A non-profit focused on ending the stigma, low awareness, poor treatments and ill-understanding associated with #HPPD. Harm reduction + research

Joined August 2020
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Replying to @ROSIE_PSSD
Wouldn't hurt to include! Thank you
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Check out this really good in-depth questionnaire, which asks about what helps, accompanying conditions, patterns of drug use with HPPD, etc.!
Our new survey study of hallucinogen persisting perception disorder (HPPD) experiences is now open. We hope this will help us glean new insights about phenomenology, risk factors, and treatment options for this condition. Please share/RT! hopkinspsychedelic.org/hppds…
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"[V]eteran retreat centres like Esalen have traditionally said people should not make major life-decisions for at least two weeks after a spiritual retreat". The same applies also to self-diagnoses people come to, inc. HPPD. A lot of rabbit-holed false positives come to us
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Replying to @therealbrom
Psychedelic addiction, HPPD, depersonalisation-derealisation
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And this has to some extent to be an under-count, because it is subject to survivorship bias. A certain degree of health is required to keep going after a psychedelic crisis, let alone to fill in a survey.
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A cool reproduction of HPPD 'after image' effects and visual static
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Replying to @trpwolff
Good point, we should probably have said 'psychedelic users'. This refers to the sample of 2500 users in the 2011 study, the last one done on prevalence: pubmed.ncbi.nlm.nih.gov/2103…
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2. @ThomasKnuijver: an addiction physician who specialises in treating opioid addiction with ibogaine, and has published a case report of ibogaine-induced HPPD!
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1. @HolBjo: a Norwegian psychologist working in public health care and Psykolyse, a clinic specializing on psychedelic integration therapy.
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Two new members of the Directory this month. We host specialist professionals from around the world with previous experience and expertise in HPPD: a first for a condition that many people struggled to get diagnosed or adequately treated. perception.foundation/
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And what the hell is 'HERBAL XTC'? Sold from the Buddha's lap upstairs at the shop!
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Check out @EdPrideaux's talk on HPPD to the Psychedelic Society of the Netherlands... Live from an Amsterdam smart shop last month! youtube.com/watch?v=jj6xruYI…
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I'm glad it's feeling better. Indeed, the DR seems to be the worst feature for some people...
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Perception Restoration Foundation retweeted
#HPPD people!! I just got word of a research survey from @EdPrideaux and @PerceptionFdn! This is the most in-depth research questionnaire on HPPD and post-drug visual changes! This is imperative to getting better numbers; understanding the complexeties of HPPD! #VisualSnow
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Curious detail in a paper on Visual Snow Syndrome, of which HPPD has been variously deemed a subtype. Some interpret their 'HPPD' - as with voice-hearing and visions in the traditional psychosis spectrum - as being of mystical origin. The same can apply to VSS!
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Replying to @neurorebelde
That's not exhaustive of how addiction works at all. @EdPrideaux of the Foundation just wrote an article on psychedelic psychological dependency: ecstaticintegration.substack… Also, the study of the thread considered perceived risk in general, not just addiction.
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Replying to @HolBjo
Absolutely, yes. I think that the way is acknowledge the possibility of visual changes, but also acknowledging that most people with this are fine and it's normal. Would mean that catastrophising to HPPD would be less likely.
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