Regulators need to hear the real, day-to-day impact from patients & families. The #PSCcommunity must stand together to share the reality of #PSC and urgent need for safe treatments that work. Open globally (16+) to patients, carers, and loved ones. ➡️ buff.ly/qrprQCK

Behind every patient is often a caregiver navigating their own emotional journey. Sharon from PSC Partners in the USA, highlights the psychosocial impact of PSC on parents and carers, and the importance of feeling supported, understood & encouraged in their roles. #GlobalPSCDay

Living with PSC as a young person comes with challenges that are not always visible. Chayenne is a young patient advocate from Belgium, who shares the challenges of living with a chronic illness at a young age. #PSCGlobalDay2026 #PSCawareness #YoungPatients #PatientVoices #ELPA

Life before and after transplantation: a journey of challenges, resilience & hope. From Italy, Francesca joins the global voices of #PSCGlobalDay2026, sharing her experience as a parent accompanying her son through not one, but two transplant journeys. #LetsBeatPSC

Different countries. Different journeys. One global voice for PSC.🌍 What does it really mean to live with PSC? As we head toward #PSCGlobalDay2026, we're putting patients and their lived experiences at the heart of the conversation. #LetsBeatPSC #PSCawareness #ELPA

MAJOR BREAKTHROUGH: Prof Trivedi announces VITALITY, a landmark international multi-centre trial evaluating oral #vancomycin in #PSCIBD! Funded by @LifeArc1, #PSCSupport & Children’s PSC Foundation and co-designed WITH patients! Watch & read more: pscsupport.org.uk/ #PSC

Can you navigate your PSC care with confidence? Do you know what high-quality, guideline-backed PSC care looks like? Join us LIVE this Thurs at 7pm with Dr Yeoman, as he breaks down clinical guidelines into clear language and answers yours questions. buff.ly/7RG52qH

Every day, we move closer to a world without PSC. Our mission remains constant: we will never stop searching for effective treatments and, one day, a cure. No one should face PSC alone. Learn more: buff.ly/6Qi3Zrw#LetsBeatPSC

"It's a good start!" 28-week VISTAS trial data shows Volixibat significantly improves PSC itch & reduces sleep disturbance. Dr Joshi shares the key takeaways from #BASL2026. We need more data, but this is an encouraging step forward! 👉️ pscsupport.org.uk/vistas-tri… #LetsBeatPSC

Whether your Sunday involves running 26.2 miles (like #TeamPSCSupport taking on Amsterdam Marathon today) or balancing a stroopwafel on top of a hot coffee to get that caramel to melt just right, we appreciate everyone in our community running, spectating & raising awareness.

DON’T GOOGLE THIS DISEASE! Peter told his family not to search his PSC diagnosis, so of course his sister Bethan Googled everything. That led her to PSC Support & information about living donation. She later donated part of her liver to Peter. Full story: buff.ly/RmJnqk2

Because PSC is a rare, often invisible, autoimmune liver disease, explaining it to friends, family, or colleagues can feel exhausting. We want to make those conversations easier. Learn more ➡️ buff.ly/hUKnRTq #PSCSupport #RareDiseaseAwareness #LetsBeatPSC

From liver transplant surgery to a half marathon finish line in 365 days! Gemma ran for #TeamPSCSupport exactly one year after receiving her life-saving liver transplant. A triumph of personal determination and the incredible gift of organ donation. #OrganDonation #LetsBeatPSC

Join us for an Ask the Expert session with Dr Yeoman as he breaks down clinical guidelines into plain language. Learn what standard care involves, from monitoring to making the most of your medical appointments, and get your questions answered. 👉 us06web.zoom.us/webinar/regi…

How often does #PSC return after a liver transplant? Dr Rodrigo Motta's systematic review of 29 studies (4,682 patients) found an estimated incidence of recurrence was 26.04 cases per 1,000 person-years. 👉️ Lay summary and possible risk factors: pscsupport.org.uk/psc-recurr…

Tickets are going FAST for our London Information Day on Sat, 5th Dec! Join us at The Cumberland Hotel, Marble Arch for expert talks, Q&As & community connection. Free to attend, but spaces are limited! 👇 🎟️ Register now: eventbrite.co.uk/e/psc-suppo… #LetsBeatPSC #PSCSupport

If you’re going to run a marathon, Milan seems like a pretty incredible place to do it! Join #TeamPSCSupport and raise crucial funds for #PSCresearch, patient resources, and global advocacy. 👉️ buff.ly/yemzd3M or email [email protected] #LetsBeatPSC

A milestone for #TeamPSCSupport this Sunday! 34 runners are representing us across the #RoyalParksHalf & #AmsterdamHalf, our largest single-day team EVER! From researchers & patients to family, friends & corporate teams, our community shows up BIG. Good luck! #LetsBeatPSC

#PSC is complex enough - adding #IBD into the mix introduces even more challenges. In this clip from our latest Ask the Expert, Dr. Peter Rimmer shares how he helps PSC-IBD patients understand all their options. Full video & playlist: buff.ly/qY72Rjh #PSCSupport #PSCIBD

A huge THANK YOU to Vicki, who is stepping down after years as a volunteer FB Group moderator! Her dedication & knowledge helped hundreds of patients navigate PSC & find vital information. We couldn't manage our community without amazing volunteers like Vicki. #ThankyouThursday

It’s #BASL2026 and we're on the ground all week! Why are we here? To fly the PSC flag: building relationships with clinicians & researchers to ensure the patient voice is impossible to ignore. Watch this space & subscribe to stay in the loop: buff.ly/BYvqkzi #LetsBeatPSC