keep an eye on this account, but for more up to date info, you'll find us on Bluesky: @neuroalscotland.bsky.social
How does living with a neurological condition impact the way you live? Anything from balance, movement and co-ordination to difficulties with speech and swallow. Find out more with our factsheet here: scottishneurological.org.uk/…
This #BrainAwarenessWeek 10 - 16 March 2025, we are joining with neurological alliances across the UK, @NeuroAlliance, @NeuroWales @NINCA_NI calling for greater investment into research investigating neurological conditions. Keep an eye out for our posts! #InvestinNeuroResearch
We are delighted that @LeuchieHouse has joined us! Leuchie House is a national respite charity providing transformational holidays for people living with neurological conditions such as MS, MND, stroke & Parkinson's. Find out more here: leuchiehouse.org.uk
Also joining us as new members: @FasdhubScotland an organisation that supports parents and carers of children and young people who have, or may been affected by prenatal exposure to alcohol. Find out more about their work on: faast.ed.ac.uk/fasd-hub-scot…
We are delighted to welcome @CMTUnitedKdom to NAoS. They are a charity that works to support those living with Charcot-Marie-Tooth disease, a neurological condition that damages peripheral nerves. Welcome to the fold!
Today's the day - we're looking forward to welcoming @Edelharris OBE, Chair of the Independent Review of Adult Disability Payment to our first policy group meeting of the year. We will discuss the interim report and how to ensure the new benefits system works for everyone.
The Scottish Government has scrapped the #NCS bill after 2.5 years and a cost of £30m. NAoS is frustrated that social care reform will not happen to the extent needed. We look forward to seeing Anne's Law, and the right to breaks for unpaid carers being implemented with urgency.
We are delighted to welcome @NervetumoursUK to the NAoS family. Nerve Tumours UK is the leading voice for people living with Neurofibromatosis Type 1, NF2-related-Schwannomatosis & Schwannomatosis in the UK and we are delighted that they have joined us
Members, join us at our first meeting of 2025, to share your charity's priorities, meet other members and find out what we have planned for this year.
A big thank you to everyone we have collaborated with, learnt from and met with this year - we have loved every minute and look forward to more engagement, collaboration and raising awareness of neurological conditions in 2025 🎅
Neurological Alliance of Scotland retweeted
What a day! Our Director of Fundraising & Comms, Dayna, joined Ben & Sarah on the famous red sofa to raise awareness of #Dystonia. Thank you to Teresa for sharing her story & to Ben & the BBC team for this amazing opportunity! Watch from 1:20:01-1:30:37 - bbc.co.uk/iplayer/episode/m0…
Neurological Alliance of Scotland retweeted
Earlier this year, NICE approved dabrafenib and trametinib to treat childhood gliomas with a BRAF V600E mutation—a step-change for the brain tumour community.
This kinder treatment, which can be administered at home, will benefit children in England, Scotland and Wales.
We are pleased to be part of this important new UK Neuro Forum. The forum has been set up to promote collaboration across the UK to seek solutions for the concerns and challenges faced by the neurological community.
BREAKING: Government launches the first-ever UK-wide Neuro Forum, following the #BackThe1in6 campaign, which was supported by 19,000 people & 100 organisations. When we work together, we CAN achieve real change. Thank you. Learn more bit.ly/417Ces7 #BackThe1in6
This commitment from the UK Government comes at a time of uncertainty for people living with neurological conditions in Scotland as we approach the end of the Neurological Framework for Action 2020 - 2025.
We hope that the @scotgov commit to participating fully in the Neuro Forum and announce how they plan to allocate funding and resources to support Neurological services and support.
Neurological Alliance of Scotland retweeted
In 2022 carers in Scotland saved the public purse £15.9 billion. This is almost equivalent to the Scottish NHS budget (£17.8 billion) in the same year.
It's an astonishing figure, but not one that any of us should be proud of...
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ALT Poster which reads, £15.9bn - the value of unpaid caring in Scotland.
Neurological Alliance of Scotland retweeted
Thrilled that our @NHSGrampian & @MigraineTrust project "Partnering with Pharmacy Teams to Improve Migraine Management" won the ‘Innovations in Neurology’ category at the Scottish Healthcare Awards 2024. So proud of the team. A truly change making partnership #SHA2024 #Migraine
Thanks to Cllr Paul Kelly, Health and Social Care Spokesman for @COSLA for coming along to our members' meeting today to talk about the national care service and the importance of seeing ambition meaningfully translated into action through direct investment.
