Based at @bristoluni, a group of professionals conducting palliative and end-of-life care research. Coordinated by @C_A_Chamberlain, @Lucy_Selman and @drpoco
University of Bristol
Joined June 2017
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Bristol Palliative and End of Life Care Research retweeted
“Ultimately, AI is not a magic box; it is simply a tool”
AI is increasing being used in palliative care. But we haven’t yet got to grips with how and when it could and should be used. Dr Amara Nwosu examines some of the pitfalls and possibilities in our latest blog.
Read more 👉mariecurie.org.uk/blog/poten…
ALT An image of 5 Marie Curie staff members around laptops and notes.
Bristol Palliative and End of Life Care Research retweeted
🚨Calling researchers - Submissions for abstracts and spotlight sessions for the Marie Curie Research into Practice Conference 2027 are now open!
📋We’re seeking submissions that align with priority areas identified by the priority setting partnership for palliative and end of life care with the James Lind Alliance and/or areas in UK nation health policy priorities relevant to palliative and end of life care.
To fit with the purpose of the conference, submissions should also focus on the implementation of research in practice, showing the latest research impact across palliative and end of life care.
More details and how to submit can be found on our website 👉 mariecurie.org.uk/research-a…
ALT A yellow and blue banner with the text "The Marie Curie Research into Practice conference 2027. Week Commencing 22 February" and a Yellow daffodil as the Marie Curie logo.
Bristol Palliative and End of Life Care Research retweeted
Marie Curie-funded research shows 1 in 3 people who are entitled to benefits at end of life are missing out.
The Special Rules for End of Life allows terminally ill people to quickly access social security support via an SR1 form, given when a clinician judges a person likely has less than a year to live.
The findings, from research at King's College London, show in England and Wales 1 in 3 people who die from a chronic illness (around 120,000 each year) do not claim despite being entitled. The research also shows take up varies dependent on chronic condition, is lower for working-age people, and higher in the most deprived populations.
Find out more👉 mariecurie.org.uk/document/s…
ALT A blue and yellow image with daffodil icons with the text "1 in 3 people miss out on benefits they are eligible for at end of life in England and Wales. That's 120,000 people each year"
Bristol Palliative and End of Life Care Research retweeted
Have you seen our guide for professionals to support parents and carers with a life-limiting illness have conversations with their children?
Developed in partnership with Ulster University and King's College London, the guide provides tips and examples to help you navigate these conversations.
The tips are based on interviews with professionals, parents, and children from diverse backgrounds.
Read the guide in English - mariecurie.org.uk/document/h…
In Welsh - mariecurie.org.uk/document/d…
ALT An image of a man and boy, above the words "A guide for professionals. 10 tips to help parents and carers with a life limiting illness have conversations with their children"
Bristol Palliative and End of Life Care Research retweeted
Today, unscheduled and emergency care is the norm for people at the end of life.
New evidence from Northern Ireland shows how often care happens in crisis 🧵👇
Bristol Palliative and End of Life Care Research retweeted
Our digital lives after death: the elephant in the room we’re not addressing.
In this blog, Sarah Stanley, Marie Curie Research Nurse, discusses the importance of including Digital Legacy in Advance Care Planning, the focus of her PhD.
Her research uncovers how our digital lives we leave behind after we die can become a source of stress when unplanned for, but also a source of comfort and connection when addressed.
Read more 👉mariecurie.org.uk/blog/digit…
ALT An image of a person sitting at a desk at their computer.
Bristol Palliative and End of Life Care Research retweeted
Now Open! Submit an expression of interest by 17 July 👇
Introducing our next Research Grants Scheme, Opening 2 June – Care close to home, in and out of hours
💡Our new call for research seeks to fund projects of up to £150K. The theme closely aligns with:
👉Marie Curie’s mission to close the gap in end of life care.
👉Evidence gaps and research priorities identified by people with lived and professional experience.
👉The UK Government’s focus of shifting the balance of care from hospital to community and providing care at all hours.
Researchers, find out more and submit your expression of interest from 2 June to 17 July - mariecurie.org.uk/research-a…
ALT A yellow Daffodil saying: Announcing the Marie Curie Research Grants Scheme 2026, Care close to home, in and out of hours
Bristol Palliative and End of Life Care Research retweeted
Exploring barriers to and experiences of palliative and end-of-life care for people living with HIV.
Thanks to modern medicine, many people living with HIV now have life expectancies similar to the general population. This comes with a higher likelihood of age-related conditions, including terminal and life-limiting illnesses. The need for high quality, person-centred palliative and end of life care is becoming increasingly important.
With @THTorguk, we carried out a survey to understand the barriers to and experiences of palliative and end of life care in this group. Findings cover misconceptions of palliative care, how HIV status and stigma affect access to healthcare, and top priorities for end of life, including:
(1) being in a calm atmosphere
(2) being free of pain and
(3) support with psychological well-being.
Read now - bmjopen.bmj.com/content/16/5…
ALT An image of the words “I don’t want other people to write my history for me”: exploring what’s important to people living with HIV towards the end of their lives
Bristol Palliative and End of Life Care Research retweeted
BOOK YOUR FREE PLACE
PEOLC Research Network Meeting, Tue 30 June, 1.15-5.00pm, in-person at University of Bristol. We have another great line-up of speakers @Lucy_Selman @drpoco @shaun_qureshi @JennyKitzinger @NM_Bradley @skgretton @AlisonLlewellyn
forms.office.com/pages/respo…
Bristol Palliative and End of Life Care Research retweeted
Introducing our next Research Grants Scheme, Opening 2 June – Care close to home, in and out of hours
💡Our new call for research seeks to fund projects of up to £150K. The theme closely aligns with:
👉Marie Curie’s mission to close the gap in end of life care.
