@PatientBps

We are the Expert Patient & Carer Committee of The British Pain Society & endeavour to ensure our collective voice is heard throughout the work of the society.

 United Kingdom
britishpainsociety.org/
Joined October 2020
  • Tweets2.8K
  • Following1.9K
  • Followers1.6K
59Media
The @ROHNHSFT have a great resource for patients & their families on Understanding Chronic Pain. It was developed in conjunction with organisations & pain patients & their families. You can watch their video👇 roh.nhs.uk/services-informat…
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The Patient Voice of The BPS retweeted
IASP
@IASPpainSep 2
Better pain care begins with better understanding. Explore neuropathic pain through the 2026 IASP Global Year, including its impact, diagnosis, and treatment, psychosocial factors & research priorities. bit.ly/4hrJjMp #PainAwarenessMonth #GlobalYear2026
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The Patient Voice of The BPS retweeted
Pain Association@PainAssocScotSep 1
“But they haven’t found anything wrong…” Not having a diagnosis can be incredibly frustrating — but it doesn’t make your pain any less real. Your experience matters. Your pain matters. You deserve support, even without a label. #ChronicPain #PainAwarenessMonth2026
Graphic with a purple background featuring text at the top that reads, "Chronic pain- is associated with many conditions but can also be experienced in the absence of a diagnosis." In the center, a woman sits on a sofa looking thoughtfully toward the window, alongside text that reads "Chronic pain. SOMETIMES THERE'S NO DIAGNOSIS. The pain is real. Even without a label." Four icons with text below them read "No clear answers", "No diagnosis doesn't mean it's not real", "Your experience is valid", and "You deserve understanding and support," followed by a banner saying "No diagnosis. Still pain. Always real." At the bottom is the logo for "Pain Association Scotland."

ALT Graphic with a purple background featuring text at the top that reads, "Chronic pain- is associated with many conditions but can also be experienced in the absence of a diagnosis." In the center, a woman sits on a sofa looking thoughtfully toward the window, alongside text that reads "Chronic pain. SOMETIMES THERE'S NO DIAGNOSIS. The pain is real. Even without a label." Four icons with text below them read "No clear answers", "No diagnosis doesn't mean it's not real", "Your experience is valid", and "You deserve understanding and support," followed by a banner saying "No diagnosis. Still pain. Always real." At the bottom is the logo for "Pain Association Scotland."

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The Patient Voice of The BPS retweeted
NHS
@NHSukJun 25
There’s a high risk of heat exhaustion or heatstroke during hot weather. Follow these steps to help cool someone down. Learn more – including when to get help – on the NHS website.

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The Patient Voice of The BPS retweeted
Arthritis UK@arthritisukorgJun 18
Whatever form of #arthritis you are managing, flare-ups can be difficult to deal with. Joint pain, swelling, fatigue and stiffness may strike suddenly and without any apparent trigger. Find out more about understanding flare-ups: arthritis-uk.org/news/2024/d…
Raspberry background with the text "Managing flare-ups" in white and lime.

ALT Raspberry background with the text "Managing flare-ups" in white and lime.

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The Patient Voice of The BPS retweeted
Getting It Right First Time (GIRFT)@NHSGIRFTMay 26
🆕Best practice tool for primary care. Interactive, one‑page ‘poster’ to support assessment & management of neck & back pain, inc. red flags, pain advice, videos & referral guidance. Read more/bookmark👉ow.ly/afKC50YT7p3 #PrimaryCare #MSK #SpinalPain @PandaSurgeon
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Take a look at our latest funding and development opportunities below 👇 More opportunities are available on our website. Search for your future funding here: nihr.ac.uk/funding-opportuni…
Funding: Our latest funding opportunities

ALT Funding: Our latest funding opportunities

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The Patient Voice of The BPS retweeted
Pain Association@PainAssocScotMay 26
What is your window of tolerance? Are you managing your stress? Wondering how to get started with stress management? 📺bit.ly/4byZggK #ThoughtfulTuesday #Stress #ChronicPain @SoniaCottom
A picture of an open window looking towards outside.

ALT A picture of an open window looking towards outside.

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The Patient Voice of The BPS retweeted
NHS
@NHSukMay 27
5 common mistakes when using sunscreen ☀️ Take care when going out in the sun and don’t forget your sunscreen. Find more information on the NHS website.

