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Joyce Graff

@PowerfulPatient

President of Powerful Patient, Inc. and host of radio show/podcast http://t.co/EQPQPOzxcw. Patient advocate with rare and genetic diseases, US and worldwide.

 Boston, Massachusetts
powerfulpatient.org
Joined February 2009
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  • Followers162
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Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)Photo by Joyce Graff (@PowerfulPatient)
Online Auction Now Open! - mailchi.mp/e47ac225758b/onli… Includes tickets to the U.S. Open Golf Tournament in June #golf #usopengolf
Image from Joyce Graff (@PowerfulPatient)
Monday nig... gofundme.com/f/r7bbbt-brain-…
Update 10-... gofundme.com/f/r7bbbt-brain-…
U... gofundme.com/f/r7bbbt-brain-…
U... gofundme.com/f/r7bbbt-brain-…
I'm raising money for Brain surgery needed. Click to Donate: gf.me/u/2abwqd #GoFundMe
U... gofundme.com/f/r7bbbt-brain-…
Update on Asma's father: His visa has been approved! And he has been accepted into a research protocol which will cover the surgery! So the total cost of bringing him here for medical treatment has been reduced to $20,000. Please help. gofundme.com/f/r7bbbt-brain-…
Enjoying a chat among Kaelin, McDermott, and Choueri! #vhlwarriorcall2021
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We are working with a family in Algeria. The father now needs brain surgery for a rare tumor -- not available in Algeria. Sending him to Europe for treatment will cost more money than this family can possibly afford. Can you please help? gofund.me/1bfb3423
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Please join us! Register now at bit.ly/rotary-real-science Submit questions in advance at bit.ly/rotary-covid-question…
lnkd.in/eBvuwWE
Join in so Mark Zuckerberg hears us loud & clear: it’s time to #StopHateForProfit on @Facebook and act against hate & racism. Enough is enough. Cc @mozilla share.mozilla.org/659027174t
We are all in this together! Protect yourself, and your neighbors too.
Image from Joyce Graff (@PowerfulPatient)
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Sunny day in Boston, with a blanket of snow on the ground. Happy December!
Dr Lewis Au of Crick institute UK discussing side effects in combination therapies #ikcc2019 #Immunotherapy #kidneycancer
Image from Joyce Graff (@PowerfulPatient)
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Robin Martinez of @smart_patients on Managing Toxicities in Era of Combination Therapies for #kidneycancer - What patients wish their clinicians knew (practical tips) #IKCC2019
Image from IKCC Kidney Cancer (@IKCCorg)
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Great energy in the room around meeting unmet needs of long-term kidney cancer patients 5+ years. Let’s keep moving forward together! #IKCC2019 #livingwithandbeyondcancer @AberdeenAuu @uronauten
IKCC Kidney Cancer (@IKCCorg) profile pictureIKCC Kidney Cancer@IKCCorg6 Apr 2019
Day 3 of IKCC Global Summit: @SajMacLennan and Berit from @uronauten about unmet needs of long-term #kidneycancer patients 5+ years: financial toxicity (problems getting insurance etc), burden on carers, effect on social life. #livingwithandbeyoundcancer #IKCC2019 #IKCC2019
Image from IKCC Kidney Cancer (@IKCCorg)
Image from IKCC Kidney Cancer (@IKCCorg)
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Dr Lewis Au, 1st recipient of the Cecile and Ken Youner IKCC Scholarship, presenting research and potential for liquid biopsies for #kidneycancer #IKCC2019
Image from IKCC Kidney Cancer (@IKCCorg)
Image from IKCC Kidney Cancer (@IKCCorg)
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Social Media Workshop @IKCCorg #IKCC19 with @kcCURE @julietibrahim „Never ever tweet without a picture“. @KidneyCancer_Ca
Image from JibrahimFoundation (@ji_foundation)
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