👉Evidence gaps and research priorities identified by people with lived and professional experience.
👉The UK Government’s focus of shifting the balance of care from hospital to community and providing care at all hours.
Researchers, find out more and submit your expression of interest from 2 June to 17 July - mariecurie.org.uk/research-a…
ALT A yellow Daffodil saying: Announcing the Marie Curie Research Grants Scheme 2026, Care close to home, in and out of hours
Bristol Palliative and End of Life Care Research retweeted
Patient Perspectives: Integrated Palliative Care for Heart Failure Services
In an NIHR-funded, Marie Curie supported research project at Queen's University Belfast, researchers set out to understand gaps in palliative care integration for heart failure services.
Two project patient and public involvement representatives have authored thought-provoking blogs on their experiences; experiences that have helped shape the project throughout.
Read them here:
palliatheartsynthesis.co.uk/…
palliatheartsynthesis.co.uk/…
Bristol Palliative and End of Life Care Research retweeted
📱Digital Legacy, the online content and digital media a person leaves behind when they die, is an increasingly important part of palliative care and care planning.
📰Read the newly published review of literature exploring healthcare professionals, patients
receiving palliative care, caregivers and bereaved people’s experiences of including digital legacy in planning for the end of life.
✨This identifies key research gaps including cultural, generational, practical and financial factors related to
digital legacy.
Access the paper from the link below👇🏻
📣 New paper alert 📣
Our scoping review paper focussed on #DigitalLegacy in #PalliativeCare is now published open access 👇🏻
spcare.bmj.com/content/early…
@LJMU @LJMU_IHR @MarieCurieEOLC @mariecurieuk @K_Higginbotham1 @cristinavas @LloydMari @carolinemogan @jujuspadger @amaranwosu
Bristol Palliative and End of Life Care Research retweeted
Join Natashe Dekker at the Centre for Death and Society @ University of Bath, UK Beatrice Godwin Memorial Lecture as part of the National upcoming #DyingMatters week on:
Aspiring a good death with dementia
6th May 6-7pm BST, online, free!
eventbrite.co.uk/e/beatrice-…
Bristol Palliative and End of Life Care Research retweeted
⭐️Death and Power⭐️
The 2026 CDAS Annual Conference is now LIVE
100 speakers with two free evening events
17-19 June all online
Join us!
bath.ac.uk/events/centre-for…
Bristol Palliative and End of Life Care Research retweeted
MAIN Webinar - Supporting Wellbeing at Work: Experiences of Staff Caring for People with Advanced Illness.
Thursday 4 June, 2-3:30pm
The next MAIN webinar explores the wellbeing of staff who care for people with advanced illness, discussing current support strategies and specific support needs.
Register here - events.teams.microsoft.com/e…
ALT An artistic image of caregiving.
Bristol Palliative and End of Life Care Research retweeted
Join us at Good Grief Hastings, 22-25 May. The festival will explore how creativity, conversation and community can help people support one another through grief and loss.
18hours.org.uk/good-grief-fe…
@Lucy_Selman @BarbaraMezes @MobCommAssets
Bristol Palliative and End of Life Care Research retweeted
New online course: Grief & Bereavement in Primary Care, specifically designed for GPs & primary care professionals who want to enhance their knowledge & skills in supporting bereaved patients & navigating conversations about grief, death & end of life goodgrieffest.com/grief-in-p…
Bristol Palliative and End of Life Care Research retweeted
🚨The Marie Curie Research into Practice Conference kicks off next week!🚨
Register now for our online, free and international conference and browse and bookmark sessions of interest.
Join us to hear from expert speakers on a range of research topics spanning palliative and end of life care and how this influences practice.
👉From loneliness and learning disability
👉To motor neurone disease and dementia
👉And workforce support, and more.
💡There’s something for everyone.
⏰On demand - catch up on sessions at a time that suits you.
🏠A highlight is our Men’s Sheds in Hospices opening session, Monday 10am, facilitated by Professor Mark Taubert.
Don’t miss out. Register now - events.zoom.us/ev/Aq_RYaxKTT…
ALT A banner of The Marie Curie Research into Practice conference 2026. Monday 23 to Thursday 26 February.
Bristol Palliative and End of Life Care Research retweeted
Join us tomorrow, 12-1pm 👇
💡Learn more about the NIHR JLA Rolling Funding Calls with a focus on Palliative and End of Life Care research in our upcoming webinar, 10 February 12-1pm.
Register Here - events.teams.microsoft.com/e…
In February 2025, a refresh of the palliative and end of life care research priorities, guided by people with lived and professional experience, was launched. Recognising the importance of these priorities, the NIHR have a rolling call of funding which they invite research proposals related to selected priorities.
Join speakers from the NIHR and Marie Curie who will outline the process behind the top 24 research priorities, discuss why each priority was selected by the NIHR and provide an overview of the NIHR programmes participating in the rolling call. There will be plenty of time for discussion about the priorities and the research funding process.
Bristol Palliative and End of Life Care Research retweeted
February marks the start of LGBTQ+ History Month.
We'll be resharing some features from last year, starting off with an interview with Dr Katherine Bristowe into reshaping the future of palliative care so that it is inclusive for LGBTQ+ people.
Read here kcl.ac.uk/lgbt-history-month…
