November is National Epilepsy Awareness Month! #DareTo Go the Distance with the Epilepsy Foundation! tinyurl.com/pc2hsgl
Check out our new REN study postcard! We now have 22 patient advocacy organizations working as part of REN!
RareEpilepsyNetwork retweeted
Thank you @ajam for helping raise awareness #KCNQ2 Epilepsy @RareEpilepsyNet @RareDiseases bit.ly/1jLt6lj
RareEpilepsyNetwork retweeted
@RareEpilepsyNet has 1000 enrolled! Ohtahara families keep the momentum going and register with REN. #EpilepsyAwarenessMonth
Kathryn Jensen, mother of a child with Hypothalamic Hamartoma, urges all affected families to register for REN. youtu.be/YnnrpGrZRCY
Congratulations to REN's first Amazon gift card winners: Amie Bloom, Maryalicia Verdecchia, Cathy Hoyda, Sondra Tasker, and Karin Kilpatrick
The American Epilepsy Society (AES) accepted two research posters from REN to be presented at 2015 annual AES meeting in Philadelphia, PA!
Kristin Frausto, a Tuberous Sclerosis Alliance constituent, discusses the REN: youtu.be/ggPxDOGUu1Q.
Karen Groff, a Lennox-Gastaut Syndrome Foundation constituent, discusses the importance of registering for the REN: tinyurl.com/q9q5dms
Lisa Soeby, Co-Founder of Hope for Hypothalamic Hamartomas, discusses the importance of registering for the REN: tinyurl.com/qxntko4.
Register for this upcoming webinar about epilepsy, anxiety, and mood changes, hosted by the Epilepsy Foundation: tinyurl.com/pg6xj6m.
A parent of a son with a rare epilepsy explains why she participated in the Rare Epilepsy Network registry. tinyurl.com/opzzbcz
Epilepsy has been found to reduce the generation of new neurons. tinyurl.com/ktdfapu
We have reached an enrollment of 600! We are almost halfway to our goal. Won't you help us reach it?
