@PatientView

Working with patient groups to improve healthcare. #patientcentricity #Pharma #reputation and most recent #PAGC19 Also see https://xitter.cf/t.co/cfM4vScsDg

 Europe
patient-view.com
Joined June 2009
  • Tweets4.4K
  • Following2.6K
  • Followers3.1K
231Media
Replying to @PatientView @EDCtweets @Action_Alliance @ZSInstitute @samhsagov @AASuicidology @afspnational @CDCInjury @NIMHgov
Please RT🙏 Wrote these lyrics for my husband (an OPP officer) after finding his brother who had taken his life 😔. Many nationally awarded artists provided the tracks. Hope to help others to #OpenUp & #Overcome during these trying times #SuicideAwareness youtu.be/ZK0h7rFGmcY
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Listening to lunchtime news discussion on "what is an acceptable covid death rate?" Not convinced this is the right question. I'd be more inclined to pitch it wider: eg "what's the longer term strategy for tackling covid?" What are you views, folks?
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Yes and this one reason why I have never liked the term "the patient voice" @dr_know
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But do hurry -- it closes in 30 minutes. xitter.cf/nusconnect/status/1295…
NUS Charity@nusconnect17 Aug 2020
Has coronavirus lockdown interfered with your regular healthcare? This @PatientsAssoc survey into effects of #COVID19 on access to healthcare closes today. They need to hear your thoughts to help them champion the needs of all patients. buff.ly/3h9rf7G
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.@PatientView is holding an online survey to determine the experience of patient organisations during #COVID19. Read more about the survey and how to get involved in our weekly round up of #HealthInformation news: pifonline.org.uk/news/weekly…
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LuCE webinar: What are clinical trials and how are they conducted? Watch it again here: bit.ly/3hPSGEu #lungcancer #manyfacesonevoice #patientadvocate #EUCancerPlan #LCSM #PAGC19 #clinicaltrials
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Replying to @RareDiseases
@RareDiseases Launches Financial Assistance Program for Rare Disease Community Members Impacted by COVID-19. For more information and to apply, please contact NORD by phone 203.242.0497, email at [email protected], or visit rarediseases.org.
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Thank you Carl, @billtu and @CEOProstateUK for sharing this message on @BBCBreakfast this morning 💙 It's so important men continue to look after their health at this time. Please read and share our information on coronavirus and prostate cancer: bit.ly/2Mpdu6Z
BBC Breakfast
@BBCBreakfast2 Jun 2020
Carl got his prostate #cancer diagnosed early enough for it to be treated. But @ProstateUK tell #BBCBreakfast they're concerned the pandemic might mean some people aren't getting checked out. ⤵️
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PatientView retweeted
ViiV Healthcare
@ViiVHC25 May 2020
We ranked number 1 for the seventh consecutive year in the latest @PatientView report! We are proud to be recognised! #ViiVProudMoment viivhealthcare.com/en-gb/med…
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International #cancer #patient groups have their say on #COVID19. ❗️Visit the @WECANadvocate COVID-19 page: 🆕wecanadvocate.eu/covid-19/ #Wecan #Coronavirus #PatientAdvocacy #Cancer #CML
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Danielle Vacher, présidente de l'Andar, évoque avec @WeArePatients notre démarche auprès des patients durant cette crise du Covid-19 👇
We Are Patients@WeArePatients27 Apr 2020
💬 « Nous apportons des informations rassurantes et surtout validées » 👉 Danielle, patiente atteinte de polyarthrite rhumatoïde, est présidente de @Asso_ANDAR 📲 Elle répond à vos questions sur l’arthrite rhumatoïde et le Covid sur WAP Covid Info 👉 wearepatients.com/vos-questi…
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PatientView retweeted
Yannis Natsis@YNatsis14 May 2020
Its only the beginning
Nikos Chrysoloras 🌴@nchrysoloras14 May 2020
Giving the U.S. priority access to a Sanofi vaccine against the new coronavirus would be “unacceptable,” the French government says bloomberg.com/news/articles/… via @bpolitics
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PatientView retweeted
PF Trust@PFTrust22 Apr 2020
Replying to @PatientView
@PatientView is gathering authoritative & trustworthy patient-group news on Covid-19. Their resource acts as a quick & easy means of allowing the public/patients/carers to find support to suit their needs: patientviewblog.com #PAGC19 #Lungs #PFTrust #pulmonaryfibrosis
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Cresce la reputazione dell'industria farmaceutica dal punto di vista dei pazienti. Secondo l'ultimo rapporto di @PatientView, che ha interpellato 1.850 associazioni di pazienti di tutto il mondo, Roche è al secondo posto tra 48 aziende del settore fedaiisf.it/la-reputazione-d…
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Wendy White calls for a more patient-centric approach to #genetherapy development with a deep dive into the pain points experienced by rare-disease patients including access, pricing and pipeline inefficiencies. @GlobalGenes ow.ly/oRC850ziFE6 Image: @PatientView
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PatientView retweeted
rob halkes@rohal15 Apr 2020
Given the levels of potential misinformation on Covid-19 @PatientView launched #PAGC19 [Patient Advocacy Group Covid-19] to gather authoritative and trustworthy patient-group news on Covid-19 under one banner. | #hcsm #hcsmeu #hcsmca #hcsmSA #hcsmAfrica #hcsmanz #hcsmLA #hcsmasia
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PatientView retweeted
GASCDO@globalscdorgs16 Apr 2020
Supporting @patientview Patient Advocacy Group COVID19 news. #PAGC19 #SCDGlobal #SickleCellDisease
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Nuestra querida @maria5sentidos realiza HOY un #webinar sobre #RRSS “Redes Sociales y #EnfermedadesRaras en tiempo de #Coronavirus: Familias, Asociaciones y Pacientes.” 🗓 31 de Marzo ⏰17:00 horas Haz clic para apuntarte: attendee.gotowebinar.com/reg… #FFPaciente #PAGC19 #EERR
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We know the #coronavirus is having a huge impact on people’s #bloodcancer treatment and more. Even if you don’t have #COVID19 or aren’t directly affected by #bloodcancer, please fill in this short, anonymous survey to tell us how you've been affected: ow.ly/5GKg50yXq5o
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See this initiative of our member in the #USA, the @LLSusa They encourage patients to send personal messages to the American Congress to quickly take additional, vital steps in subsequent legislation protecting #cancer #patients advocacy.lls.org/p/dia/actio… #PAGC19 #CML #COVID19
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