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The Patient Voice of The BPS retweeted
Arthritis UK@arthritisukorgMay 27
For most people a diagnosis is a relief, because they finally have an answer. With a diagnosis, you can begin to understand and educate yourself, which can help you to feel more in control. Find out more: arthritis-uk.org/policy-and-… #ArthritisAwarenessMonth
Image with a maroon background featuring the text: "A diagnosis helped me feel like I wasn’t going mad." Below the quote, it says "Lived experience workshop participant" in smaller text. Bright yellow quotation marks are on the left and right sides of the quote.

ALT Image with a maroon background featuring the text: "A diagnosis helped me feel like I wasn’t going mad." Below the quote, it says "Lived experience workshop participant" in smaller text. Bright yellow quotation marks are on the left and right sides of the quote.

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The Patient Voice of The BPS retweeted
Bath Centre for Pain Services@BCPSBathMay 25
For over 25 years, BCPS has hosted the Pain Forum: a free, quarterly public lecture series sharing leading research and clinical insights on pain. Online via Microsoft Teams and open to all. Learn more & access past talks: 👉 bathcentreforpainservices.or… #BCPS #PainResearch
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The Patient Voice of The BPS retweeted
Getting It Right First Time (GIRFT)@NHSGIRFTMay 19
🔎New insights into chronic pain care from #GIRFT Join our webinar to hear key findings from 20 system-level reviews & explore how we can deliver more personalised, neighbourhood-based care. 🗓️27/5 - 12.30 Info/register👉ow.ly/G1ez50Z1KA6 @MakinsHelen #ChronicPain #NHS
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The Patient Voice of The BPS retweeted
Getting It Right First Time (GIRFT)@NHSGIRFTMay 21
🆕GIRFT guidance supports providers to reduce unnecessary pre-op Group & Save testing for hip & knee patients, helping cut delays, repeat testing and cancellations. ✅ Fewer tests ✅ Fewer visits ✅ More efficient pathways More⬇️: ow.ly/Oarh50Z2FAC @BritOrthopaedic #NHS
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The Patient Voice of The BPS retweeted
NHS
@NHSukMay 20
Cervical screening updates? They’re in the NHS App. Invitations, reminders and routine screening results are now in one place. Turn on notifications so you don’t miss important updates. If your result needs further follow-up, you’ll also be contacted directly by the NHS.

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The Patient Voice of The BPS retweeted
Pain Concern@PainConcernMay 18
Learn more about pain & what you can do for yourself at a free education session 🤝 A unique partnership with the NHS ⭐ Delivered by educators with lived experience 📍 Online & in-person 👉 painconcern.org.uk/pain-educ…
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The Patient Voice of The BPS retweeted
Pain Concern@PainConcernMay 19
📣 Drop-in session at Craigmillar Library 📆 Tues May 26th 🕝 Pop by any time 11:00–13:00 Not local to Craigmillar? Call our friendly helpline to find out how we can support – 0300 123 0789 @NHS_Lothian @Edinburgh_CC @EdinburghHSCP @VOCALEdinburgh @CraigmillarMed1
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The Patient Voice of The BPS retweeted
Pain Concern@PainConcernMay 20
It is unfortunately quite common for people in pain to be told by others that it must be ‘all in the mind’ More on pain dismissal, including the lived-experience perspective, in issue 90 of Pain Matters 👉 Read now pocketmags.com/pain-matters-…
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The Patient Voice of The BPS retweeted
Pain Concern@PainConcernApr 22
How do we honour neurological difference? 🗞️ Top tips for clinicians, common myths debunked, the lived-experience perspective... all in the latest Pain Matters magazine 👉 pocketmags.com/pain-matters-…
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The Patient Voice of The BPS retweeted
Pain Association@PainAssocScotApr 10
We are delighted to announce a new offering in partnership with the university of law, Leeds to provide monthly supported self management education for the community. Learn more: bit.ly/4cQ3tNP @VolActionLeeds @LeedsCommFound @InvolvingYou @LeedsMind
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The Patient Voice of The BPS retweeted
Pain Association@PainAssocScotApr 5
Chronic Pain? We Can Help. 🌟 Join our FREE Angus 5-week course starting Tue 7th April 2-4pm. Details ⬇️➡️ Register - bit.ly/4uiUbA6 @SoniaCottom @NHSTayside @AngusHSCP @volactionangus @AngusCarers @ScotCLWnetwork @AdviceCentre_NW @MonifiethMed @alissprogramme
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The Patient Voice of The BPS retweeted
Pain Association@PainAssocScotMar 27
Now I have coping skills I can use every day, for life. Just wish I’d found it sooner. Want to feel the same? Join our FREE April course in Angus 👉 bit.ly/4uiUbA6 #FeedbackFriday #ChronicPain #SelfManagement @SoniaCottom @ForAcademyMed @AngusCouncil @NHSTayside
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